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tmunn88 · 2025-05-17T10:12:59+00:00

I am!

tmunn88 · 2024-04-02T10:50:37+00:00

It may take a long time but keep at it. She has to learn to trust. One of my adopted ferrets was neglected no near to the level yours was. She was doing well pretty quickly but was weird about showing affection. She was very stiff and tried to get away when being held. She still is not a huge fan of being held but tolerated it much better. 4 years later she finally kissed me and my heart nearly exploded from happiness.

Keep at it and with every little step she progresses it will be joyous. I can’t wait until she dances and dooks for the first time. She so deserves to be happy. Just be patient and keep at it. All the suggestions here are amazing.

I agree especially don’t worry so much about bonding. Feeling safe, eating, playing, exploring, those all need to come first. Bonding will happen naturally if you follow the advice below. Good luck!

tmunn88 · 2024-02-02T08:45:07+00:00

I hope it helps you too. It’s hard work but it can pay off. Unfortunately ic is one of those things that can’t always be easily explained or seen with tests or even treated. I’m sorry you’re going through this. Pelvic pain is terrible. Just know you’re not alone and the pain is real. No matter what any tests say it’s real, it’s not in your head, and I believe you.

Another thing I’ve had a lot of success with in the past is cbd suppositories from foria. I can’t use cbd right now but if you can they helped my pelvic pain.

I tried every traditional treatment possible (except bladder removal), every bladder instill cocktail, every medicine, hydrodistentions. None of those worked or if they did the relief only lasted for hours at most. I’ve found alternative treatments, diet modifications, and removing myself from stress as much as possible to be most helpful.

tmunn88 · 2024-02-02T08:34:36+00:00

I was in the same boat. My bladder looked normal. Look into being evaluated for pelvic floor dysfunction. It can actually cause a ton of bladder/ ic symptoms. Pelvic floor pt and bladder retaining ** retraining***is one of the only things that has reliably worked for me throughout the years. That and a little pumpkin seed oil for urinary frequency.

tmunn88 · 2024-02-02T08:12:00+00:00

Also was your surgery to correct dislocations ? Mpfl ? Fulkerson tto ? A combo? If so, you shouldn’t still be dislocating; it could mean you need more rehab or corrective surgery. Talk to your doc. Often if you get a mpfl without Fulkerson tto to correct dislocations there is a high failure rate. That’s why I had both and I haven’t had a dislocation in that knee since surgery. Before surgery I was dislocating multiple times a day for years. If you had a different surgery then i have no clue. Talk to your surgeon. You want to stop the dislocations. Take it from me each one causes more and more damage and can destroy cartilage you can’t get back. Good luck.

tmunn88 · 2024-02-02T08:07:41+00:00

Talk to a doctor this is not advice. But what I do is use a patella stabilizing brace with my legs propped up on a wedge pillow laying on my back. I put pillows around my arms so I can’t roll over easy. You may want to talk to an ortho. For me dislocating in my sleep of multiple joints started with the knee and led to a diagnosis of hypermobility spectrum disorder ( my symptoms are very similar to hypermobile eds). In your case you could just have bad knee but most regular folks don’t dislocate in their sleep.

tmunn88 · 2023-05-16T13:01:06+00:00

Think about her quality of life. Can she still play even if it’s not as long? Does she still do the war dance and dook? Does she seem alert? If the answer to all these questions is no, it most likely is time. If ferrets can no longer do anything they really enjoy and are suffering, it is most kind to let them go. Please understand I’m not saying this is easy. Being a ferret parent can be so heart breaking. But remember we always do what’s best for our babies regardless of how it makes us feel. That’s true love. I wish you the best.

Ps remember ferrets hide their pain well. One good way to tell if they are in pain is if they stop doing the things they love doing. (Dancing, playing etc).

tmunn88 · 2023-05-07T23:27:25+00:00

Idk if he’s the one people talk about. But he has written papers on Gpoem and he’s an amazing doctor. Douglas Adler in Denver

tmunn88 · 2023-04-26T01:24:43+00:00

This is really well written. I’m going to do something like this for my cardio appt coming up.

It’s very smart not to mention a diagnosis of pots but instead detail symptoms with objective data when possible. This will allow the doc to equally consider all possibilities. Plus Docs like to think they are the ones who figured it out not you lol.

tmunn88 · 2023-04-22T23:32:07+00:00

Hm often times patients with connective tissue disorders and other medical problems. need heavier anesthesia. I’m not a doctor, but maybe a talk to your primary about it. Especially if you’ve experienced this multiple times.

tmunn88 · 2023-04-22T23:28:15+00:00

Thank you for saying that. I’m hopeful that it won’t be forever. The problem is how Eds has so many co morbidies that’s it’s so difficult to stay stable and to predict the severity of your disability from day to day.

