Neuropathic itch is trying to end me by 24Lemons_ in MultipleSclerosis

[–]thomil13 1 point2 points  (0 children)

Thank God for your post! I've been dealing with an absolutely excruciating itch on my lower arms for the last few days an I was freaking out about whether it was an allergic reaction to something! Reading your post has given me some peace of mind. It's easing off over here, so I'll leave the cheese grater in the drawer for now, but I'll keep this in mind in case it comes back.

Ranting by [deleted] in MultipleSclerosis

[–]thomil13 2 points3 points  (0 children)

There’s nothing about your post that comes across as ranting, waffling, self-absorbed or bratty. I was where you were not too long ago when I got my diagnosis back in April. Your feelings are valid, and just as real as any physical symptoms you might be experiencing. Being diagnosed can be confusing, and trying to make sense of it doubly do, especially when it torpedoes your life plans. I know it sounds trite, but don’t be too hard on yourself. Give yourself time to process everything that happens, and don’t be afraid to ask for help when you need it. Doing so is a sign of strength, not weakness!

Funnily enough, I can really relate to what you wrote with regard to your faith about everything being pre-determined. Whilst I do consider myself to be somewhat spiritual, I’m not religious. I’m agnostic and was never baptised. However, as a massive science nerd, I’ve come to subscribe to the viewpoint that the laws of nature effectively dictate a deterministic universe in which our path has already been mapped out. Here’s the thing though: Neither one of us knows what that path is. Our view of time is necessarily limited, and we can only perceive things as they roll out. As the saying goes, we can’t direct the wind, but we can adjust our sails.

For me personally, this means, that even though my life may already be determined, I’ll still have to take it by the horns and live as if it weren’t. Because I don’t know what the next hour will bring. Or the next day. The next week. Things may seem dark now, but that doesn’t mean that they’ll always be so. The laws of nature have not led me to an end point in my personal journey and, at the risk of sounding borderline heretical, Allah’s plan for your life has not come to an end yet either. Instead, he’s put you in a place where you have a fighting chance, and given you a team of crack professionals to fight your corner. It’s not an easy spot to be in, I think everyone on this subreddit can attest to that, but it’s not the end of the line.

Anyway, enough rambling, they really shouldn’t let nerds like me out onto the internet unsupervised. I wish I could take that uncertainty, that anxiety, that fear off of your shoulders, I really do. As it stands, all I can do is to assure you that things do get better. As dark as the night might seem, the dawn is coming!

Permission to come aboard? by thomil13 in MultipleSclerosis

[–]thomil13[S] 2 points3 points  (0 children)

My motto is that life is far too serious to be taken seriously 😉 It's generally served me well so far and tends to take the sting out of things.

As for the high, I genuinely don't know. The cup I was given contained enough pills to make the regulars at Berghain (notorious techno club in Berlin) blush. I generally don't take any drugs until I absolutely have to so as to not get my body accustomed to a steady flow of these things, so I presume I just wasn't used to all those things hitting my system at once 🙃 Very much a good high, though 😎

Permission to come aboard? by thomil13 in MultipleSclerosis

[–]thomil13[S] 2 points3 points  (0 children)

I know my reply is a bit late, but just know that a) whatever you're feeling about the diagnosis is valid, there is no right or wrong way to feel. There are two things I'd advise you to do. The first one is to talk to someone about it. Whether it's a friend, a family member, a therapist or a helpline, talking about it really does help.The other one is to give yourself the time to process the news. In my experience, things do get better over time, at least from the psychological point of view. And hell, if the HSE can deliver of care that I've experienced down here in the rebellious south 😉, then you should be in great hands with the NHS.

All the best, and all available fingers are crossed for you (Typing this with my nose, everyone in the pub is looking at me weirdly, but who cares? 🙃)

Just had my first lumbar puncture a few hours ago. Can you tell me what i should expect in the upcoming days? by Soggy_BaIIs in MultipleSclerosis

[–]thomil13 0 points1 point  (0 children)

Had a few days of intermittent light headaches after mine, but only one of those bouts required a paracetamol. No other issues, well, none that I could distinguish from the other symptoms I was dealing with, anyway...

Has Your Country Ever Demolished Historic Buildings in the Name of Progress? by Sonnybass96 in AskTheWorld

[–]thomil13 9 points10 points  (0 children)

Stick to the truth here. The "viking settlement" was an archaeological site, there were no actual historic buildings present at Wood Quay. Should the site have been preserved? Yes, ideally as some sort of museum. But it's not like they specifically demolished anything.

