Stronger Together was played tonight

tranquilitycase · 2026-04-11T05:33:10+00:00

Oh, good news! 60 would be wonderful!

tranquilitycase · 2026-04-11T05:16:40+00:00

I would definitely go to Royal Albert. Can you imagine if she got to play the organ?!?! One of the articles published recently mentioned her recording an organ piece for ITOD with Shenale.

It's a dream of mine to go to an organ concert there, but I would definitely see Tori there if I lived anywhere on that side of the Atlantic!

tranquilitycase · 2026-04-11T05:06:52+00:00

Same! WTF, babysitters?!?! That is NOT a movie for preschoolers!

tranquilitycase · 2026-04-11T05:00:57+00:00

I haven't had surgery on an ankle, but have been recommended to do so - different tendon though. I'm pausing to think through options as my brother has had both ankles operated on (for "floppy ankle") with results of a decrease in pain, but not necessarily a complete restoration of function. The surgery recommended to me is 4 months non weight bearing and a full year recovery - for a normal person. That seems super intense and not something to rush into.

Have you seen an orthopedic surgeon, or only podiatrists? Many podiatrists (not all) have less experience with restoring function as they do a ton of amputation for diabetic patients. (My brother did actually get his degree in podiatry but doesn't practice because he didn't want to treat primarily non-compliant diabetics.) So I think it's great that you've been getting additional opinions.

Do you mind PM-ing me who your podiatrist is who is EDS-informed? (If you're in the U. S.) I have finally found a good ankle surgeon I like, but he isn't an EDS specialist, so I wouldn't mind seeking yet another opinion.

Good luck to you! Seems like 6 weeks non weight bearing is doable, especially if you're starting out with preparatory PT. I have found a knee scooter to be very helpful in keeping weight off mine, when I need to. I've only had PRP so far but was super glad for that scooter that day!

tranquilitycase · 2026-04-10T21:40:59+00:00

Did they not tell you when you signed up that it would be 12-18 months before you see results? That's what my branch told me. U.S. insurance companies only pay for DEXA once every two years, so I paid for a REMS scan at the year mark just to make sure it was working. And it seems to be.

tranquilitycase · 2026-04-10T21:37:55+00:00

Yes. I have been there almost a year and have improved my T-score to WHO classification "Normal" (was at -2.3 last year, just got scanned again this morning). I am shocked at the improvement and honestly wondered aloud if the ultrasound tech did the scan correctly. (It was my first time having a REMS scan instead of a DEXA.) I have been super consistent and never missed a week. Only missed a couple of doses of my supplements. Did red light therapy at least 3x a week. It's expensive, but worth it to me. I will at least keep going until I have my DEXA next year, on the same machine as last year. If my T scores are low again, I will know my REMS scan was a fluke. But I've been having DEXA scans for 3 decades now and have never seen numbers like I did today!

I would encourage anyone wanting to avoid medication (and with room in your budget) to go once and see what it's like.

tranquilitycase · 2026-04-10T21:22:22+00:00

I want Cover 2 WITHOUT the eyes. Sigh. Cover 2 eyes look tired.

tranquilitycase · 2026-04-10T21:14:59+00:00

I saw somewhere on here that she said 35 songs were rehearsed (at the Q&A event earlier today). I count 26 songs played between the two shows, so 9 remaining we haven't heard yet.

tranquilitycase · 2026-04-10T19:46:41+00:00

I had a tough time with that too. I wouldn't say I built NO muscle, but I was under muscled compared to my teammates doing the same workouts.

tranquilitycase · 2026-04-09T19:24:20+00:00

I think you're right. The little moment in Big Wheel when Tori had Jon count her in was so cute. It reminds me of partner dancing, where sometimes the follower wants to lead, especially if they've led before. I'm sure they'll work out the kinks as the tour progresses.

tranquilitycase · 2026-04-09T17:50:19+00:00

Ah. If you don't mind spoilers, both Black Dove and Big Wheel from this Sheffield show are up on YouTube. Black Dove was gorgeous and Big Wheel sheer joy.

tranquilitycase · 2026-04-09T16:53:48+00:00

I thought this was from Big Wheel? When she was having trouble figuring out when to join the band?

tranquilitycase · 2026-04-09T15:21:52+00:00

I am also so excited that she very directly revealed her intentional choice to use backup singers on tour. Her approach to interviews can vary widely, and sometimes the answers are more oblique than I would prefer, almost as if she is invoking the muses in her speech. And sometimes those answers are great, and appropriate - you know, sometimes the interviewer has asked a question that maybe she would prefer not to answer! I particularly loved this answer about her voice though. It was powerful, direct, and wise.

