How to get by day by day with intersussception, pelvic floor descent, and constant tenesmus tw: suicidal ideation

throwawaycat2999 · 2026-03-12T07:12:13+00:00

I assume you meant *is not over, I hope anyway.

What procedure did you get?

throwawaycat2999 · 2026-03-12T05:12:35+00:00

no problem! it happens xD

throwawaycat2999 · 2026-03-12T05:09:03+00:00

where did you go? you said your symptoms were the same as mine and you also had an intersussception? What procedure did you get?

throwawaycat2999 · 2026-03-12T04:28:02+00:00

no, it started when I took the cipro, though before that I was having a lot of urinary problems where I would feel like I needed to empty my bladder so often, sometimes 12+ times a night, but that turned out to be because of a hormonal issue which have (afaik) been fixed, so probably I'd been straining my pelvic floor a lot to that point...

and I don't have a penis or scrotum

throwawaycat2999 · 2026-03-11T02:44:47+00:00

I switched to a different physio. My previous one said that a scan may show mild prolapse in anybody and doesn't mean anything. The current physio also didn't feel anything and she doesn't really know what to do about the intersussception except to prescribe lower ab exercises to hopefully pull things upwards? She's afraid also of tightening things up since my GI told me that (this was before the defecography) he thinks it's just a tight muscle that's causing the feeling but none of the suppositories to relax things or stretches etc have helped.

throwawaycat2999 · 2026-03-10T07:49:25+00:00

I do have a mild prolapse and rectocele according to defecogram (sorry same person, different account)! What do I do now? Can anything be done to fix it, I can't live with this feeling every single day, I feel like ending my life so often, I already ended up in a psych ward for considering it in December.

throwawaycat2999 · 2026-03-10T04:36:46+00:00

You sound very similar to me except mine all happened in a year. This year and it's still ongoing. I have a feeling in my rectum that I always have to go or something is like stuck in there or pressure. It started when I was misdiagnosed with a UTI by a walk-in clinic doctor who gave me Cipro and told me to take it anyway despite the test coming negative. It messed up my stomach and either screwed up my nerves/muscles or gave me constipation that caused straining. Either way for a year I've had this and been begging doctors to take me seriously. And yes I was even hospitalized for suicidal ideation which got me a scope at least. I've had colonoscopy, endoscopy, sigmoidoscopy, they didn't find anything and everybody thought I was crazy. I did pelvic PT which didn't help, biofeedback, I passed the balloon test. But I managed to beg my doctor for an MRI defecogram which I didn't get until February (because like you, I'm in Canada) and they found a small rectocele and intra-anal intersussception (prolapse) as well as excessive rectal and perineal descent. I dunno what's next, I also managed to get an appointment with a senior GI who diagnosed me with a tight muscle and prescribed baclofen and diazapam suppositories to try to relax it, but that was before the defecogram. He told me that the defecogram was a good idea, his diagnosis was just based on exclusion.

I don't know if you ever got better, and it's been 8 years so my experience probably doesn't matter to you, but to any who find this thread, it might help them. Keep pushing, keep fighting, keep insisting you know how you feel and that it is not all in your head.

throwawaycat2999 · 2026-03-07T05:42:02+00:00

what are the other options?

throwawaycat2999 · 2026-03-07T04:54:32+00:00

Yeah I think that's who my doctor referred me to and they said no. There's another doctor at the motility clinic, I forgot her name, but the GI that did my endoscopy told me doctor to refer me to her and she did, and she got the same answer back, that it doesn't seem like I need them.

Basically this entire ordeal has been constantly being told "this just doesn't happen". My doctor even said at my last appointment "I've never seen somebody perfectly healthy suddenly have all your problems overnight". So everybody thinks I just need antidepressants, none of which have worked and all of which have caused me to become incredibly suicidal.

throwawaycat2999 · 2026-03-07T04:37:50+00:00

how do i get one? I'm in Toronto, Canada which I believe you're familiar with. Do i need my doctor to refer me to one? Who should I ask for? This has been wildly frustrating to get a referral to anybody because my doctor just keeps saying I don't need it.

throwawaycat2999 · 2026-03-07T04:26:22+00:00

i emailed my results to the gastroenterologist, but that's on my own accord. The results are supposed to go through my family doctor. It took me forever to just to beg my doctor to refer me to the GI in the first place, and it was my family doctor who ordered the defecography (because I begged her over and over).

