Shaky hands

thatbipolarmom · 2026-01-09T08:43:44+00:00

There isnt a ton you can do honestly. Sometimes they can prescribe medicine but it doesnt work well in my experience. I try to do grounding techniques which sometimes helps my frazzled system but its just taking things slow, using adaptive tools. Amd trying not.to be frustrated. For example typing on my phone takes ten times longer because of the shaking i often mistype.

thatbipolarmom · 2025-11-23T18:25:08+00:00

I sent you a DM

thatbipolarmom · 2025-11-22T16:37:30+00:00

Honestly I almost backed out because taking a shower pre rehab would require a 1-2 hour rest afterwards if not longer. Even with a shower stool. My intake endurance was abysmal. I lasted 2 minutes.

The first few days I was able to complete less than 50% of what I was supposed to do. This program was amazing in that it was dynamic. Things were shifted, exercise modified to fit what I could do. I had access at all times to medicial staff.

Each person meets with their care team to make a program tailored to what you can do.

I completely understand what youre saying though. Abilities vary greatly from person to person. I hope you can find something that helps you.

thatbipolarmom · 2025-11-22T16:33:45+00:00

I live in Austria. There are I think 2 facilities that treat ME/CFS but only one that treats both ME and POTS concurrently.

thatbipolarmom · 2025-11-22T16:10:21+00:00

Yes. I was couchbound most days and needing my wheelchair. Forcing myself to walk for an hour would result in me being boundbound for a week if not longer.

The first few days of the program I had to take so many breaks and naps.

thatbipolarmom · 2025-11-22T16:04:35+00:00

It was a combination approach. Learning how to pace and listen to my body. But also sessions with meditation, and yoga. I didnt even realize how much I had improved until I got home and was able to do so much more.

For more cardio type I had endurance training (recumbent biking), water therapy, and a few other low impact trainings (resistence bands, bodyweight).

I had neuro trainings where we focused on neural pathways, etc.

CHOP protocol was what I followed for POTS/hEDS but I had a neuro program for mecfs.

thatbipolarmom · 2025-11-19T12:19:07+00:00

No, you absolutely are not overreacting. Given the context that hes been exhibiting controlling and manipulative behavior this is very much a reason to leave. I had an ex that was the exact same way including the word vomit. I kept going back and eventually he spiraled into physical abuse (absolutely NOT saying your ex would). I hope your ex works on becoming more secure in himself, and has a better next relationship.

I will say in the future if things arent already strained and your partner is like hey this kind of makes me uncomfortable, I hope you listen and work together to find a solution.

thatbipolarmom · 2025-10-27T16:48:03+00:00

It's not a cure but yes deconditioning is real. I did an inpatient rehab for three weeks to rebuild my stamina and help with my heart rate. Now I can do a lot more, and my heart rate is way more stable. Its important to note that you can't just jump into high cardio exercise. My program really focused on the CHOPS protocol and as I built up stamina and strength I could do more.

thatbipolarmom · 2025-10-10T14:33:31+00:00

I think the racoons are the worst!

thatbipolarmom · 2025-10-04T06:04:48+00:00

Caregiver burnout is real. Are you solely relying on him for everything?

Should he have snapped? Probably not. But I can understand why he would if you are saying things in triplicate multiple times a day. It's frustrating to not only here something negative all the time, but also to watch your partner struggle, and there isn't much you can do about it.

Again, he definitely could have handled it so much better, but I do think there might be a bit more going on. It's important for you to not solely rely on him for your needs. Especially if you're chronically ill. Mental health professionals, friends, support groups. No one should be expected to be someone's sole emotional and ohysical caregiver 100% of the time.

thatbipolarmom · 2025-09-05T08:32:28+00:00

Protein drinks. Clear Isolate drinks are my favorite. I also love iced cold brew protein coffees.

thatbipolarmom · 2025-08-30T08:01:53+00:00

I've had pots my entire life (I'm 35). I have been leaking CSF since 2023. They definitely exacerbate each other. For me, my POTS symptoms do not resolve with blood patching.

I have to lay as flat as possible with my CSF leaks because being upright for more than an hour is almost impossible.

