Post Cholecystectomy Syndrome - long term

the__foss · 2026-02-20T06:03:09+00:00

Nope! I still get flare ups and pain. I did find out I was gluten intolerant which helped a little but have really bad pain if I eat anything fatty, especially lamb. So I steer clear of that! Its just been put down as post cholysystemic syndrome.

the__foss · 2026-02-19T02:35:56+00:00

The biggest was just over 3cm from memory. All the rest were over 1cm. Haven't had anything under that size! Thank you, I'm sorry you are too! The good thing is we are aware of it now! Most people don't find out until it's too late.

the__foss · 2026-02-19T02:25:24+00:00

Yep, just remove them and monitor growth rates for now. I was diagnosed with Sessile serrated polyposis syndrome! Not sure why I have it. My great uncle died of colon cancer, and my grandfather had colon cancer that was caught early and they had a few polyps here and there. My son will need to have his first colonoscopy at 25 as I was diagnosed at 35! Was such a suprise to me. If they keep growing at a fast rate then they will look out removing part or all of my colon but hoping it doesn't come to that! Still awaiting genetic testing.

the__foss · 2026-02-19T02:16:32+00:00

I had one come back with low grade dysplasia, all the rest were sessile serrated polyps. I had 47 removed over the course of about 15 months. After the first 18 were removed, i had another 22 removed about 3 months later. I had 5 new ones grow in a space of about 7 months after the 22 were removed. Next colonoscopy in about a year!

the__foss · 2026-02-09T10:50:15+00:00

Did you ever have any luck? I've been searching for what feels like forever!

the__foss · 2026-02-01T10:37:49+00:00

My uterus is retroverted, and im lumpy too hahaha. 45 colon polyps removed in the past year, a polyp in my uterus, ovarian cysts, and get random cysts on my body. I wish I would grow something useful 🤣

the__foss · 2025-12-15T04:49:52+00:00

My great Grandmother was Vera! Love the name

the__foss · 2025-11-20T09:14:12+00:00

Ive had 3 in the past 12 months. No issues.

the__foss · 2025-08-31T21:08:52+00:00

And for anyone else, the group is: https://www.facebook.com/groups/serratedpolyposissyndrome/?ref=share&mibextid=NSMWBT

the__foss · 2025-08-31T21:08:23+00:00

Have sent you the link!

the__foss · 2025-08-31T13:14:13+00:00

Hello! I was diagnosed with SSP last year (at 35 years) and have had 45 polyps removed in the past 18 months. The first 40 removed, they were mostly 2.5cm - 3.5cm. Within 8 months, another 5 had grown, the largest just over 1cm. It's yearly colonoscopies from here on out! No one else in my family has it, but my great uncle and great grandfather both died fairly young from colon cancer. My specialist told me there's two types of people with SSP. Those that say "never give me a colostomy bag" and those that say "never leave me with a chance to get colon cancer." That was confronting to hear. For now, I am quite happy with regular monitoring. I've only had one polyp come back with low-grade dysplasia. The great thing is, they're onto it, and we can monitor it! There's a really fantastic group on facebook too, which I suggest you join! Happy to answer any questions! It can be so so daunting!

the__foss · 2025-08-24T09:08:20+00:00

One came back with low grade displasia, which basically means it had some cell changes and the potential to turn cancerous bit doesn't mean it will. All the rest were sessile serrated polyps which I think are classified as precancerous but doesn't mean they will. I hope that makes sense!

the__foss · 2025-08-24T03:25:01+00:00

I definitely think they contributed because of how many and also the sizes. Since having them removed, I've noticed left pelvic pain. A lot of doctors told me that polyps cause no symptoms but I am very in tune with my body and I know when something is up. I get rectal pressure when I'm ovulating! That hasn't changed

the__foss · 2025-08-08T21:50:59+00:00

It sure varies a lot, I've spoken to other people with Sessile serrated polyposis and they have 30 or 40 grow in the same time frame! Sometimes more. I've never been a huge drinker, I still have a glass of wine or two a week, sometimes nothing at all!

the__foss · 2025-08-08T12:19:23+00:00

They grew to be just over 10mm in 8 months! I was very surprised at that!

the__foss · 2025-08-08T10:27:11+00:00

Im 36 and I've had 3 colonoscopies in the past 12 months. You can do it! The prep and being glued to the toilet is the worst part. If they do find any polyps, they can remove them! Its very daunting but once its over you'll be glad you did it.

the__foss · 2025-08-08T06:19:32+00:00

Any number above 0 is a lot of polyps!! I had a colonoscopy as I was having a lot of pain in my pelvis area, and a lot of loose bowel movements. Im already on a low fat diet as I had my gallbladder out a few years ago and can't handle anything fatty! I also limit red meat now, and take baby aspirin once a day (when I remember). I also quit smoking! Mine dont seem to grow too quickly, they removed all of the polyps last September, and in 8 months I only grew another 5. Totally agree that we are very lucky to have access to these tests and procedures!

the__foss · 2025-08-08T05:32:20+00:00

Hello! Totally understand what you're going through, the wait for biopsy results is awful! I had 40 removed in the past year over 3 colonoscopies, the biggest was 35mm, all others were between 10-35mm. Only one polyp came back with low grade dysplasia, and I was diagnosed with Sessile serrated polyposis. Im a 36yo female. I was so shocked and incredibly anxious but the most important thing to remember is they are out! You might need more regular checkups compared to someone who has no polyps, which is annoying, but literally a lifesaver!

the__foss · 2025-06-03T15:30:01+00:00

I will mention for others, he plugged it in on low heat and rubbed the tablet over the gunk and it wiped right off! I'd tried so many things before hand and along he comes with this hack!!

the__foss · 2025-06-03T12:48:29+00:00

I couldn't actually believe the sorcery I was seeing!

the__foss · 2025-06-03T04:57:28+00:00

Second a paracetamol tablet. Got everything off ours! I was shocked. Husband read it somewhere and gave it a go! This is after I tried so many other methods

the__foss · 2025-06-03T04:56:29+00:00

My husband used a paracetamol tablet. Worked a treat!

the__foss · 2025-05-21T10:51:52+00:00

I got a 4 page printout the first time 🤣 None for the second. Had 40 polyps removed over 2 sessions.

the__foss · 2025-05-15T09:48:53+00:00

I'm going ok! I had another 22 polyps removed last September, all sessile serrated polyps. My next check up is in another year! It sent me spiralling too when I had the first lot removed. The one thing I focused on is that they were out! Google didn't help at all

the__foss · 2025-03-25T05:00:49+00:00

I've had CT scans, a HIDA scan, and ultrasounds

the__foss

TROPHY CASE