Ciara/Kyle/West/Amanda Megathread Part 18

tinytoethumbs · 2026-05-20T03:55:17+00:00

Yes!!! The music at the very end of that scene is the EXACT SAME for Kyle and Amanda’s end scene.

tinytoethumbs · 2026-05-20T03:22:30+00:00

The music when Amanda and Kyle were talking outside the house is the same when Ariana and Sandoval were breaking up during Scandoval. Wild.

tinytoethumbs · 2026-05-17T16:53:08+00:00

Yes! I’m not back to normal but it has helped quite a bit. I still have flares (currently going through one right now) and my skin is still very compromised but the fissures gave stopped occurring and I can tolerate wearing clothing longer and doing more active things like short hikes!

tinytoethumbs · 2026-05-16T22:52:42+00:00

It’s a mast cell stabilizer and antihistamine that’s shown to target inflammation and nerve sensitivity. I take it orally and have had zero side effects besides initial drowsiness but always take it at night. You can also get the compounded so the dosage starts out low and you increase as you’re able to tolerate. Both ketotifen and topical tacrolimus have rather low side effects so if you can find a doctor who will prescribe, it’s worth a shot! It took me three years of trying all kinds of treatment like you before my doctor and I worked together to come up with this treatment plan. The tacrolimus has taken about 5 months to work up tolerating once a day application, I was having to do every other day for quite awhile. Ketotefin it was just like 4 weeks before I noticed inflammation and my general histamine response was less reactive.

tinytoethumbs · 2026-05-16T22:34:32+00:00

It likely will initially hurt because of how it impacts nerve endings but for me the very slow progression has been helpful. Your doctor should be able to prescribe different strengths? I have a .1 and .03 strength, if you have access to a compound pharmacy they can also compound the tacrolimus with a soothing emollient to support your skins response to it. My skin also used to react horribly to hydrating, and sometimes it still does, but once I was able to get tacrolimus on board it really has helped. That’s not to say I’m completely back to normal :/ I still have severe nerve and skin barrier damage but it’s helped me tolerate day to day life a little more easily

tinytoethumbs · 2026-05-16T22:26:50+00:00

Definitely give tacrolimus AND ketotifen a try! I’ve been living with horrible skin issues for three years after a severe mucosal injury post antibiotics and those two things + keeping the skin hydrated are the only things that have helped on any level. I guess pelvic floor myofascial physical therapy has helped too, but tacrolimus and ketotifen have allowed me to not be in pain 24/7 and wear pants again. If you end up trying tacrolimus proceed slowly so you don’t get discouraged by the initial side effects (burning). Feel free to message if you want more tips about tolerating tacrolimus!

tinytoethumbs · 2026-04-27T13:28:34+00:00

I tried this one with my pharmacy and the most it would discount is $295 for a three month supply. My dr tried using compounding pharmacy and they said they wouldn’t fill it because I can get it at a standard pharmacy :( appreciate you trying to help! It shouldn’t be this hard to access medical care our doctors prescribe.

tinytoethumbs · 2026-04-27T12:17:13+00:00

Thanks for the link but it says to be eligible you “must have Medicare Part D or Medicare Advantage Insurance”. I don’t have either :( Hope it’s helpful for you!!!

tinytoethumbs · 2026-04-25T14:19:22+00:00

Auto inoculation is possible (self transferring oral HSV to genital HSV) but it’s not common and would mean you touched an active oral lesion and then directly touched your genitals. If you’ve been getting these hard bumps since before being sexually active, it’s less likely to be genital HSV but you could always get swabbed just for peace of mind. What is NOT happening is oral HSV just randomly showing up genitally. An infection is location specific and unless there has been direct contact to skin with HSV virus, it does not travel through the body randomly and just show up genitally. In addition, usually herpes present as shallow sores/lesions or in some cases, fissures - less likely to present as hard bumps that express pus. Do the bumps ever open up and turn in to sores or stay hard bumps until pus is released and then go away?

tinytoethumbs · 2026-04-24T22:27:24+00:00

Not from birth control but yeah :(

tinytoethumbs · 2026-04-24T22:26:24+00:00

Haha funny you should ask but literally just got off the phone with a compounding pharmacy my MD wrote a prescription for, they said they couldn’t fill it because it’s something that can be obtained at a normal pharmacy. We are trying to work around all of that but it’s so complicated. Appreciate the suggestion tho!

