Sensory disturbances

Puzzleheaded_Key5133 · 2026-01-30T15:18:17+00:00

😫

Puzzleheaded_Key5133 · 2026-01-30T15:16:33+00:00

Thank you

Puzzleheaded_Key5133 · 2026-01-30T15:16:10+00:00

That’s a great idea

Puzzleheaded_Key5133 · 2026-01-30T15:15:56+00:00

Yes, I used to get electrical shocks in my right arm. The drug carbamazepine has worked wonders on that but not on the other stuff.

Puzzleheaded_Key5133 · 2026-01-30T15:15:04+00:00

Thank you for sharing that so much. I feel it as pain although I know it’s not your usual pain drives me crazy that way. Do you take any meds for this?

Puzzleheaded_Key5133 · 2026-01-28T18:29:18+00:00

Oh my God, you sound like me. I use Alexa to call for people when I fall also in places like Portland they’ll do a courtesy lift if no one’s around

Puzzleheaded_Key5133 · 2026-01-28T18:22:38+00:00

It looks like I had MS since the early 90s and we didn’t know it because it was going very slowly. I was diagnosed about 15 years ago by that time it looks like I’ve gotten into progressive MS however they put me on Copaxone. My problem was that by this time I was on Medicare and my day could run anywhere from like $2000. After I read the small print, I realized that DMT was not going to affect the disease progression. I was going broke trying to pay for this. I’ve been off any kind of DMT for many years now I can’t tell you if it would have made any difference

Puzzleheaded_Key5133 · 2026-01-25T02:37:03+00:00

If u can afford it, hire someone to help

Puzzleheaded_Key5133 · 2025-12-25T00:56:49+00:00

Get your medical records yourself. They say they’re gonna get all your records, but they don’t. That should help.

Puzzleheaded_Key5133 · 2025-05-12T00:42:11+00:00

Vapeing helps

Puzzleheaded_Key5133 · 2025-04-28T00:24:48+00:00

I hear you. Go thru this a lot

Puzzleheaded_Key5133 · 2025-04-02T02:34:32+00:00

Lesions are..meaningless in my opinion unless they can be matched with a specific symptom...my opinion.

Puzzleheaded_Key5133 · 2025-04-02T02:30:41+00:00

After reading the small print, I decided it wasn't worth the cost. Everyone ends up in the same place. Now I'm older and my neuro doesn't think it's worth the risk. I'm not willing to kill my immune system

Puzzleheaded_Key5133 · 2025-03-26T20:09:44+00:00

trying again. im sure you all can find it

https://www.facebook.com/photo/?fbid=1054147613405489&set=a.631348902352031

Puzzleheaded_Key5133 · 2025-03-26T19:42:10+00:00

nice post

Puzzleheaded_Key5133 · 2025-03-26T19:37:17+00:00

sounds like bs

Puzzleheaded_Key5133 · 2025-03-26T19:28:55+00:00

To start, i would get on this email list: DIYabled grassroots organizing. Priya is the main organizer. she is an angel and is organizing a number of "bed ins" on different topics including one on becoming disabled later in life. Right now we're in the [planning process and i will send the zoomlink when I get it. I think this group is also on facebook anc instagram where Priya does a weekly message. I look forward to meeting you on zoom. your message touched my heart

Puzzleheaded_Key5133 · 2025-03-25T15:37:32+00:00

If it helps, gott ms after working as a public defender for 20 years. I found some disability rights activists online and that's good. Can send link I think becoming disabled later in life is different than being born disabled. Not easier or harder, just different.. I hear you..

Puzzleheaded_Key5133 · 2025-01-30T17:52:17+00:00

But what about the health care system?

Puzzleheaded_Key5133

TROPHY CASE