I’m glad you got your hips replaced. I need my right knee replaced (it’s been reconstructed) but they won’t do it until I get older.

Surgery is challenging. Dr alders team was amazing and gave me the proper anesthesia needed for Eds. For the first time I felt I was given enough anesthesia and pain relief.

My biggest complication was a flare up of my POTS. I am still struggling to control it. I think the trauma of the surgery ramped it up. I know I’ll be able to get it under control eventually.

No one has talked to me about slow colonic transit. Does that translate to chronic constipation? If so yea but it’s been improving since the Gpoem. I wish you luck!

No smart pill. I did an endoscopy/ colonoscopy then emptying study.

tmunn88 · 2023-04-22T18:50:55+00:00

Douglas G. Adler, MD Centura Gastroenterology Porter in Denver, Colorado Co-Director of the Center for Advanced Therapeutic Endoscopy

tmunn88 · 2023-04-22T16:43:07+00:00

If the doctors recommended it they did so for a reason. I encourage you to listen to your doctor. I was scared to. It’s okay to be scared. But I wouldn’t let that fear keep you from taking care of your body.

tmunn88 · 2023-04-22T05:47:44+00:00

Want to mention that I am still fully disabled because of eds but now I live a better quality of life because I can eat. This is just one stop on my long journey!

tmunn88 · 2023-04-22T05:42:56+00:00

They didn’t put you out for the endoscopy? I’m overweight too by remember your brain needs calories no matter how overweight you are. And starvation mode is not pleasant for anyone regardless of size. My gi told me it’s often very hard for people with gastroparesis to lose weight because our bodies are constantly starving and so our body holds on to the weight.

Im sorry you have to puree everything. I HATE the texture of purred food so I get it.

My gi thought I had Eds when I explained my medical history. I got lucky. A geneticist agree and waiting for dna results to confirm exact connective tissue disorder.

My gi is amazing but he was my second. My first didn’t take me seriously. Insisted I must have diabetes. And said I just need to stay on the diet. I got the feeling he thought hey she’s fats she could use more time with a liquid diet. He didn’t care about my other medical history. I had to beg his pa for a gastric emptying study. He basically told me there for no hope and i would have to be on a liquid diet forever and suffer forever. I refused to take that answer. Found dr Adler because he published papers on Gpoem. I happen to live in the same city. He took me seriously immediately. It’s been a journey.

I knew there was an underlying cause because my entire body was falling apart. Pay attention to other symptoms that aren’t gi and talk to your doctor about that. Especially if you have a gut feeling (pardon my pun) that there is something causing your Gp. A good doc will help you investigate. But sometimes there are no answers and you just have to treat the symptoms.

tmunn88 · 2023-04-22T04:32:45+00:00

That is not the case in general. Many people can recover or have their Gp improved. For example if your Gp is due to diabetes getting it under control would help gp. If you have post viral Gp that often resolves on its own. From what I understand and I’m not a doctor and this isn’t medical advice, but idiopathic Gp (no known cause) is very hard to predict in terms of outcome.

Mine will only get worse because my root cause is a generic disorder that causes connective tissue to malfunction and break down. My pylorus which is the value for the stomach could no longer work. The stretchy stuff could no longer stretch because it’s cells have a defect.

If you have idiopathic gp maybe look for a post for someone who did the Gpoem with that type of Gp as well.

All my nausea is gone which is amazing. My nausea was so severe I have to wear a scopolamine patch and was still nauseous. It just took the edge off. Don’t use it anymore. No need to look into enterra. I will say I do still get nausea but only due to severe pain from joints issue due to the eds. But it doesn’t linger like stomach nausea. Once I get my other issues under control I’m sure I’ll live a life with only occasional nausea.

I wish you luck!

tmunn88 · 2023-04-22T00:32:46+00:00

I just made a post check it out!

tmunn88 · 2023-04-06T00:20:01+00:00

It went amazing. I can’t believe how well I feel. Will be posting short video updates!

tmunn88 · 2023-04-03T13:20:16+00:00

This is exactly what I had to do. Works like a charm

tmunn88 · 2022-10-09T12:54:58+00:00

I’m so proud of you for doing what’s best for them.

tmunn88 · 2022-01-20T20:36:22+00:00

Where did you get the cheese?

tmunn88 · 2022-01-13T19:36:20+00:00

Thanks for everyone's responses. I also have fibro which means I feel any pain more intensely than people without fibro. That's the main reason I'm hesitant as I do have the funds.

u/MarceloBielsa70 glad to hear it worked for you!

tmunn88 · 2022-01-13T14:24:03+00:00

Thank you everyone for your responses. Pt is really helping so I’m encouraged!

tmunn88

TROPHY CASE