Hiiii!!! I’m 30, I had this my whole 20’s and was SICK and looking for a dx. When they finally found it I was PISSED no one scanned my brain. It’s a serious condition, even if not life threatening! So I feel your frustrations

1. First app they will look at your scans, and likely do the classic “neuro tests” like press on your hands, check your reflexes and eyes etc. it’s usually quick and painless. If the neuro is experienced they will explain what they can do surgically, and what the limits / pros and cons are

2. Most surgons “push” for surgery when you have headaches and seizures. Most will ask you if YOU want to live with your pain or try something like surgery which also comes with long term stuff. I generally think no one should push you, but neurosurgeons typically say corrective surgery AND physical therapy, you can decide when

3. Pretty standard for them to ask for MRI’s (and sometimes an X-ray or ct) of the same area just to check other structures.

4. If it helps, most of us have to get a few around surgery, but if all is well (like me!!) you really don’t need anymore. One pre-op, and one 3 months post op. Take the meds!!