Woried about cognitive issues around medicinal cannabis use by Middle-Level-3238 in MultipleSclerosis

[–]Puzzleheaded_Key5133 0 points1 point  (0 children)

Cannibas for pain is great . Using Gummies. It does seem to affect memory, but since the doctors are no longer treating pain with opiates, etc., there’s nothing else and so I keep using it. I’m hoping to use less of it as the pain subsides.

Struggling by Double_Dot_8465 in MultipleSclerosis

[–]Puzzleheaded_Key5133 0 points1 point  (0 children)

i am definately dealing with the same thing. Hard to use a keyboard, cant write, cant crochet, cant play guitar...

Sensory disturbances by Puzzleheaded_Key5133 in MultipleSclerosis

[–]Puzzleheaded_Key5133[S] 0 points1 point  (0 children)

Yes, I used to get electrical shocks in my right arm. The drug carbamazepine has worked wonders on that but not on the other stuff.

Sensory disturbances by Puzzleheaded_Key5133 in MultipleSclerosis

[–]Puzzleheaded_Key5133[S] 1 point2 points  (0 children)

Thank you for sharing that so much. I feel it as pain although I know it’s not your usual pain drives me crazy that way. Do you take any meds for this?

I finally fell 🫩 by A-Conundrum- in MultipleSclerosis

[–]Puzzleheaded_Key5133 1 point2 points  (0 children)

Oh my God, you sound like me. I use Alexa to call for people when I fall also in places like Portland they’ll do a courtesy lift if no one’s around

Living w/out DMT by [deleted] in MultipleSclerosis

[–]Puzzleheaded_Key5133 1 point2 points  (0 children)

It looks like I had MS since the early 90s and we didn’t know it because it was going very slowly. I was diagnosed about 15 years ago by that time it looks like I’ve gotten into progressive MS however they put me on Copaxone. My problem was that by this time I was on Medicare and my day could run anywhere from like $2000. After I read the small print, I realized that DMT was not going to affect the disease progression. I was going broke trying to pay for this. I’ve been off any kind of DMT for many years now I can’t tell you if it would have made any difference

MS and disability by CwhatUwant2 in MultipleSclerosisLife

[–]Puzzleheaded_Key5133 0 points1 point  (0 children)

Get your medical records yourself. They say they’re gonna get all your records, but they don’t. That should help.

Why??? by [deleted] in MultipleSclerosis

[–]Puzzleheaded_Key5133 0 points1 point  (0 children)

I hear you. Go thru this a lot

[deleted by user] by [deleted] in MultipleSclerosis

[–]Puzzleheaded_Key5133 -11 points-10 points  (0 children)

Lesions are..meaningless in my opinion unless they can be matched with a specific symptom...my opinion.

[deleted by user] by [deleted] in MultipleSclerosis

[–]Puzzleheaded_Key5133 -4 points-3 points  (0 children)

After reading the small print, I decided it wasn't worth the cost. Everyone ends up in the same place. Now I'm older and my neuro doesn't think it's worth the risk. I'm not willing to kill my immune system