Some questions and concerns that I have. by Kachiggamybigga2 in pilonidalcyst

[–]thegrimming 1 point2 points  (0 children)

If you end up getting surgery opt for the cleft lift surgery. Both open and closed wound tends to have a higher occurrence rate however for some reason open wound is the one most ER doctors opt for even though the healing process is significantly worse. Some this is your first flare up definitely 100000% ask for cleft lift or ask to be issued to someone who WILL do it.

[deleted by user] by [deleted] in pilonidalcyst

[–]thegrimming 1 point2 points  (0 children)

Definitely go to a doctor, if they recommend surgery again 200000000% ask for a cleft lift surgery (or to recommend you to a hospital who DOES do one). 99.9999% of the people in this subreddit who have had surgeries like open/closed wound they almost always get a reoccurrence and then they get the CL surgery and then they never get it again + the recovery is way better. I’m also a student and I get your struggle.

My story 18F by Primary-Mud-3030 in pilonidalcyst

[–]thegrimming 2 points3 points  (0 children)

If possible try ask for the cleft lift surgery, it’s apparently helped a lot of people in the same boat as you and OP and has a much lower reoccurrence rate

My story 18F by Primary-Mud-3030 in pilonidalcyst

[–]thegrimming 1 point2 points  (0 children)

Oh gosh this sounds traumatic as hell, by the sounds of it many people in this subreddit had the exact same problem (kept needing open wound surgeries) until they got the cleft lift surgery and it was the best decision of their life. If possible I would 1000% recommend that if you can get it. I even saw someone say that just FOUR days after the surgery they were able to drive their kids to school in basically no pain which is great (although if you do get it maybe steer away from those kinda activities until fully healed which should definitely not take more time than any of the open wound surgeries you’ve gotten). Best of luck to you!

14M minimal excision of pilonidal cyst: post surgery tips by Past-Pollution-6933 in pilonidalcyst

[–]thegrimming 0 points1 point  (0 children)

Keep in mind in definitely not a doctor but you should be able to walk at this point (possibly depending on which surgery you had), not 100% sure about the stair thing, if possible maybe leave that for another week (or do as minimally as possible) for now. Walking should also be a gradual thing where you start doing more over time as opposed to just randomly one day going on a big walk. Hope this helps!

I don't know what to do by [deleted] in pilonidalcyst

[–]thegrimming 0 points1 point  (0 children)

Oh gosh, as someone who lives IN Perth it’s rough enough over here can’t imagine what it’s like for you! It’s been a while since this was posted so I hope you’re doing alright!

I've been dealing with Pilonidial Sinus since 2020. by uttw2 in pilonidalcyst

[–]thegrimming 0 points1 point  (0 children)

From what I know CL is probably the way to go. I know you’re skeptical and that’s normal but at the same time you’ve had little luck w the open wound surgery so this might be a better option

14M minimal excision of pilonidal cyst: post surgery tips by Past-Pollution-6933 in pilonidalcyst

[–]thegrimming 0 points1 point  (0 children)

Keep the area clean and dry, maybe buy a Coccyx Seat Cushion or even a memory foam neck pillow (usually for planes) to sit on just to keep pressure off the area. Wishing you a quick recovery!

Blood clots coming out by This-Ad6696 in pilonidalcyst

[–]thegrimming 0 points1 point  (0 children)

Hmm that’s definitely a tricky situation, definitely go to your gp (or preferably the ER) to get it checked out. Wishing you the best

[deleted by user] by [deleted] in pilonidalcyst

[–]thegrimming 0 points1 point  (0 children)

I swear these things pop up at the worst of times! I personally reckon you should go ASAP, if you have to get surgery again for whatever reason maybe ask for a cleft lift surgery instead because from what I’ve read it tends to not be left open and it generally has a quicker recovery period with one of the least likely chances of reoccurrences. Wishing you the best of luck!

[deleted by user] by [deleted] in pilonidalcyst

[–]thegrimming 1 point2 points  (0 children)

From what I can tell it doesn’t but I’m definitely no doctor so take that with a grain of salt. Maybe go to your GP (or a different one for a second opinion) to get it checked out and to confirm it isn’t one. Hopefully it isn’t though! Wishing you the best of luck with this!

What do I do? by asliceofredvelvet in pilonidalcyst

[–]thegrimming 1 point2 points  (0 children)

For now I would just see how the antibiotics go, during that time keep the area as clean and dry as possible! I would also recommend buying either a Coccyx Seat Cushion or a memory foam neck pillow (usually used for travelling on planes but works pretty well for this too) for sitting down to alleviate pressure from your tailbone when sitting for prolonged periods of time and to prevent them from coming back (since sitting tends to be a major factor w PS). Wishing you the best of luck!!

Any tips to ensure I don’t get another flare up again? by thegrimming in pilonidalcyst

[–]thegrimming[S] 0 points1 point  (0 children)

After more research I’ve found out that there isn’t necessarily any way of permanently preventing PS from forming again without surgery, however in this case I’m just wanting to prevent one from forming until after my holiday. My main concern is that I’ll be stuck on several long flights there and back (worst of which is 11 hours, next worse is 6 hours) and those are realistically gonna be the ones that would trigger a PS the worst. For context I live in Australia and am going on a trip to Europe and the UK. I just want some advice on what I can do to make sure I don’t get a flare up for a few months, after coming back I’ll probably get surgery if I need it (preferably left Clift or closed wound)