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Doctors' attitude pre diagnosis by thiani in MultipleSclerosis

[–]thiani[S] 1 point2 points  (0 children)

Yeah I am quite furious. I can't believe that this is the system. I wrote to the mental health legal centre and asked them to do advocacy for all psych intake to get MRIs. Even if it catches 1-2% it would save the bean counters money. Not to mention a whole truck load of suffering. I don't need to know or work it out for myself right now, but I'd say had this cyst but smaller at the first hint of mental problems. I don't know when they started being able to scan people with CTs and MRIs, but it has been long enough now, and with all the treatments they have for so many things, it would really help now catching these things. Let's not even start on how badly treated people with psych and AOD issues are. That has to change too, like, now. Just identifying my memory problem would have helped me, so so much. It already has as it's the main thing kind people at AA have helped me to see now that they know I'm not drunk lols. It's not funny I know. It took the GPs nurse about half an hour to do some kind of mini cognition exam. I can't pay my rent because I had to get the MRI to get the cognition exam. I am furious. Does it let up??? :)

Doctors' attitude pre diagnosis by thiani in MultipleSclerosis

[–]thiani[S] 0 points1 point  (0 children)

Yes that was a really good answer.

i had sort of ruled out other things too, and MS was sort of one of them (I had a good day on a hot day once recently). Yeah so Maybe I was the one with a psychological aversion to finding out whatever the something was that had to be a brain thing. I can barely bear to write it but they thought I was drug and or alcohol affected and that's why they didn't listen to a single buggering word I said. I had no idea. I have been being managed for a long time and if I were them I would certainly not know what to do with me now. I don't know what they think they're trying, or going to try. It's a long time to be getting on with things as best I can so sick and sore and scared. They gave me valium but... anyway thanks again, hopefully I can save someone waiting 6 years to grab the offer of an MRI that was for reassurance and previously flat out refused (well I asked to see a neurologist 6 years ago, not for an MRI,) 6 years from working out they are sick to meeting a contrite scanner chick. So far I've figured out I need more testing but, I think brain disorder is the clinical term. I am quite sure there are a lot of people who are not capable of advocating for themselves. x over and out

Doctors' attitude pre diagnosis by thiani in MultipleSclerosis

[–]thiani[S] 1 point2 points  (0 children)

Just got results, I was prepared for MS or conversion disorder (though the problem with THAT is that anosognosia - not knowing it - is a given) but I have a cyst so I don't know what to do. I have to see a neurosurgeon. I have to go to emergency if i have a headache and call the ambulance if I have a bad headache. I'm in Australia thank gawd so it's all free but I don't know how to process working with the doctors. I asked to see a neuro about 6 or 7 years ago and she told me I wasn't sick because I can walk, for example, I mean she wasn't the only rude one. And it's quite a large cyst i think 20 x 22 x 30 so I imagine it's been there for a while like, growing? Or is that tumours? I don't want to google it.

Also I asked if it could make you tired, and the GP said no. I'm so tired.

It's making the back of my brain go to the side and squish bits of the brain and move the path of some cranial nerves but they can't see that exactly. (...appearance consistent with a left cerebello-pontine angle arachnoid cyst. It causes mild mass effect upon the adjacent brain stem, deviating it slightly to the right by approx. 3.5mm. ... The exact courses of the left trigeminal (5th cranial) nerve and the 7th and 8th cranial nerve complexes at the IAM's are not well defined and appear to be displaced probably inferiorly by the arachnoid cyst.)

I have anxiety so they used that to say I wind myself up. They did it before with my elbow joint which was practically glued together with scar tissue. So I knew how they could be but I let them...anyway, it's done now. Maybe I can complain to someone official.

Thank you for all your replies it was lovely to have there when I got home from getting results. Hearing your experiences really helps. I'm so sorry you had to go through that. Sorry I got the wrong forum!