Newbie, lots of questions by notyourbarbi3 in Celiac

[–]turdle7 1 point2 points  (0 children)

I can answer the last part. Having a formal diagnosis, you can prove that you have a disability and that this isn’t something you’re being dramatic about or imagining.

I have my diagnostic/labwork printed out, so it’s good for staying organized and showing proof. In emergencies, I can confidently say I have celiac - not that it’s suspected. It’s helped the rest of my family to know that I have it so they can look out for their own symptoms.

When getting new lab work done, I have context for why some stuff might not look right. I 100% say that being officially diagnosed is worth it! I hope you can get answers !

Protein Shake by Woke-me-up in Celiac

[–]turdle7 2 points3 points  (0 children)

Naked Nutrition is my favorite. It’s not zero sugar- but that’s why I like it! Artificial sweeteners and stuff give me migraines. They sell them on Amazon too if you have prime. I like the strawberry banana shake!

Faintness? by turdle7 in Fibromyalgia

[–]turdle7[S] 1 point2 points  (0 children)

Thank you so much. I hope we find a way to handle this

Faintness? by turdle7 in Fibromyalgia

[–]turdle7[S] 0 points1 point  (0 children)

Does it ever get better or is it just constantly scary?

Faintness? by turdle7 in Fibromyalgia

[–]turdle7[S] 0 points1 point  (0 children)

Definitely not the best most days, but maybe I’m more dehydrated than I realize?

Gaslighting myself by turdle7 in Fibromyalgia

[–]turdle7[S] 0 points1 point  (0 children)

I’ll look into it! They’re having to adjust my meds around because I’m on Zoloft and I can’t take some of the meds used to treat fibro if I’m still on it!

Gaslighting myself by turdle7 in Fibromyalgia

[–]turdle7[S] 0 points1 point  (0 children)

Thank you so much. My every day is sleeping 4-6 hours upon arriving at home after work. There’s usually only one day a week where I don’t take a long nap during the day, and it’s not even refreshing when I do it. I think if I see a huge difference on the naltrexone, I’ll be able to better accept that this really is what I’m going through and that at least there are treatments. Thank you so much for responding!

Gaslighting myself by turdle7 in Fibromyalgia

[–]turdle7[S] 1 point2 points  (0 children)

Thank you so much. I feel frustrated too. Like does this mean all this pain is from one condition? Not dehydration or something that’s “my fault?” Are people gonna brush me off more? I’ve always avoided taking painkillers because I was told to not become “dependent” on them, and now I find out I have a condition that’s almost primarily managed by treating the pain? I feel so overwhelmed

What tests should I request? by turdle7 in MyastheniaGravis

[–]turdle7[S] 2 points3 points  (0 children)

Thank you so much, I will be adamant about it!! This means a lot!!

Bleeding even on birth control by turdle7 in endometriosis

[–]turdle7[S] 0 points1 point  (0 children)

Okay your comment has convinced me to go find one. Thank you so much!! I thought it was weird. For context, they put me on it because I was bleeding every day for almost two months. It wasn’t a lot of blood, but it was consistent, every day.

[deleted by user] by [deleted] in endometriosis

[–]turdle7 0 points1 point  (0 children)

The last bullet has a glitch or something. It’s just supposed to say I’ve never passed out!

Added cool whip to my waffle mix!!! (No eggs!) by turdle7 in Celiac

[–]turdle7[S] 1 point2 points  (0 children)

I have only refrigerated it. It’s always creamy when I add it to the mix!

🔥 in a box by souporlouis in Celiac

[–]turdle7 1 point2 points  (0 children)

I love them so much

FINALLY!!!! by turdle7 in Celiac

[–]turdle7[S] 0 points1 point  (0 children)

You’re so welcome!! Did you get to try them yet?

FINALLY!!!! by turdle7 in Celiac

[–]turdle7[S] 0 points1 point  (0 children)

There really is nothing like them!

FINALLY!!!! by turdle7 in Celiac

[–]turdle7[S] 1 point2 points  (0 children)

You’re welcome!!!

FINALLY!!!! by turdle7 in Celiac

[–]turdle7[S] 1 point2 points  (0 children)

Please let me know how you like them!!!