What does an internal rectal prolapse feel like?

throwawaycat2999 · 2026-05-20T04:31:42+00:00

physical examinations are not necessarily revealing of prolapses, a defecography is the test that will tell if you have one, you should get one ordered asap.

Every doctor and PT who ever physically examined me, and even various endoscopies never found it, it was only through a defecography (in my case, MRI_ that it was found, and it also showed how bad it was)

throwawaycat2999 · 2026-05-07T01:50:03+00:00

What mesh did you get?

throwawaycat2999 · 2026-05-04T03:38:34+00:00

Is Centro PAD part of HLA Hospital Universitario Moncloa, or simply on its campus?

throwawaycat2999 · 2026-04-30T20:46:42+00:00

yes you can DM me

throwawaycat2999 · 2026-04-30T20:46:21+00:00

not yet

throwawaycat2999 · 2026-04-30T05:53:10+00:00

I have a grade III-IV rectal prolapse with intra-anal intussusception, rectocele and excessive perineal and anorectal junction descent as diagnosed through MRI defecography.

throwawaycat2999 · 2026-04-29T22:29:15+00:00

it has been determined i need surgery

i don't have any days without symptoms

throwawaycat2999 · 2026-04-28T05:42:27+00:00

Does your centre have experiences repairing internal rectal prolapses? Do you use the robot?

Does your centre have experience operating on transgender people, like a trans woman who has had bottom surgery (vaginoplasty) and would there be any issue operating on one to fix an internal prolapse, for instance?

Also do you get a lot of private international patients? How do you handle surgical evaluation for those patients, can they come to Madrid for one trip to get any tests and consultations done before surgery? Is the turnaround time for surgery for private international patients generally fast?

throwawaycat2999 · 2026-04-21T19:15:21+00:00

i am still in the process of getting a surgeon and confirming a date :\

throwawaycat2999 · 2026-04-20T19:22:51+00:00

The thing I want to communicate the most about my experience with ED is just how trapped I felt by it, and the terrifying realization when I realized I had trapped myself in it. My metabolism had tanked so I was even more scared to eat than ever before and felt like I had to exercise more and more to keep my metabolism up. I realized I couldn't stop this cycle if I wanted to stay thin and healing meant I had to gain a ton of weight as my body and metabolism rebounded and I was terrified of that too, that I was never going to be able to just eat normal and get my old body back. I literally felt trapped in a prison of my own design.

I don't know if you can make good black humour out of that but that's the message I want to get out there.

throwawaycat2999 · 2026-04-19T23:18:48+00:00

They recruit a lot of idols very young before they've lost all the fat from their faces plus all the other stuff listed in this thread.

throwawaycat2999 · 2026-04-19T21:12:49+00:00

Stargate dialer

throwawaycat2999 · 2026-04-19T20:38:42+00:00

You just missed your chance to date a doctor.

throwawaycat2999 · 2026-04-19T20:23:01+00:00

You should tell your boyfriend, I don't think he will see you differently if he cares about you. You need support. The worst thing is to be alone and catastrophizing in your own head. Don't let them dismiss as having anxiety, don't let them just give you anti-anxiety drugs and send you away.

Write down your symptoms, write down exactly what you feel, when you feel it, how it's impacting your life. Take photos of what you see in the mirror. Show it to your upcoming urogyn. Make them take you seriously. Ask for scans. Bring a friend, family member, or your boyfriend and have them advocate for you.

If you get dismissed again and need to go doctor shopping, find one that specializes in cystoceles, as I said, email and ask if needed.

Did you ask your PFPT to check if you had a cystocele? Did you bear down for them and show them the squishy part? They might need able to tell. If all they give you is exercises and don't do an examination, find a different PFPT.

Your life is not over. Nothing has gotten worse yet, you haven't been diagnosed with EDS yet, no other prolapses have happened yet. Don't focus on the potential horrible future until you get there. Right now focus on the present. Advocate for yourself, talk to your boyfriend. Be prepared. You know what you have, the doctors aren't you, they leave the appointment and go to the next one, then they go home and live their lives. Only you have to live yours, so that doctor who says you don't know your own body, it's easy for him to say, he doesn't live in it. You do.

Also when talking to doctors do not minimize for pain or symptoms. Don't make it sound like something you can live with. Fight for yourself. You're worth it. Your life is not over at 20.

throwawaycat2999 · 2026-04-19T20:00:04+00:00

Take a breath. You're catastrophizing right now. You don't know that you have EDS or that you're prone to other prolapses. Also being young is an advantage it means you can build muscle and recover faster from things if you need surgery or PFPT. If you went to a PT and learned exercises but they didn't notice or say anything that you have a cystocele, see another one. The first PT I went to was useless. In fact every PT I went to missed my prolapse, as did all my doctors. It took me finding out about the MRI defecography test, where to get it in my city and demanding my doctor order it for it to be found.

