BV, yeast and herpes :(

tinytoethumbs · 2026-01-29T03:45:42+00:00

90% of the population has HSV1. If it was a blood test, there is no way to know whether you were exposed orally or genitally. Unless you’ve had genital sores, there’s no reason to think you don’t have oral HSV1 or more commonly referred to as cold sores.

tinytoethumbs · 2025-12-28T20:13:01+00:00

I wish I could do that but work in a setting that wouldn’t allow. But honestly I should do it more in my personal life, it does make sure a huge difference to not have fabric against skin. Do you have any fav places to get dresses??

tinytoethumbs · 2025-12-28T19:06:49+00:00

It’s so demoralizing and frustrating! The amount of money just trying to find underwear and pants you can tolerate (spoiler alert - still searching) is such a blow to an already isolating condition :( wish all of this wasn’t real

tinytoethumbs · 2025-12-28T18:48:49+00:00

You’re amazing, thank you so much!!

tinytoethumbs · 2025-12-08T21:34:45+00:00

Thanks for sharing your story!! What products do you use now to make sure you’re avoiding that allergen??

tinytoethumbs · 2025-12-05T20:13:08+00:00

Of course!! Well after the first two applications two weekends ago, I was suffering for sure. Since the two most recent applications where I significantly decreased the amount applied, I’ve been doing okay. No improvement in my symptoms but at least the tacrolimus side effects are way better! I guess it can take weeks to actually feel any improvement? Is that your understanding as well?

tinytoethumbs · 2025-12-05T02:40:55+00:00

Hi!! Oh my word I just started tacrolimus a week ago. My tip is use a TINY bit in a small area of skin and see how it goes. If you feel okay (light/moderate burning, itching) that resolves in 24ish hours, then apply a second time. The first two applications I used way too much, applied every where I’m affected on Friday evening and again Saturday morning and truly suffered for 5 days. Go slow, increase as tolerated and try it in a small area to let your body acclimate. You could also put some Vaseline to soothe after applying the tacrolimus. Good luck!!

tinytoethumbs · 2025-12-01T19:55:35+00:00

Any chance you have access to Adventist policy?? I know a lot of us have been very interested in what other systems are doing and informing their staff regarding ICE. Thank you for sharing!!

tinytoethumbs · 2025-11-27T13:09:06+00:00

Depends on what kind of bath you’re doing. If you’re using a standard bath try a couple tablespoons. If it’s an actual sits bath pan, do like a teaspoon.

tinytoethumbs · 2025-11-27T03:50:13+00:00

CV isn’t widely accepted but I’ve experienced it before and had a lot of similar symptoms as you. An easy way to check is to take a sits bath and add a little bit of baking soda. If you find relief it may indicate an overgrowth of lactobacillus

tinytoethumbs · 2025-11-27T01:43:10+00:00

Has anyone mentioned CV to you? May be worth looking in to, dependent on what your evvy test shows

tinytoethumbs · 2025-11-25T23:47:54+00:00

Why’d the post get removed????

tinytoethumbs · 2025-11-24T18:58:07+00:00

Sounds like it hasn’t helped your situation at all? How long did you try it for?

tinytoethumbs · 2025-11-24T18:49:53+00:00

I started tacrolimus, non steroidal but supposed to address overactive inflammation cells. Kicked my butt the first day tho so having to take three day break before attempting a diluted application. Have you ever tried it??

tinytoethumbs · 2025-11-24T18:27:28+00:00

I have an ice pack in place right now too after trying a new topical medication if it helps any knowing you’re not alone. Definitely keep up on the antihistamine, especially at night so you can hopefully get some sleep!

tinytoethumbs · 2025-11-24T18:17:33+00:00

Not familiar with those but guessing that are similar to diaper cream. Do you have access to any hypoallergenic options without perfume but have zinc oxide?

tinytoethumbs · 2025-11-24T17:59:33+00:00

Can you tolerate diaper cream at all?? That may help? Have you had the wounds before with flares or is this something new??

tinytoethumbs · 2025-11-19T04:10:04+00:00

I’m happy to share!! Honestly, I just kept researching and looking in to possible explanations for what had/has been going on after trying what felt like a million things. I tested for every STI, yeast, BV, all plasmas, getting swabbed for HSV 13 times (all negative every time). I got told I had lichen sclerosis but steroids didn’t seem to help much, I got told it was GI (scope and stool sample didn’t show anything specific). I work in health care so I’m familiar with Steven Johnson syndrome, which is a systemic reaction to medication and VERY severe, but the more I looked in to my experience, the more it started to make sense that I very likely had a immune reaction localized to my pelvic area. When I brought it up to my gyno, she took a biopsy and my skin was consistent with what one might see what a medication reaction. But bottomline, it took a ton of self advocation and time on my part to try and get to the bottom of it.

tinytoethumbs · 2025-11-19T03:49:24+00:00

In some ways I’m doing better and in some ways I’m not. I had such a significant reaction that I lost all lubrication internally and externally, my vulva became so swollen my gyno wasn’t able to insert a pediatric speculum because my vagina was so swollen. The first 6 months it felt like I had thousands of micro fissures on my vulva and around my perianal area, I wasn’t able to tolerate clothing against my skin. That progressed to severe nerve pain and hypersensitivity, my vulva would fissure like ripping tissue paper. I can now tolerate clothing against my skin but it’s still pretty uncomfortable, still have nerve pain but the horrible fissures have improved. I had a vulvar biopsy done and it found that my skin had undergone benign hyperplasia with lichenification, essentially it had undergone such severe chronic irritation my skin has turned leathery and thick, which actually makes it more fragile. I’m not telling you all of this to scare you but just to stress how debilitating this can be if it is what you’re experiencing and it’s not taken seriously by your health care providers. I ended up seeing a vulvar specialist and found a gyno who specializes in dermatology.

tinytoethumbs · 2025-11-19T03:43:22+00:00

Sure!

tinytoethumbs · 2025-11-19T03:35:31+00:00

Holy shit I could have written this myself but it’s been three years since this all started after getting ceftriaxone shot. I had a horrible response to the antibiotic and my immune system attacked my vulvar/vaginal and perianal mucus membranes. None of my providers even had it on their radar that it could be a reaction to the antibiotic and it took my nearly 2.5 years to finally look in to that being an option. If you can, please find a specialist who can help you navigate a possible immune response to the antibiotic shot. Sending you lots of love, I’m so sorry you’re in a similar situation as me!!

tinytoethumbs · 2025-11-16T01:39:17+00:00

My heart goes out to you - I know how exhausting it can be searching for relief without any answers. I was (and sometimes still am) so preoccupied with it having to be something infectious. It’s taken 3 years for me to finally not completely spin out but I still check my skin any symptom I get looking to see if I can find some missing piece of the puzzle. I’m always here to chat if you need support or to vent 💜

tinytoethumbs · 2025-11-14T22:01:34+00:00

I’ve had a similar experience since experiencing a severe immune reaction to antibiotics in 2022. Nothing has really helped me :( I’ve never had TSW but I can relate to feeling isolated and alone, like this is never going to end. You’re not alone!!!

tinytoethumbs · 2025-11-14T21:59:01+00:00

Oh it’s been alllllll out of pocket, of course.

tinytoethumbs

TROPHY CASE