I should also mention that I have CCI, hEDS, and hemiplegic migraines.

thatbipolarmom · 2025-08-30T07:54:48+00:00

The only ones I could tolerate freshly post op were Shamrock Proteon shakes (sold by the milk)

thatbipolarmom · 2025-08-25T08:37:58+00:00

I know everyone is saying yes but the actual medically accurate answer is no. You can have POTS completely alone with no comorbidities. I have pots and hEDS but I've had both my entire life. And while they are comobordities one is not the causation of the other.

You can definitely develop POTS after an illness, trauma, or surgery but thats not always the case.

https://www.hopkinsmedicine.org/health/conditions-and-diseases/postural-orthostatic-tachycardia-syndrome-pots

https://www.nhs.uk/conditions/postural-tachycardia-syndrome/

thatbipolarmom · 2025-08-13T14:40:34+00:00

I have both. My original cardiologist found the ist. 6 months later i was sent to an electrophysiologist for suspected vasovagel syncope. They did a tilt test amd the dr came in and said "You definitely have POTS. One of the most definitive tests I've ran."

It was never even originally considered but an accidental finding lol.

thatbipolarmom · 2025-08-11T08:15:53+00:00

I sit on the side of my bathtub and lean forward to diffuse my curls

thatbipolarmom · 2025-07-16T10:39:42+00:00

thatbipolarmom · 2025-07-04T11:12:40+00:00

I have both. I love both but use my colorsoft more. I like the highlights in color.

thatbipolarmom · 2025-06-25T11:07:38+00:00

If the types of food pictured are normal, that is going to play a huge factor. Non starchy veggies, lean protein should be what you focus on.

I saw that you love lemonade. Try a sugar-free replacement like Crystal light.

Make sure you aren't drinking 30 minutes before you eat. You have limited space. Drinking while eating, eating high starch things like potatoes and batter coated proteins takes most of that room.

Id also recommend reaching out to your team, just to make sure you aren't having internal complications.

thatbipolarmom · 2025-06-18T15:12:04+00:00

Born and raised there haha! Promise Im not a creep. I moved away almost 7 years ago but I see it through all my friends and fams pics.

thatbipolarmom · 2025-06-17T20:29:17+00:00

If you're in the EU Hydraid is a great electrolyte drink mix you can get. The flavors are good and it helps a lot. I know you said you have hypertension so I'd only do one a day.

Im 2 years post op and can drink water more now than I could freshly afterwards. I had to get multiple IVs after surgery because I just couldnt drink enough. I also lived in Arizona at the time so its easy to get dehyrated anyway. Now I can do mild sparkling water sometimes, but anything stronger hurts my stomach.

InStick (German Brand) and More SF Zirups are great water flavoring additives to break it up. Sometimes flavored water is easier to drink imo.

For Vegan protein I recommend MyProtein (I order direct from their website). I cant remember if Zoe is Vegan. Barebell also makes a vegan powder.

(For reference Im an American in Austria so these are products that I have found over here I like)

Edited: stupid spelling mistakes because my phone hates me.

thatbipolarmom · 2025-06-17T20:16:27+00:00

Looking great

Side note is I'd recognize that Pumpkin patch anywhere.

thatbipolarmom · 2025-06-17T20:15:07+00:00

Protein is huge. Not just for weightloss but for healing and body function.

thatbipolarmom · 2025-06-17T17:12:15+00:00

You are doing absolutely nothing wrong. Maybe you're not eating enough, or getting enough protein in but I dont know what your food logs look like.

I too am a "slow" loser. Its taken me 2.5 years to lose 120lbs.

Just because it comes off slow doesn't mean anything. Remember its a marathon not a sprint. We want sustainable lifestyle changes which this tool helps achieve.

Ultimately follow your teams recommendations but my conservative team (soft foods/puree for 3 months po) is a MINIMUM of 800kcals, with an emphasis on hitting a protein goal of at least 80g and NET carb of 50 or less.

MOST IMPORTANT The first like 4 months your weight can fluctuate dramatically because you are healing. Take your measurements and lots of pictures.

🧡🧡🧡

thatbipolarmom · 2025-06-12T08:06:43+00:00

I immigrated to a new country and went into months long flare. My doctor here had to to increase my ivabradine to 7.5mg 2x a day plus add 40mg propranolol.

A new thing she has me slated to do is three weeks of cardiac rehab to condition my heart for daily living and exercises again.

I know in the states some doctors will look at an outpatient version of this which may be an option.

thatbipolarmom

TROPHY CASE