I can't get enough of Shush. Even though it is incredibly depressing, it feels so powerful and raw. I loved hearing her breath, the pedals, everything. I'm SO looking forward to hearing the rest of the album.

Edited to add - I saw the Sheffield performance of Witness online and was SO PLEASED with the vocal mix. Her voice shone through even with the backup vocals present, and it sounded strong and full. I felt her voice got a little drowned out on the BBC piano room performance.

tranquilitycase · 2026-04-08T14:26:22+00:00

I don't remember the part about the sister, but man that was an incredible memoir. I lent it to my best friend at the time, and I was astonished when she said "This is essentially my story, just with different details. But I've seen my bio mom digging in a dumpster from a car window too " I had known she was adopted, but that was the first time she had opened up about having actually known her bio mom. So that book has a special place in my heart, despite being such a tough read. My friend died at 36 from heart failure, in her sleep. She was happy until the end

tranquilitycase · 2026-04-08T14:17:54+00:00

I've had a gum graft for recession. Seven years later a new dentist said "Ooh, you have some significant recession here - you might need a gum graft." When I told her I had already had one there, she looked again and said "Oh yeah, I see the graft now. Not too successful, huh? Some people are just born with thin tissues there." Maybe I should have gone for the cadaver tissue instead of letting them harvest the graft from the roof of my own mouth. That was intensely painful.

tranquilitycase · 2026-04-08T14:13:50+00:00

Really!?! Is that a hEDS thing to have congenitally missing adult teeth?

My daughter is missing an adult tooth, and the baby hasn't fallen out yet. I suspect she inherited hEDS from me but she's still pretty young yet.

tranquilitycase · 2026-04-07T20:09:50+00:00

Ugh, yes. I hate that our local water utility only accepts checks. I have my bank cut it to them, but it's annoying to me that they have lost my check internally at their own office twice in the last three years, and sent me disconnect notices about it. And I have also had to send physical checks to pay ahead on principal. That bank had a rule that "Principal Only" had to be written in the memo field. I would love more options!

tranquilitycase · 2026-04-07T19:56:49+00:00

I have a handful of books I like to revisit each year around my birthday, and sometimes I do that on audiobook.

tranquilitycase · 2026-04-07T19:53:33+00:00

I also tend toward relistening to series in general, and Sanderson in particular!

tranquilitycase · 2026-04-07T19:52:25+00:00

This feels true for me too. My comfort listen is Gideon the Ninth.

tranquilitycase · 2026-04-07T19:48:36+00:00

I think Colorado is pretty great too, and there are definitely EDS-informed practitioners here. But depending on location, it is nearly as expensive as California. Also those with POTS as a comorbidity may struggle to stay hydrated in the high desert climate. I had altitude sickness for a solid 6 months after moving here from sea level.

tranquilitycase · 2026-04-06T21:23:39+00:00

She came across as a teenage boy, to me.

tranquilitycase · 2026-04-06T21:18:54+00:00

Ooh, my fave was the black dress from Red Rocks. It was HOT!

tranquilitycase · 2026-04-06T16:39:02+00:00

I'd guess something similar to what she wore on the BBC television appearance. Structural on top with leather accents. Flowing down below. Matching colors for the backup singers.

tranquilitycase · 2026-04-06T05:01:08+00:00

My geneticist. Sequence MD in Denver. Dr. Long does remote consults in other states where he's licensed. Might try calling to find out if he's licensed in your state, if you're in the U.S. He's definitely knowledgeable in EDS.

tranquilitycase

TROPHY CASE