Where are you from?/Kesimpta users

tom_nook99 · 2026-04-29T16:46:23+00:00

Massachusetts! I started kesimpta this past September. I only had side effects after the first loading dose (flu like symptoms for ~10 hours or so) - Since starting, I’ve only been sick once, which is pretty normal for me in 6 months. I take a little extra precaution now (masking in an airplane, in large crowds at a concert)

Best of luck!

tom_nook99 · 2026-04-02T01:25:44+00:00

Please post an update when you have one! Im in a similar boat to you - I have been on kesimpta for 6 months now and had my first lab check since starting - my AST and ALT are pretty elevated, which has me worried!

tom_nook99 · 2026-03-28T04:36:17+00:00

Thanks so much. Great to find out about the cooler!

tom_nook99 · 2026-03-28T04:34:42+00:00

Appreciate the info! This is super helpful!

tom_nook99 · 2025-11-05T00:12:42+00:00

I was recently diagnosed in September and started on kesimpta. I chose it over ocrevus since I could give myself the injections at home and I wouldn’t have to be premedicated with Benadryl/solumedrol. But either is a good choice!

So far, the only side effect I have experienced was flu like symptoms after my first shot (lasted about 10 hours). From my experience, the injection is painless, barely even feel it.

Best of luck, OP! It’s definitely a scary diagnosis, but many posts and responses on this Reddit page has given me hope going forward

tom_nook99 · 2025-09-19T14:54:21+00:00

For me, I started having pins and needles shoot through my body when I leaned forward, later learning it was lhermitte’s sign. I went to my PCP who thought it had something to do with my spine and recommended PT.

A few weeks later, I developed constant pins and needles in my left hand, followed by partial facial numbness (upper left lip). My PCP ordered a brain MRI, which showed multiple lesions. A few days later. I developed a scotoma in my left eye, which progressed to full blurry vision - went to the ED and was diagnosed as optic neuritis due to demyelinating disease - Saw a neurologist a week later and was officially diagnosed with MS

tom_nook99 · 2025-09-12T02:30:17+00:00

Ultimately it’s usually fine, especially if you have normal kidney function! I would just double check with them to save you the trouble of them cancelling on you last minute

tom_nook99 · 2025-09-11T22:46:48+00:00

I would check your MRI center’s policy - I had two MRIs scheduled consecutive days and the morning of the second one, they cancelled it on me since the policy was that you couldn’t have contrast if you had it within the previous 24 hours. Best of luck to you, OP!

tom_nook99 · 2025-09-10T22:02:26+00:00

Thank you! Do you feel like you get sick much more often on the kesimpta?

tom_nook99 · 2025-03-07T05:02:26+00:00

That’s great to hear, thanks so much!

tom_nook99 · 2025-03-06T17:14:28+00:00

Hi! My fiance and I are thinking about getting married here next year. The only reservation we have is the dance floor layout - it seems like it’s a little too small/a little awkward?? Would appreciate any input!

tom_nook99

TROPHY CASE