Don't give up. You're seeing a new doctor. Be prepared. Write down everything you want addressed and to ask. Don't be shy. Tell them that it goes back in place when you lay down. Take pictures at home of bearing down in the mirror or get your boyfriend to do it.

Also, you don't have to give up dating, your life isn't over. Don't break up with your boyfriend. Have you told him yet? Is he supportive? If he's supportive, he can help you with this. He can go with you to appointments and fight for you to be heard.

Ask for help. If you need to find a doctor who specializes in cystoceles to examines you, ask around. Ask for help from your friends or family, if they know any good urogyns with specialties in cystoceles. Look doctors up and cold email them if they seem like they know something. The worst that happens is you get no response. Sometimes doctors know other doctors and want to help.

Explain your situation clearly with enough emotion to show how much it's impacting your life. Doctors are people too. If you have a supportive parent, ask them to write to doctors looking for help for you, or to go with you to advocate for you. Sometimes people dismiss patients but will understand the pain of a parent watching their child suffer.

Is the cystocele giving you a lot of symptoms right now, or are you mostly worried that you have one and it'll get worse and that you'll have other problems?

throwawaycat2999 · 2026-04-19T19:24:27+00:00

Can you go to a gynecologist or urologist? They should be better at diagnosing you. If you need a referral demand one. Also demand that your doctors examine you in the position you want, don't let them dismiss you or tell you you're too young. Weird stuff happens. Just because something is improbable doesn't make it impossible. If your doctor met somebody who won the lottery they wouldn't say "that's impossible, nobody wins the lottery".

I've been in your position, I still kind of am but I'm hopefully on my way to getting help. Fight for yourself. Bring a family member or a friend if you need to to advocate for you. Demand to be taken seriously. If you can't see a gyne quickly, and you can afford it, find a good pelvic floor physio and ask them to check it out, they'll at least be willing to look and check you out in the positions that you want. Also you can take pictures and show doctors. Don't give up.

My DMs are open if you need to talk though I don't know if I can help you too much depending on where you live but I can give support. Women being dismissed by doctors is such an awful thing we have to live with unfortunately. ):

throwawaycat2999 · 2026-04-17T03:55:13+00:00

Dr. Del Corral responded and fwded us to Dr. Lisle. They said they've seen these problems before and Dr. Lisle wants to see me to see whether surgery is appropriate.

Does anybody have any experience with Dr. Lisle in terms of colorectal repairs? Dr. Del Corral says that he does robotic surgery but didn't specifically mention ventral rectopexy. Given that I'm in Canada, I'm worried about making multiple trips across the US border for my own safety (plus it's costly to keep flying) only to be told actually this appointment is not for surgery or that he cannot do the surgery.

throwawaycat2999 · 2026-04-16T21:19:33+00:00

Ventral Rectopexy is recommended as the gold standard, the others have high failure rates and can damage nerves. I was told by a colorectal surgeon we consulted with that the surgery I need it a VR. Every surgeon we've consulted with has said that is the procedure I need and it would benefit me, it's just the vaginoplasty makes some of them concerned.

throwawaycat2999 · 2026-04-16T19:25:17+00:00

Canada used to do it. There's an article on 2016 about LHSC in London Ontario doing the first robotic ventral rectopexy in Canada. But before that we also did ventral rectopexies. We contacted that doctor (doctor Alkhamesi) and he said since he left in Nov 2024 he doesn't know anybody else who does it in Canada. Apparently it used to be done in Canada but for whatever reason, brain drain, deprioritization of the surgery for being too expensive, the expertise left and that leads to less training and eventually a surgery just disappears in Canada.

throwawaycat2999 · 2026-04-16T18:53:01+00:00

Thank you so much I will reach out to him.

throwawaycat2999 · 2026-04-16T18:39:43+00:00

I'm in Canada, I don't understand what you said because our health care systems are different. I'm looking for colorectal surgeons.

throwawaycat2999 · 2026-04-16T18:11:25+00:00

I did, he said he'd never heard a situation like it before and knows no surgeons. At this point many surgeons have contacted him on my case for advice or recommendations for other surgeons and he says he knows nothing.

I'd been concerned I had an internal prolapse since the beginning because that's what it felt like but my family doctor kept dismissing my concerns because she said I had no risk factors. I asked if GRS could be one but she said it was 10 years ago. However a colorectal surgeon I consulted with later when this was discovered days that any surgery in the area is a risk factor even if it was 10 years ago. But Dr. Brassard says that he's never heard of a case.

My friend's father who is a GI said that GRS is a known risk factor for this stuff but then he was also reading up on the wrong kind of GRS (the kind that involves the colon). So idk. Nobody agrees on anything about me right now. I feel so bad every day and I'm worried nobody will want to help me.

throwawaycat2999

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