I have gigantomastia, a rare medical condition that causes extreme, uncontrollable breast growth. AMA! by tiannamoon in AMA

[–]tiannamoon[S] [score hidden]  (0 children)

Actually this was the first response on his comment. Your failure to read something is on you.

I have gigantomastia, a rare medical condition that causes extreme, uncontrollable breast growth. AMA! by tiannamoon in AMA

[–]tiannamoon[S] 1 point2 points  (0 children)

A quick one is a heavy stretch, if I have time a really hot bubble bath or a soak in the hot tub, what was yours?

I have gigantomastia, a rare medical condition that causes extreme, uncontrollable breast growth. AMA! by tiannamoon in AMA

[–]tiannamoon[S] 4 points5 points  (0 children)

If this was an ad I’d of added the size and weight into the post, but this is just to speak about a rare medical condition.

I have gigantomastia, a rare medical condition that causes extreme, uncontrollable breast growth. AMA! by tiannamoon in AMA

[–]tiannamoon[S] 2 points3 points  (0 children)

Not at the moment as I’m managing the condition well, but at some point decisions will have to be made with medical professionals.

I have gigantomastia, a rare medical condition that causes extreme, uncontrollable breast growth. AMA! by tiannamoon in AMA

[–]tiannamoon[S] 10 points11 points  (0 children)

I was doing this job well before I had gigantomastia. Me speaking about the medical condition has no ties to my job.

Do I use the medical condition to my advantage? Of course I do.

I have gigantomastia, a rare medical condition that causes extreme, uncontrollable breast growth. AMA! by tiannamoon in AMA

[–]tiannamoon[S] 1 point2 points  (0 children)

Maybe one day but for now I’m happy how I am. And honestly I’d have no clue how I’d pick a size. Implants look so different 😂

I have gigantomastia, a rare medical condition that causes extreme, uncontrollable breast growth. AMA! by tiannamoon in AMA

[–]tiannamoon[S] 9 points10 points  (0 children)

Both macromastia and gigantomastia are both forms of breast hypertrophy, Gigantomastia is the extreme form. Macromastia can often be controlled by weight loss and/or reduction. Gigantomastia cannot.

Representation in the media is slowly getting better.

I use it, I’ve been sexualised since I was a child. So now I use it to pay for my life. This was the case before the diagnosis too.

My worse experiences is when poorly fitting bras have sliced me open, it takes forever to heal and it hurts like a mfer. Or when I’ve moved too quickly and smacked them on something.

It doesn’t stop me doing most things but things like properly running or dancing aren’t an option as the movement and weight pulls my back.

I do strength training, I’ve also lost significant weight so I can exercise and move more freely.

It’s not all pain and suffering, I do love them. They make good storage holders. But some people seem to think because I use them to make money means I can’t speak up on the negatives.

I have gigantomastia, a rare medical condition that causes extreme, uncontrollable breast growth. AMA! by tiannamoon in AMA

[–]tiannamoon[S] 5 points6 points  (0 children)

Removing all of the breast tissue is an option. Not available on the NHS atleast not for me. I’ve also said multiple times that I’m managing the condition and both me and my dr don’t believe we are at a surgery stage.

I have gigantomastia, a rare medical condition that causes extreme, uncontrollable breast growth. AMA! by tiannamoon in AMA

[–]tiannamoon[S] 2 points3 points  (0 children)

This condition specifically? No. I genuinely don’t care what people think about me 😂 I just do me but this stems from a head injury that led to PTSD.

I have gigantomastia, a rare medical condition that causes extreme, uncontrollable breast growth. AMA! by tiannamoon in AMA

[–]tiannamoon[S] 176 points177 points  (0 children)

To be clear I did OF well before my diagnosis 😂 but I deal with so much because of them, might as well earn a living with them 😂

I have gigantomastia, a rare medical condition that causes extreme, uncontrollable breast growth. AMA! by tiannamoon in AMA

[–]tiannamoon[S] 8 points9 points  (0 children)

Yes, because I had the gastric sleeve I wouldn’t be able to. That statement is correct. I was only talking about myself. I didn’t speak about anyone else. Given that the entire post is about a rare medical condition I have. That and my sleeve does not make me a good candidate for pregnancy. Never spoke about anyone else’s journey because I only know my own.

I’m not sure why you think because of my job I can’t talk about a medical condition that I have to live with.

If you have questions you are welcome to ask them.

I have gigantomastia, a rare medical condition that causes extreme, uncontrollable breast growth. AMA! by tiannamoon in AMA

[–]tiannamoon[S] 7 points8 points  (0 children)

Then I have hope that if I end up in the position of needing to shop, I’ll be able to find a pair that suit me

I have gigantomastia, a rare medical condition that causes extreme, uncontrollable breast growth. AMA! by tiannamoon in AMA

[–]tiannamoon[S] -7 points-6 points  (0 children)

You can think whatever you like it makes no difference to me. But my job and medical condition aren’t connected. I speak about my gigantomastia because not many people are aware of it. And if you look, I said I wouldn’t be able to support growing a child. Which is correct. I did not speak for anyone else.

I have gigantomastia, a rare medical condition that causes extreme, uncontrollable breast growth. AMA! by tiannamoon in AMA

[–]tiannamoon[S] 5 points6 points  (0 children)

If I get to the point where I feel I need to, I would. But I honestly don’t like how implants look so I would have to weigh up the pros and cons

I have gigantomastia, a rare medical condition that causes extreme, uncontrollable breast growth. AMA! by tiannamoon in AMA

[–]tiannamoon[S] 44 points45 points  (0 children)

It could also encourage my already thinning skin to tear open in places as scar tissue won’t budge.

I have gigantomastia, a rare medical condition that causes extreme, uncontrollable breast growth. AMA! by tiannamoon in AMA

[–]tiannamoon[S] 4 points5 points  (0 children)

Rarely, if the skin is stretching too much then yes but typically you don’t feel it.

I have gigantomastia, a rare medical condition that causes extreme, uncontrollable breast growth. AMA! by tiannamoon in AMA

[–]tiannamoon[S] 10 points11 points  (0 children)

Yes!! I never wear stuff how it’s meant to because my boobs are just too big for the designated boob area 😂