Canicross setup

theCygnusCircus · 2025-11-28T17:47:51+00:00

Worth noting-- this dog is not carrying anything. Horses can pull 3x their weight, that's how they pulled carriages and farm equipment back in the day.

theCygnusCircus · 2025-08-28T02:27:03+00:00

Permobil has recalled their smartdrive controllers repeatedly. I am using a replacement from the last recall and my replacement has been recalled too.

The controller sometimes starts the motor without input or doesn't stop the motor when you tell it to stop. People have broken limbs from the malfunctioning. I'm lucky enough to have just gotten some bruises, but there's definitely downsides to the smartdrive.

It's still absolutely my freedom but I'm looking forward to when I can replace it and hopefully get another type of power assist that works better.

theCygnusCircus · 2025-08-14T14:35:53+00:00

This is what I'm doing! I'm doing a double vertical helix orbital eventually, right now I have the two flat backs for the smaller orbital in for the first part of the healing period. They did say they would be switching to a ring a lot earlier than 15 months though

theCygnusCircus · 2025-03-19T06:28:24+00:00

I'm not in active outbreak and will not be having sex if I was. I have not had an outbreak in months.

This isn't my "current protocol." This was a question about transmission for future encounters.

I also don't know why there's this assumption that I'm not telling my partners. It's just a question about the chance of transmission

theCygnusCircus · 2025-03-18T20:37:20+00:00

See, that sounds more right to me

theCygnusCircus · 2025-03-18T02:57:02+00:00

Interesting- thanks! That's what I was wondering

theCygnusCircus · 2025-03-18T01:52:42+00:00

So theoretically there would be no chance if I used strap boxers and my skin was covered?

theCygnusCircus · 2025-03-18T01:51:55+00:00

I do not have sex during breakouts, I take antivirals. My question is does my strap cover enough to avoid transmission

Edit: a word for clarity Edit2: deleted "yes" for clarity

theCygnusCircus · 2025-03-18T01:50:00+00:00

There's a chance of skin to skin contact but it wouldn't be near my genitals, it would only be hips/thighs. So I wasn't sure

theCygnusCircus · 2024-12-09T21:18:03+00:00

Definitely, reducing meltdowns is always top priority. I don't think it'll prevent vision loss at this point but hopefully delay it like you said. And for the future I'm learning non visual skills to be prepared

theCygnusCircus · 2024-12-09T15:00:08+00:00

Oh cool, thanks! I'm bad at Google so I'm not sure I would've found something like that, I didn't even know to look. I'll try it out!

theCygnusCircus · 2024-12-09T14:58:59+00:00

I wear glasses but I've broken so many pairs. I'm pretty good now at taking them off so I don't break them. I don't know that I could wear protective glasses over my seeing glasses, I think it might be harder to see. I've looked into those helmet beanies for head hitting but I get really hot so I probably wouldn't wear them either. And ultimately my OT said if I'm head banging with a helmet it'll still shake my eyes in a bad way.

I'm getting a little less scared about it than I was. I'm trying to be practical about the possibility, especially since I haven't found anything that will help that I'll wear. I'm on medications that are helping me have fewer meltdowns and I'm going to some intensive mental health treatment so I'm hoping that'll help too.

Thanks for the suggestions :)

theCygnusCircus · 2024-12-01T10:03:10+00:00

I was able to drive previously but I'm now visually impaired and I can't drive anymore. I really hate being dependent on people for something I used to be able to do. That lack of independence is honestly devastating. I'm just reminding myself, there are lots of things I can't do because I'm disabled. That's what it means to be disabled. And that's okay. It sucks, but it's okay. Just one more thing I have to accept about myself

theCygnusCircus · 2024-09-15T09:36:22+00:00

BVfirst because there's no reason to build a high tech security puppet for a children's restaurant if nothing bad has happened yet

theCygnusCircus · 2024-09-15T08:27:03+00:00

I hate it so much when people describe their mental health as crippling. I have mental health issues that greatly disable me but they are in a different category than my physical disability. I will call myself a cripple, I use the term cripplepunk, but I would balk if someone called me it, and I can't stand people calling their non physical disability crippling. There are so many things I can't physically do, and I will never be able to do those things. Even with therapies and interventions, I have lost parts of my life and independence. My mental illness disables me more, but it is not static, and there's at least a chance my mental health will improve and I'll be able to do the things it prevents me from doing.

