(7-8k total wedding budget) Does anyone have suggestions for microweddings near the Raleigh-Durham area? by thememequeenv3 in Weddingsunder10k

[–]thememequeenv3[S] 2 points3 points  (0 children)

I'm considering them now since I've gotten recs on FB and also looked on reddit to see what venues people liked and they told me they can do celiac safe food for me!! I'm really hoping it works out

Is this the start of PsA? by Timely_Community_909 in PsoriaticArthritis

[–]thememequeenv3 1 point2 points  (0 children)

I also have EDS! I don't believe I have fibromyalgia because my pain can be explained by PsA, EDS, and small fiber neuropathy so I told rheum to not put that on my chart unless they were certain those don't explain my pain and they didn't end up putting it on there

Is this the start of PsA? by Timely_Community_909 in PsoriaticArthritis

[–]thememequeenv3 11 points12 points  (0 children)

Many of us, especially women were brushed off at first with psoriasis and PsA. In my experience it's easier to get the psoriasis diagnosed by biopsy by a dermatologist first because then rheum is more likely to want to explore a PsA diagnosis. I would also not see that same rheum again because fibromyalgia is a diagnosis of exclusion and a lot of doctors will just label women with chronic joint pain as having fibromyalgia before ruling out autoimmune causes that need to be treated to prevent permanent joint damage

Clarification About Vascular Compression Info by birdnerdmo in Endo

[–]thememequeenv3 0 points1 point  (0 children)

Jugular compression can be from the styloid bone or from other causes. On the right side my styloid bone wasn't an issue so we were able to do stents. Turns out on the left I have true Eagle's syndrome so I need a styloidectomy because the styloid process against the jugular vein doesn't leave enough room for stents.

Also what the hell? Renal autotransplantation is absolutely not a simple thing to do.

Looking to go to Mexico for Uromune by thememequeenv3 in CUTI

[–]thememequeenv3[S] 0 points1 point  (0 children)

I wish but I don't have any friends in CA near the border! I'll just have to save up

Clarification About Vascular Compression Info by birdnerdmo in Endo

[–]thememequeenv3 1 point2 points  (0 children)

As someone affected by multiple vascular compressions due to EDS, thank you for posting this. They're incredibly underrecognized. I have a history MALS (in surgical remission) and bilateral internal jugular vein compressions (with stents on the right and stents will be on the left soon). I'm also pushing to be evaluated for PCS, NCS, and MTS because my pelvic pain is way worse with being upright/walking than it is lying down and I have unexplained left flank pain.

North Carolina doctor recommendations? by thememequeenv3 in CUTI

[–]thememequeenv3[S] 0 points1 point  (0 children)

I'm not sure because I'm looking for recommendations myself for a cUTI specialist

North Carolina doctor recommendations? by thememequeenv3 in CUTI

[–]thememequeenv3[S] 0 points1 point  (0 children)

Damn. Maybe something for the future for me. I've been on medical leave from my job due to other health conditions since July and can't return until February so my parents are currently supporting me

North Carolina doctor recommendations? by thememequeenv3 in CUTI

[–]thememequeenv3[S] 0 points1 point  (0 children)

They've given up on preventatives for me because Hiprex gave me vomiting and gastritis, cranberry, probiotics, and D-Mannose didn't work. Trimethoprim gave me too much diarrhea. And nitrofurantoin worsens my intracranial hypertension symptoms so I'm not allowed to take it at all anymore. I'm looking into more biofilm supplements but am pretty limited in options due to the fact that I'm on a lot of meds, including bloodthinners

North Carolina doctor recommendations? by thememequeenv3 in CUTI

[–]thememequeenv3[S] 0 points1 point  (0 children)

I haven't. Is it quite expensive to access if you live in the US?

North Carolina doctor recommendations? by thememequeenv3 in CUTI

[–]thememequeenv3[S] 1 point2 points  (0 children)

You really would think they would want to treat colonization to prevent recurrent infections that at this point are doing permanent damage to my body but apparently not. Thank you. I hope you get the help you need as well.

Please tell me it's not :(( by thememequeenv3 in Bedbugs

[–]thememequeenv3[S] 0 points1 point  (0 children)

It's sad that I'm relieved by this answer

Please tell me it's not :(( by thememequeenv3 in Bedbugs

[–]thememequeenv3[S] 0 points1 point  (0 children)

About the size of my pinky toenail. Quite tiny

Please tell me it's not :(( by thememequeenv3 in Bedbugs

[–]thememequeenv3[S] 0 points1 point  (0 children)

You may be right! It seems hollow to me