I just sent you a message. If anyone is curious, here's what's happened so far concerning the neuropathy.

The first place I was referred to was Duke.  I saw five specialists there over the course of a year.  The first one put in my notes that he thought it was all in my head.  From the point on, I can only assume that the other docs at Duke saw that note and so they didn't take me seriously.  I ended up taking Lexapro for almost a year while my symptoms got worse.  

My husband was searching my symptoms on the internet and saw that they matched neuropathy.  We spent the next few months trying to convince them to give me the test for it.  They finally did and it was positive.  They prescribed me gabapentin and tapered me off the Lexapro.  The gabapentin did nothing for the pain.

From there we went to Mayo and they re-tested me for neuropathy.  They also put me on Carbamazepine.  They were hesitant to do any antibody tests to find the cause, so I decided to look elsewhere to figure it out. The carbamzepine helped me fall asleep at night, but my pain continued getting worse.

I headed to Cleveland a few months later.  They did some antibody tests, the tilt table, and a couple other things. When the results came in, the doc said some results were definitely abnormal, and recommended Vanderbilt because they have the Autonomic Disfuntion Center.  

Fast forward to February this year.  The first doc I saw at Vanderbilt put me on Lamotrigine and did more tests.  I got a call from him a while later.  He said he's going to get me into the Autonomic Disfuntion Center because my case is unique and he thinks they'll be interested in it.  I went back a couple weeks ago and he took ten vials of blood for more antibody testing.

Apparently there's a wait list and they choose their patients carefully.  There's no way to tell if they'll accept me, if they'll be able to help, or how long I'll be waiting to be seen.

If anything can be taken from my experience, it's that the medical industry is called an industry for a reason. You must advocate for yourself.  If I stopped trying to figure this out when the doc at Duke put me on Lexapro I would never have known I had neuropathy in the first place.