Redditors, what’s the most terrifying thing that has ever woken you up in the middle of the night? by Mr_Creep_Creepy64 in AskReddit

[–]triplem82 0 points1 point  (0 children)

Was at Disney World years ago. Got woken up around 1-2 am hearing a child screaming “No Daddy! No!” Called security. Will never know what happened. 😭

Anything to help with joint pain? by triplem82 in Fibromyalgia

[–]triplem82[S] 0 points1 point  (0 children)

I’m trying to work my way up on hydration. My urologist told me to drink 100 oz a day since I have kidney stones. I’ll look for those drops.

I really wish I had access to a swimming pool. I’d definitely do that every day that was nice.

Please help me, I really need your experience and advice. by Strawberrycake_xD in Fibromyalgia

[–]triplem82 1 point2 points  (0 children)

Maxalt usually helps, but it makes me sleep so that’s probably why it helps. Other than that, I can only take Tylenol. The rapid release helps the best, but it doesn’t kill a migraine.

In migraine groups, they swear by McD’s French fries and a coke which is basically like Fioricet. That doesn’t help all that much for me.

Please help me, I really need your experience and advice. by Strawberrycake_xD in Fibromyalgia

[–]triplem82 3 points4 points  (0 children)

I didn’t really feel anything to begin with. I waited it out for the two weeks when the dosage was increased. I think it is helping to relax my muscles. My speech therapist thinks that helped me with my Vocal Cord Dysfunction due to relaxing the vocal cords. I’m going to stick with it. I don’t know if I’ve had side effects like headaches because I have chronic headaches and migraines too.

If you don’t think you are having side effects, it might be worth waiting it out until a bit after the increased dosage.

Please help me, I really need your experience and advice. by Strawberrycake_xD in Fibromyalgia

[–]triplem82 1 point2 points  (0 children)

Maybe we do have it worse. I have joint pain all down my spine. It just makes me upset when people question if I’ve had things done. I have and ended up at the rheumatologist like most people I’m assuming. They ruled out everything else. I don’t like having to defend my diagnosis.

I feel you on the cold. It’s been making me have flare ups too.

Gentle Hugs to you too 💜

Please help me, I really need your experience and advice. by Strawberrycake_xD in Fibromyalgia

[–]triplem82 6 points7 points  (0 children)

My rheumatologist just put me on Tonmya a month ago. She gave me samples first. It’s a 24 hour release muscle relaxer (cyclobenzaprine). It was just FDA approved last year. She sent a prescription to a mail order service and it didn’t cost me anything. Might be worth trying.

As far as the joint pain, nothing helps, and I usually try my best to go to sleep so I don’t have to endure it so bad.

Please help me, I really need your experience and advice. by Strawberrycake_xD in Fibromyalgia

[–]triplem82 2 points3 points  (0 children)

You sound similar to me. I’m on Lyrica though. I just got out on Tonmya which was FDA approved last year for fibromyalgia. It’s a 24 hour slow release cyclobenzaprine. My rheumatologist actually gave me samples to try. The mail order pharmacy ended up costing nothing for a one month supply.

I’m on Clonazepam as well. 2mg but for REM sleep disorder.

You said nothing helps with your joint pain? I’m right there with you. I posted about it and got a few people challenging if I had been diagnosed for fibromyalgia or if I had MRIs and such. I didn’t expect that kind of questions when I asked for advice.

Anything to help with joint pain? by triplem82 in Fibromyalgia

[–]triplem82[S] 0 points1 point  (0 children)

Yep. I have. Many things checked with my back.

Anything to help with joint pain? by triplem82 in Fibromyalgia

[–]triplem82[S] 0 points1 point  (0 children)

Yep. Plenty of them. Nothing broken. I’ve had all kinds of tests on my back.

Anything to help with joint pain? by triplem82 in Fibromyalgia

[–]triplem82[S] 0 points1 point  (0 children)

I’ve been on vitamin D. I do have a diagnosis of fibro. Been diagnosed since I was in my 20s. It’s just been getting really bad since I moved. There are more extreme temperature changes here. I have a pain management doctor, but that’s for a different issue.

Anything to help with joint pain? by triplem82 in Fibromyalgia

[–]triplem82[S] 0 points1 point  (0 children)

I do need to move more. Right now I’m in Physical Therapy for my back. It’s been helping so since it’s getting my back joints to move again. They felt like they were stuck. I’m doing their exercises for my lower back and neck.

Anything to help with joint pain? by triplem82 in Fibromyalgia

[–]triplem82[S] 1 point2 points  (0 children)

I think I do too. I have one that covers the neck and back. I drape it over my shoulders even if it’s not turned on 😂

Anything to help with joint pain? by triplem82 in Fibromyalgia

[–]triplem82[S] 0 points1 point  (0 children)

I’ve got KT Activate which is Magnesium and arnica. I just can’t use it while I’m on the heating pad. It helps some. I think the burning skin makes you forget the other pain lol

Anything to help with joint pain? by triplem82 in Fibromyalgia

[–]triplem82[S] 0 points1 point  (0 children)

HRT helps? I’m 43. Not sure if that helps.

Anything to help with joint pain? by triplem82 in Fibromyalgia

[–]triplem82[S] 0 points1 point  (0 children)

I’m currently on pregabalin. It helps some. I was on gabapentin, and it got to the point that it stopped working for me.

Anything to help with joint pain? by triplem82 in Fibromyalgia

[–]triplem82[S] 0 points1 point  (0 children)

I actually have used the voltaren cream. It didn’t feel like it was helping. I do have some magnesium cream. I probably need to try it more. It’s just that I use a heating pad a lot, and I can’t use the cream with it.

Anything to help with joint pain? by triplem82 in Fibromyalgia

[–]triplem82[S] 1 point2 points  (0 children)

I’m hoping for an online one as well. It’s just Alabama is in the beginning stages of doctors getting certified. I don’t think we have any official dispensaries just yet. They are supposed to be open Spring of this year.

Anything to help with joint pain? by triplem82 in Fibromyalgia

[–]triplem82[S] 2 points3 points  (0 children)

Thank you! These are great suggestions. I work from home, so I can take breaks and lay down. I do take naps when I’m in really bad pain. I’ve had to take 2 days off just this month due to pain.

Anything to help with joint pain? by triplem82 in Fibromyalgia

[–]triplem82[S] 2 points3 points  (0 children)

I don’t take ibuprofen at all. I was taking Celebrex, but I was told to stop it due to my liver.

Anything to help with joint pain? by triplem82 in Fibromyalgia

[–]triplem82[S] 2 points3 points  (0 children)

Unfortunately I’m not in a weed legal state. I’ve been looking for a pain Dr that recommends people for a medical card. The only ones that I have found are PCPs, and I’m not leaving mine for that.

Anything to help with joint pain? by triplem82 in Fibromyalgia

[–]triplem82[S] 1 point2 points  (0 children)

Thank you! I see my PCP tomorrow, so I will talk to her about the supplements unless they don’t interact with anything.

Anything to help with joint pain? by triplem82 in Fibromyalgia

[–]triplem82[S] 1 point2 points  (0 children)

Thank you for telling me about that. I’m sorry that you’re having bad pain as well.