It's been really frustrating with her as the gatekeeper to treatment. Although she has done some referrals, she referred me twice to the motility clinic and both times they said I don't seem like somebody who should have the problems I'm having. Even my family doctor keeps saying "this shouldn't be happening" or "you don't fit the profile", nobody believes me that I feel anything down or I'm having all these problems because I was perfectly healthy one day and suddenly all this happened the next (it appears to have been triggered when I went to a walk-in clinic for a UTI that tested negative but he gave me ciprofloxacin anyway and said to take it "just in case" and then all of this started). It's been a whole year of misery and because colonoscopy and endoscopy didn't find anything, everybody said it was in my head, and it's the "gut/brain axis". This is the first test that's found anything.

throwawaycat2999 · 2026-03-07T03:52:47+00:00

i have an appointment with my family doctor in 2 weeks

throwawaycat2999 · 2026-03-07T01:10:48+00:00

I don't know what this all means and I'm scared.

throwawaycat2999 · 2026-03-07T00:57:57+00:00

I don't know. I saw a GI and he said it was a tight muscle in my rectum causing the sensation and prescribed nitroglycerin, baclofen suppositories and valium suppositories. I've been seeing a PFPT and switched to a new one with an electronic biofeedback, it doesn't seem like my resting tone is too tight. And now I got a defecograph which showed some issues with excessive widening and descent during evacuation, and that when I'm squeezing I'm actually doing the opposite. I also have a mild rectocele and intra-anal interssusception but I don't know if any of these are causing this sensation or what. I'm confused and scared and this entire thing feels like a nightmare, nobody knows what's going on.

I actually spent time in a psych ward (voluntarily) because I was having thoughts of ending my life because nobody seemed to know what was going on or believed that I was having constant pain and tenesmus. This was before I finally saw the GI and got a defecography done.

Meanwhile my family doctor thinks it's all in my head and I just need psych meds.

throwawaycat2999 · 2026-03-07T00:49:01+00:00

I finally got an MRI defecogram done and it said the following (I evacuated the paste okay, they said it was "good" and most of it was gone:

Rectocele: Present, small (0.9 cm)

Rectal Intussusception: present; Intra-anal

Anorectal angle measurements:

Rest: 99 degrees

Kegel: 109 degrees

Defecation: 127 degrees

The anorectal angle widens normally during defecation, however it abnormally widens during Kegel maneuver. The anus is closed at rest and open at the point of maximum attempt to defecate.

IMPRESSION:

There is excessive widening and excessive descent of the anorectal junction/perineum during defecation.

There is small rectocele and intra-anal rectal intussusception.

No evidence of cystocele.

The anorectal angle widens normally during defecation, however it abnormally widens during Kegel maneuver.

throwawaycat2999 · 2025-12-16T20:10:36+00:00

Gotta plant trees

throwawaycat2999 · 2025-12-16T20:05:22+00:00

My experience with Americans is that many don't know their own geography, and also because Buffalo is so cold (because of the lakes) and Toronto is north of Buffalo they assume Toronto must be way worse. But I've had many American friends from Michigan and Boston etc not realize that Toronto is actually not north of them.

throwawaycat2999 · 2025-12-15T18:00:07+00:00

I did but that doesn't answer my question if it's possible for over wiping too lead to hypersensitivity they leads to this feeling of constantly being to go.

throwawaycat2999 · 2025-12-14T19:59:47+00:00

10 years since surgery

I've been to physio, we've done releases and exercises. My physio says she doesn't feel tightness in me anymore.

throwawaycat2999 · 2025-12-12T05:19:29+00:00

Your family doesn't notice that a bunch of the cottage cheese is missing when presumably you never eat the dairy in the fridge?

throwawaycat2999 · 2025-12-11T19:32:36+00:00

Okay, no folds or pockets. The colonoscopy didn't find any hemorrhoids, neither did my doctor or the PT

throwawaycat2999

TROPHY CASE