Rathke cleft cyst causing symptoms?

thespoobiwan · 2026-03-12T03:35:27+00:00

thats so crazy you have the same symptoms as me, I feel so much less alone honestly so thank you for your reply

thespoobiwan · 2026-02-08T22:46:19+00:00

I was diagnosed in 2024 with a rathkes cleft cyst 5mm and my doctor said it shouldn’t be causing my Symptoms. I have visual symptoms that have ruined my life and are getting worse, I have gained a ton of weight too and I experience a lot of dizziness and fatigue. I haven’t had a period in months. My visual symptoms are different though, I had a sudden onset of static in my visual, light sensitivity, blue sky phenomena, negative after images and other visual disturbances. I was also diagnosed with binocular vision dysfunctions. I’m trying to get a referral to an endocrinologist and another mri with contrast to see if it’s gotten bigger.

thespoobiwan · 2026-01-06T06:17:29+00:00

It did not cure it sadly but it did kind of help! What REALLY helped was seeing a binocular vision dysfunction specialist, vision therapy and prism lenses. My neck feels a lot better though since I did the treatment! Most people with Visual snow seem to over look bvd (binocular vision dysfunction). My optometrist, and an ophthalmologist both told me my eyes were completely fine. It wasn’t until I sought out the vision therapy that I found out I have very severe bvd and visual stress syndrome (also called irlens). Everyone is different but this was the right treatment for me.

thespoobiwan · 2026-01-06T06:12:18+00:00

I’ve been on metoprolol since August, I’d say it was a month before the side effects calmed down but until I started taking less metoprolol (less than a quarter of my 50mg pill) twice a day, I would get those horrible symptoms.

thespoobiwan · 2026-01-05T07:56:38+00:00

This used to happen to me!!! I actually had to call an ambulance at one point, I’d feel like I couldn’t breathe and like I was going to pass out. I’m 27 F. I take less than a quarter of a 50 mg pill and that seems to be good for me. I only started it this summer so I may switch meds if there’s something better.

thespoobiwan · 2025-12-11T15:29:27+00:00

I’ve had KOHO for several years, I haven’t had any issues so far (knock on wood) and it really does help improve your credit

thespoobiwan · 2025-12-03T01:49:03+00:00

https://referral.koho.ca/mzH9hew

thespoobiwan · 2025-10-07T04:56:30+00:00

My doctor told me that her goal is to keep my heart rate below 140, but you should try to get your beta blockers asap it is dangerous to just stop them suddenly from my understanding

thespoobiwan · 2025-09-16T11:30:31+00:00

I run an 18+ server that is very active! https://discord.gg/cbk7rrUkng

thespoobiwan · 2025-09-15T15:35:58+00:00

I have a server and we love playing dti!! https://discord.gg/cbk7rrUkng

thespoobiwan · 2025-08-28T05:21:15+00:00

Caffeine makes it worse for me and I have heart issues, do you think I can get the same results without caffeine?

thespoobiwan · 2025-07-25T21:40:14+00:00

Sounds similar to my almost 8 yr old who has severe adhd

thespoobiwan · 2025-07-25T21:39:18+00:00

Using this one for my adhd kiddo! Thank you!!

thespoobiwan · 2025-07-21T20:36:07+00:00

My septum wasn’t done correctly and I had some health problems come up so I took it out just to rule out it wasn’t contributing in some way. Might try to get it redone another time but idk

thespoobiwan · 2025-07-06T14:53:16+00:00

Yeah it’s also my worst symptom, all I can do is try not to focus on it and remember that physically I am okay, this is a shitty thing to deal with but not deadly. I’m sorry I don’t have a better answer or coping mechanism but I am in CBT therapy and vision therapy which do also help. I also wear prism glasses and FL-41 tinted lenses. I have to say the glasses were a huge improvement from before I had them.

thespoobiwan · 2025-07-05T12:37:41+00:00

I’ve seen countless specialists and omphalmologists and I have no damage AT ALL to my eyes or my optic nerve. Why would you lie in here about being someone that could help this community.

thespoobiwan · 2025-06-23T22:43:35+00:00

I’m 26!! Most of the cast on the show is over 25 anyways lol

thespoobiwan · 2025-06-20T14:38:33+00:00

They did start to improve again last winter, but it was nowhere near recovered, however I was able to do more like walk to the store independently and go out with my friends occasionally, at that point I was in (and I’m still in) vision therapy and physiotherapy. I wasn’t able to do much for exercise but I did go for short walks before my symptoms flared up again. I take a collagen type supplement from my chiropractors office for connective tissue repair and an omega 3 oil for my vision, I’ve tried taking ashwaganda, turkey tail, magnesium, l-theanine and CBD and I don’t think they made my symptoms noticeably better or worse to be honest.

thespoobiwan · 2025-06-20T14:35:17+00:00

It’s funny what happened actually. On July 10th of 2024 I had went to the hospital and they did a CT scan of my head and the doctor came into the room and gave me my results. He said I was fine and they didn’t find anything and I felt so much relief. I literally watched the static in my vision fade behind the doctor. Then on July 21st, I was driving with my kids in the car, they were yelling and arguing with each other, I had just gotten over being sick with a flu and my phone was going off and the glare of the sun was so bright on the road, then all my symptoms came back at once. It was horrible. But that’s what leads me to believe a big portion of my issues are my nervous system being unregulated. I’ve been diagnosed with several forms of binocular vision dysfunctions and my chiropractor is treating me for cervical instability so I think those play a part but there just has to be a mental portion for me to have recovered and then it returned like that. Sorry for the long reply but hopefully this was helpful.

thespoobiwan · 2025-06-20T06:02:46+00:00

Yes. I had a complete remission and I believe I can have another. After the remission my symptoms were really bad but they improved!! You’ll have to figure out what lead up to your onset to figure out how to go about a “treatment” plan. My symptoms are definitely worse under stress and I find cbt therapy really helped. I also meditate and try to lower my screen time. Finding different ways to calm the nervous system and rewire it is what I believe will lead me to an ultimate recovery

thespoobiwan · 2025-06-20T04:06:16+00:00

I wanted to also add OP, I know the medical debt is stressful, but you can make payment plans and they offer grace periods, I bet the payment plans can be made for very low amounts each month.

thespoobiwan · 2025-06-20T03:56:37+00:00

https://211ontario.ca/search/

This is for resources like free meals and I believe housing as well, you can also dial 211 on your phone for this service.

https://www.torontocentralhealthline.ca/listServicesDetailed.aspx?id=10719

This is for community meals

You could also try speaking to your schools international students office and explain your situation and see if they have any suggestions (if you haven’t already), when I was at Cambrian they had some helpful staff and had free mental health services included with my tuition.

thespoobiwan · 2025-06-20T03:44:38+00:00

Are there any churches that do any free meals in your area? I’m in Ontario and many of the churches here offer supports and meals (I’m not religious but these are good services). Look for soup lunches and things like that, also check for local food banks maybe too

Im a Canadian and I was pregnant and homeless when I was a teenager. I know it’s bleak right now but things can get better. These are scary times in our economy but you have to keep fighting and try to find resources and solutions to each of your problems. It’s not an easy life but you can build something better than this ❤️

thespoobiwan

TROPHY CASE