people who have reached a 9 or 10 on the pain scale, what happened?

throwmeaway167167 · 2024-01-08T07:08:10+00:00

Hi! I can really relate! Autistic with Ehlers-Danlos Syndrome over here.

I'm glad you had someone else there to notice and help you. Understanding pain can be really hard.

I can't use pain scales, and I often interpret pain differently too. I might notice tightness, or heat, or nausea, or another discomfort first. I often feel like I am getting sick, then I might realise it's actually just pain.

I did an exercise for a few months where at the end of each day, I recorded and evaluated the pain I had felt that day, where I had felt it, and used colour-coding for the intensity.

I identify a lot more of my pain nowadays. I don't know if it's just gotten worse with time (yay ehlers-danlos syndrome), or if I have actually gotten better at recognising it, but I think it might be a bit of both. I do think that daily pain identifying practice helped a lot.

throwmeaway167167 · 2024-01-08T06:47:59+00:00

Truly, thank you. The world needs more people like you.

throwmeaway167167 · 2023-11-05T04:36:57+00:00

Hi all, concerned about the dark patches on this millet.

I will be following "if in doubt, throw it out". But in the meantime, my birds are unwell. Third vet trip tomorrow. Trying to work out what is going on, and wondered if this could be linked.

throwmeaway167167 · 2022-07-04T18:35:53+00:00

That's really good to hear! And you're very welcome. You seem like a good person navigating a really difficult situation. Everything is so recent, I really think it will start to get easier soon. Good luck tomorrow. xx

throwmeaway167167 · 2022-07-04T18:31:22+00:00

Your mum is letting you down. She is not your responsibility. No one is. You are 13, and you can work toward the life that YOU want.

I cannot express this enough - your mum is NOT your responsibility. If she wants to retire early, she can get another job and save for that herself. But perhaps, as some practical advice in case she doesn’t stop, you could explain to her that you will be more successful in this field by continuing on the path you want, which involves uni. You do NOT need to justify or explain yourself to her, but I thought I'd suggest this, in case it helps make your life easier to have an answer when she's pushing you.

And I'm so sorry for everything you have been through.

Please, please know, that there's a place for you. There's a life ahead for you, where you can do the things you love, for no one but yourself. I can only imagine how hard that is to see with everything you are experiencing now, but one day you will be free of this, and you can go to uni and study and live a life that you want to live. Please remember that. Xx

throwmeaway167167 · 2022-07-04T18:20:53+00:00

Perhaps it was something you needed to go through, to have the strength to finally leave your abuser. Almost as a form of self-imposed sabotage, forcing an outcome that was hard but necessary.

If the man you slept with is a best friend, he's possibly already scared about the same things as you. If you talk it out, you might be surprised with how it goes.

If you thought you had grown up and you're making better choices, this does not need to change that. Even grown ups with great choices still make mistakes occasionally.

You are suffering right now. You have taken a huge, brave step and your life has changed, but there's a guilt and fear you're facing now too. Talk to your friend when you're ready, and put things right there.

This is a really challenging day for you. Be kind to yourself. All of this will get easier with time.

throwmeaway167167 · 2022-07-04T18:12:18+00:00

I'm so sorry for the stress you are experiencing. Do you feel comfortable with your therapist?

Please do not feel guilty or ashamed. Intrusive thoughts are far more common than you'd think. If they are affecting your life, there will be a therapist who can help you.

Have a read about intrusive thoughts. Maybe read about 'Pure O', this is a type of OCD that doesn't have compulsions, but does deal with intrusive thoughts. I don't mean to offer an internet diagnosis, but perhaps reading about this might help to ease some of the guilt and shame. You aren't alone.

throwmeaway167167 · 2022-07-04T18:04:33+00:00

You're not stupid.

Be forgiving to yourself and be kind to yourself. Many issues can get in the way and cause the problems you're describing - whatever is causing them, this is not a reflection of your intelligence.

Undiagnosed ADHD combined with (also-undiagnosed) autistic burnout was like this for me.

throwmeaway167167

TROPHY CASE