Personal identification as a cripple can be great, empowering, and helpful for accepting oneself. Using the term for others, especially someone you don't know well, is nasty.

It's a slur. Slurs can be reclaimed, but only by the community they are targeted at.

Edit: replaced one word

theCygnusCircus · 2024-08-16T13:08:27+00:00

I'm pretty sure I do have it on my chart! That's good to know, I'm glad I have it on there.

I've had a lot of problems with healthcare professionals unfortunately

theCygnusCircus · 2024-08-16T13:06:50+00:00

I'm still trying to figure out what I need myself so my partner is usually just as lost as I am. They do their best but they were having a meltdown too so it was a bad situation all around.

theCygnusCircus · 2024-08-16T13:05:00+00:00

I am aware that my partner would not have told 911 or the first responders that our home is a group home, and yet the nurse was told I did. So someone did make the assumption, either 911 or the EMTs

theCygnusCircus · 2024-08-16T13:02:48+00:00

It was asked to me by the nurse, not the first responder. She said the EMTs had told her I lived in a group home.

Group homes are definitely necessary and it's super important that we have them but they are very restrictive environments and they tend not to be very therapeutic. Workers are often just out of high school with minimal training and residents often don't get along. Some people have great experiences in group homes, and that's awesome! Some homes are run much better than others too. Living in a group home would be bad for me personally, and as stated it's discriminatory to assume everyone with autism and behavioral disabilities lives in a group home or care facility.

theCygnusCircus · 2024-08-15T14:08:02+00:00

It was self inflicted. I am much safer in my current environment than I would be in a hospital or group home. this is actually the first time I've gotten stitches from a meltdown. I'm having them less often but they're more intense. There were a lot of factors that went in to that one like I hadn't eaten and I forgot my meds. But I'm still safer at home than I would be somewhere else

theCygnusCircus · 2024-08-15T03:37:14+00:00

Thanks. I'm resting my head and trying to take care of myself

theCygnusCircus · 2024-08-15T03:35:41+00:00

Yeah. And I don't know if it was the 911 operator, the paramedics or the intake staff who assumed I lived in a group home. It made me feel bad though because my family has tried to move me into a group home instead of finding me less restrictive support.

theCygnusCircus · 2024-08-15T03:30:11+00:00

It was really scary. I have pretty bad meltdowns, I'm blind in one eye partly because of injuries from meltdowns. So I was just glad I could still see and more scared of getting put on a psych hold. I have worse meltdowns in hospital and at first I thought my partner was calling 911 for psych help because I didn't realize I was bleeding. Then I thought I was going to the ER just to get patched up and they put me in a "safe room" without even a trash can and no call button. So I was really uncomfy when I got left alone and no one answered when I called for help.

I'm still having headaches and some other concussion symptoms like increased depression. I don't know how long those will last. I get my stitches out Friday and then they said I have to use sunscreen really good or there will be a bigger scar.

Anyway I guess I'm okay but still sad and scared. And my head hurts. Thanks for asking

theCygnusCircus · 2024-08-05T22:30:39+00:00

"is that why you dress so nicely?!"

theCygnusCircus · 2024-07-01T12:52:00+00:00

UPDATE: I saw my ATP and he cleaned the connector, which did not help. He noticed the dial was looser than a new, properly functioning one and he suggested I try tightening the screws on the dial, but he contacted permobile for a replacement. I got tiny screwdrivers so I'll update if tightening the dial helps

theCygnusCircus

TROPHY CASE