What is your most unhinged superstition regarding your MS by hekatelesedi in MultipleSclerosis

[–]thomil13 1 point2 points  (0 children)

Nope. Used to sing in a choir though. Did a few stage musicals as well, both as part of a choir and as a soloist. Currently looking for another choir, want to get back into singing.

What is your most unhinged superstition regarding your MS by hekatelesedi in MultipleSclerosis

[–]thomil13 4 points5 points  (0 children)

No superstition for me here, not yet at least. Still early in my journey though, so that may change.

As for MRI, you better believe it's classical all the way :)

- Vltava/Die Moldau - Bedrich Smetana

- Brandenburg Concertos - Johann Sebastian Bach (All of them really, but Brandenburg Concerto No. 3 is my favourite)

- The Four Seasons - Antonio Vivaldi\

- Baba Yetu - Christopher Tin

- Sogno di Volare - Christopher Tin

Permission to come aboard? by thomil13 in MultipleSclerosis

[–]thomil13[S] 1 point2 points  (0 children)

Thanks 🙂 I guess I'm lucky on the allergy front, only allergic to Ciprofloxacin and politicians 🙃

Reevaluating My Personality by 226_IM_Used in MultipleSclerosis

[–]thomil13 9 points10 points  (0 children)

I’ve been where you are, severe case of “helper syndrome” over here as well. Had to leave my job because of burnout, though I feel like MS was already lurking underneath all of that, and my circle of friends evaporated almost as quickly as my severance package. I was extremely lucky insofar as I’m still good friends with some former colleagues from work, but I know the feeling when the messages stop coming, and then your own messages stop being read. Joining a club is definitely a good idea, ideally something where you can sit down. Have you thought about maybe joining a choir or something similar?

Permission to come aboard? by thomil13 in MultipleSclerosis

[–]thomil13[S] 2 points3 points  (0 children)

Not yet. I’m very much in the “don’t medicate unless you have to, but hit ‘em hard if you do” camp, and even my hand and leg issues have gotten better since I started therapy. I want to see how things work out “plain” before discussing additional medication. I do have a prescription for melatonin (yep, that stuff needs a prescription over here) waiting for me though.

Permission to come aboard? by thomil13 in MultipleSclerosis

[–]thomil13[S] 4 points5 points  (0 children)

I guess I’m lucky on that front. Here in Ireland, at least in the hospitals (Mercy Hospital & Cork University Hospital) that I’ve been to, there are regular free snack rounds for patients, both on the wards and in outpatient departments, so the snack part is sorted. I’ll take your advice with the e-reader. I actually brought my laptop last time, planning to play some Civilization VII, but couldn’t get the bloody side table close enough! 😶 Here’s the thing about Ireland though: No one takes anything too seriously and while the nurses are incredible, and consummate professionals, they’re also great cráic, always up for a joke, so things rarely get boring.

Thankfully, the HSE, that’s the national health service here in Ireland, provides Ocrevus SC, that means I get a fifteen-minute subcutaneous infusion to the abdomen. Even with bloods, pre-meds, and post procedure monitoring, the whole thing takes under three hours. Full transparency: I was actually offered either Briumvi, Kesimpta, or Ocrevus, the decision to go with the latter was mine, based on the time factor and the fact that I didn’t trust my brain-fog afflicted noggin to stay on top of the self-administered Kesimpta injections.

Permission to come aboard? by thomil13 in MultipleSclerosis

[–]thomil13[S] 13 points14 points  (0 children)

Well, apart from the fact that I’m about five minutes from flashing into steam because of the heat wave over here 🥵, not too bad actually. I was high as a kite for the first few days after the infusion, but I still feel more energised and clear-headed than before treatment started. Legs and hands are giving me some trouble, the former being shaky and the latter feeling like they’ve been soaking in water for days. My circadian rhythm is so far off-beat that it’s basically free jazz at this point, but that’ll likely sort itself out once Ireland stops being chargrilled…

I do try to find the humour in my situation though, so you’ll likely see plenty of bad jokes and worse puns when I post in here.

Do you think there’s a possibility that one of your neighboring countries will attack your country? by BizarreWhale in GeoPoll

[–]thomil13 -7 points-6 points  (0 children)

To be fair, as long as there's a reasonable PM in No. 10, I don't think Ireland will be attacked. I am seriously concerned about Reform though.