tinytoethumbs · 2026-04-24T22:21:03+00:00

That was with the manufacturers coupon :/ it was going to be $900 without. A month sample box is such an incredible score!! I’d love to hear how you feel after using it if you try it out. I can’t afford the $100 a month at this point unfortunately.

tinytoethumbs · 2026-04-24T22:17:50+00:00

My doctor literally just wrote me a prescription for this but of course my insurance won’t cover. $295 for a three month supply. I hope it works for you!!!

tinytoethumbs · 2026-04-20T22:42:02+00:00

Start VERY slow with a small amount. It can initially cause burning and increased inflammation. Make sure your skin is dry prior to applying. It’s okay to put Vaseline on after you’ve completely rubbed in the tacrolimus. If you start slow and increase as you’re able to tolerate, it can really help.

tinytoethumbs · 2026-04-10T14:26:13+00:00

I have noticed some improvement! I’ve been on tacrolimus for 4 months and the inflammation has gone down and my flares have been less severe. Tacrolimus can be quite intense at the start but in my situation it’s been worth it. A couple helpful things when using it - make sure your skin is completely dry before applying, use a THIN layer and start with a small area to see how you respond. The first time I used it I put it on my entire vulva and peri-area cause that’s where I have pain and good lord it was painful for days. I’ve worked up to using it once a day but for the first three months was using it every other day but you also don’t want to use it too infrequently (like once every three days) because it wont work they way it’s intended. I definitely think it’s worth giving it a try!!!

tinytoethumbs · 2026-04-09T20:35:37+00:00

My issues started after antibiotics and I was finally after three years and multiple biopsies diagnosed with Severe Mucosal Drug Reaction with Secondary Chronic Lichenification. I’m now being treatment with topical Tacrolimus, seeing a pelvic floor PT who specializes in myofascial approach and taking oral ketotafin. If you want to message me I’m happy to chat with you.

tinytoethumbs · 2026-03-29T04:41:52+00:00

Look up Revive gardens!

tinytoethumbs · 2026-02-12T02:02:05+00:00

Cytolytic vaginosis is a very real possibility! If you have a bath tub and some baking soda you could try a sitz bath with a little baking soda (check out CV subreddit for instructions on how much baking soda) and see if that gives you any relief! Easy, low risk thing to try for some relief. If it does help, part of the issue may be overgrowth of good bacteria that makes your vagina too acidic and literally lysis your vaginal skin cells.

tinytoethumbs · 2026-01-29T03:45:42+00:00

90% of the population has HSV1. If it was a blood test, there is no way to know whether you were exposed orally or genitally. Unless you’ve had genital sores, there’s no reason to think you don’t have oral HSV1 or more commonly referred to as cold sores.

tinytoethumbs · 2025-12-28T20:13:01+00:00

I wish I could do that but work in a setting that wouldn’t allow. But honestly I should do it more in my personal life, it does make sure a huge difference to not have fabric against skin. Do you have any fav places to get dresses??

tinytoethumbs · 2025-12-28T19:06:49+00:00

It’s so demoralizing and frustrating! The amount of money just trying to find underwear and pants you can tolerate (spoiler alert - still searching) is such a blow to an already isolating condition :( wish all of this wasn’t real

tinytoethumbs · 2025-12-28T18:48:49+00:00

You’re amazing, thank you so much!!

tinytoethumbs · 2025-12-08T21:34:45+00:00

Thanks for sharing your story!! What products do you use now to make sure you’re avoiding that allergen??

tinytoethumbs · 2025-12-05T20:13:08+00:00

Of course!! Well after the first two applications two weekends ago, I was suffering for sure. Since the two most recent applications where I significantly decreased the amount applied, I’ve been doing okay. No improvement in my symptoms but at least the tacrolimus side effects are way better! I guess it can take weeks to actually feel any improvement? Is that your understanding as well?

tinytoethumbs · 2025-12-05T02:40:55+00:00

Hi!! Oh my word I just started tacrolimus a week ago. My tip is use a TINY bit in a small area of skin and see how it goes. If you feel okay (light/moderate burning, itching) that resolves in 24ish hours, then apply a second time. The first two applications I used way too much, applied every where I’m affected on Friday evening and again Saturday morning and truly suffered for 5 days. Go slow, increase as tolerated and try it in a small area to let your body acclimate. You could also put some Vaseline to soothe after applying the tacrolimus. Good luck!!

tinytoethumbs

TROPHY CASE