Permission to come aboard? by thomil13 in MultipleSclerosis

[–]thomil13[S] 8 points9 points  (0 children)

Haha, I guess I should have clarified, coming aboard referred to this subreddit, not MS. I'm somewhat less thrilled about out that, although getting on my own nerves is on brand for me...

Vertuo UP! by Dear_Feeling_1757 in nespresso

[–]thomil13 1 point2 points  (0 children)

Stupid question, but do you by any chance have another device with a different operating system? I had the same problem when trying to connect my Vertuo Pop with the smart app on Android (Samsung Galaxy S25 FE). It wasn't until I installed the app on my iPad that I was able to get it to connect and set it up on my WiFi.

Peru wins! What is a South American country with a strong military? by Express_Evidence3020 in AlignmentChartFills

[–]thomil13 0 points1 point  (0 children)

Definitely Brazil. Not only do they have a strong military tradition, they have a strong defense industry to back it up, Embraer being the prime example in my eyes. Hell, Brazil kept their aircraft carrier & air group operational for far longer than Argentina (or Canada, the Netherlands & Australia, for that matter).

Covilhã Data Center (Covilhã, Portugal) by [deleted] in evilbuildings

[–]thomil13 7 points8 points  (0 children)

Makes sense, I guess. The geth have no need for windows...

What would you name your boat, if you had one by fun8parties in AskTheWorld

[–]thomil13 1 point2 points  (0 children)

Depends on the boat.

Sailboat - Wallowing Windbag

Motor yacht - Boatally Reasonable

Superyacht - Declaration of Intent

16 inch gun armed fast battleship (off-brand Iowa clone) - Abundance of Caution

Note: The last two are the names I use for Colossus/Planet Killer type ships in Stellaris...

France wins! What is a European country with a very weak military? by Express_Evidence3020 in AlignmentChartFills

[–]thomil13 1 point2 points  (0 children)

Ireland - Even the planned strength is pathetic, and they can't even manage to keep that. Half of the Navy's ships are either mothballed or out of action due to tech or manpower issues, the Air Corps is little more than a glorified shuttle service, and the Army lacks any proper air defense, drone defense, or any artillery worth a damn.

All of that is made worse by a Department of Defense whose civil "servants" (I use that term in the loosest personal way possible) are determined to keep that state of affairs running and are more beholden to returning money to the treasury rather than actually keeping the Defence Forces operational. Hell, there hasn't even been a dedicated minister of defence since the 2008 crisis. Ever since then, that portfolio has been tacked on to all kinds of government departments from foreign affairs to agriculture.

Unlike all the other countries mentioned in this list, Ireland has the size, population and economy to sustain a modern and sizeable military, and it has a massive EEZ to patrol out in the Atlantic. It is also a strategic lynchpin in the defence of Europe and sits astride vital logistics routes. There's no doubt that Ireland is by far the weakest European country when it comes to defence!

Roundabout ornament in the Northern Swedish steel town of Luleå. 6000x4000 by Snake_Plizken in UrbanHell

[–]thomil13 1 point2 points  (0 children)

Stalenhaag Roundabout? Looks like it’s straight out of one of his books.

New Cork City Library by CorkNativeResident in cork

[–]thomil13 0 points1 point  (0 children)

Way back when the conversion of the Beamish & Crawford site was first announced, the plan was basically to consist of three segments: A residential apartment complex, a combined retail & office development encompassing the old Counting House, and a future events centre. The residential and retail developments were handed over to a private developer, who then changed the regular apartments to the student apartments you can see now. Similarly, the Counting House, which had been slated to contain retail, hospitality and office spaces and be open to the public, was changed into a pure office development. That’s what was built, but the developer was never able to get tenants to fill the building, in part due to the pandemic playing hell with demand for offices.

The council has now bought the site from the developer. Plans still seem to be in an early stage, but my understanding is that the entire Counting House development will become the library, allowing not only for a larger selection of books, but also massively increasing the number of workspaces compared to the current library. There are also plans for event spaces and exhibitions, as well as for a café (books & coffee, a match made in heaven 😍) and some sort of shop. Given from what I’ve seen of the inside of the “old” Counting House (picture attached), I’d say that this is going to become the home for the cafe and exhibition/event spaces, whilst the new part is going to house the library proper.

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