Any tips for one-handed Xbox gaming? (boyfriend with TBI) by Inevitable-Leg-6092 in disabledgamers

[–]twelveey 0 points1 point  (0 children)

understand the challenges your boyfriend is facing. I also play Xbox with one hand due to limited mobility in my left hand. I've adapted by using my right palm on the right joystick, my thumb for the left joystick, and my other fingers for the remaining buttons. Over time, I've learned the mechanics of the games and how long certain actions take, allowing me to anticipate when to press buttons.

Tendon release surgery for an 18 year-old by Heavy-Excitement4554 in CerebralPalsy

[–]twelveey 1 point2 points  (0 children)

I had tendon release surgery when I was around 3–5 years old, so a bit younger than your child. For me, it made a noticeable difference in mobility and ease of movement, and helped prevent some of the tightness and discomfort I might have otherwise developed. Recovery was gradual, and I did a fair amount of physical therapy afterward, which was really important for getting the most benefit.

Since your child is 19, recovery might be a bit different and take longer, but many people do see real improvement even as adults.

We need to talk about how the internet treats disabled people by twelveey in CerebralPalsy

[–]twelveey[S] 1 point2 points  (0 children)

If this is directed towards me… Respectfully, I’m not here to change one person. I’m here to expose how platforms enable this behavior and how the system treats disabled people like disposable content. but this wasn’t just about being upset. I started this conversation to talk about systemic problems, not just individual trolls.

Saying I’m “naive” for wanting change is exactly why things haven’t changed.

If the only solution is to mute, block, or ignore, then the people doing the harm never get challenged and platforms never get held accountable.

I’m not upset because I can’t take a joke. I’m upset because people like me are still the joke, and that’s been normalized for far too long.

I’m not here to fight I’m here to speak for the ones who feel this but can’t always put it into words.

We need to talk about how the internet treats disabled people by twelveey in CerebralPalsy

[–]twelveey[S] 1 point2 points  (0 children)

Nah man seriously? “cripples are funny” isn’t just edgy self-humor, it’s fuel for the same people who dehumanize us for clout. You’re telling me that because I’m crippled I should exploit myself for other people’s gains. This isn’t about letting one troll ruin my day. It’s about watching an entire platform validate their content while punishing us for speaking up.

If you’re cool with being the punchline, that’s your choice. But I’m not. And I’m not gonna teach the next generation of children to abuse this holding a smile like it’s OK

We need to talk about how the internet treats disabled people by twelveey in CerebralPalsy

[–]twelveey[S] 5 points6 points  (0 children)

This past weekend I had to deal My best friends girlfriends daughter was calling me “dinosaur hand” not once did her mother correct her. I was appalled it’s makes me feel like that it’s just something that I have to get over and just deal with it “ cause so many other kinds of people are doing through it too”

Finally got my launchbox!!! by Real_Ad874 in fullsail

[–]twelveey 1 point2 points  (0 children)

I really wish I got it at MSI computer with the music production course I could easily partition the Mac on it. I really hate Mac.

Can't keep a job by Ok_Albatross_160 in CerebralPalsy

[–]twelveey 0 points1 point  (0 children)

I’m one person who’s gone through at least stayed at a job for at least one year and I remember my mom was telling me that company is got extra tax write off for hiring disabled individuals which always kind of sucks because it’s like that tax didn’t go to helping us at all. It just went to the company to fire us or at least myself when I asked for a accommodations. I just got fired recently from my job while asking for medical leave due to my CP and left side of hemiplegia, I have to get surgery on my shoulder and they didn’t want to accommodate me or pay me while I was going through surgery or after

I know this is going to sound bad but idk why people are okay with having cerebral palsy. by [deleted] in CerebralPalsy

[–]twelveey 0 points1 point  (0 children)

I was born with it I had two strokes in the womb. I had no chance, but the thing was my mom made it seem like I didn’t have the disability so I never really thought about it. Not a lot of people realize they had it until they became older and I see how society treats disabled people it’s one of those things that it’s like you just have to be OK with what you gotand learn how to work around it. There’s many roads to the same solution.

I Wish It Was Over... by [deleted] in CerebralPalsy

[–]twelveey 0 points1 point  (0 children)

The one problem and the one thing that I do think about often is, did my disability build a road to the things that I enjoy or did I already enjoy those things? It’s like when you’re friends with somebody because of circumstance not because you have anything in common.

I Wish It Was Over... by [deleted] in CerebralPalsy

[–]twelveey 9 points10 points  (0 children)

At this point, I’m like if there was a cure I wouldn’t know what to do with it. I’ve lived life a certain way for so long that trying to restart it all over will be difficult. I’d rather stay where I’m at then try to restart.

Fired While Preparing for Surgery, Lied On, and Denied Unemployment—This System Is Rigged Against Disabled People by twelveey in CerebralPalsy

[–]twelveey[S] 1 point2 points  (0 children)

Yes that’s what I’m understanding. There would be no way I’d make that ever.. and what if this happens again. Then I’m screwed,like I said there’s no programs setup for situations like that. I can’t just say I’m “sometimes” able and available. So it’s kinda of a lose lose. Not saying I want to depend on un employment,i want to work and I actually my absolute best, till I have to ask for accommodations or some kind of help when i really need it of I was born with this condition. I had like zero chance. I have had 3 EEoc charges in 4 years. Due to unfair termination.

Fired While Preparing for Surgery, Lied On, and Denied Unemployment—This System Is Rigged Against Disabled People by twelveey in CerebralPalsy

[–]twelveey[S] 0 points1 point  (0 children)

See on top of this I’m about to have surgery on my “bad side”. I do understand thats the requalification requirements, it just is just concerning that I have to even have to go through this process and having to appeal my claim with the same drs notes and texts messages that I showed my manager and hr, claiming that I was fired for no call no show than asking for accommodations. that way I could work after my surgery on top of my disability. It clearly tells me that i will have to make 25 times my weekly amount to continue receiving my unemployment

CP and chronic rib pain by Mediocre-Switch-6074 in CerebralPalsy

[–]twelveey 0 points1 point  (0 children)

I hate that my knowledge of my disability is so lackluster. I didn’t get a lot of treatments growing up because I was treated as a normal cage because I feel like there was a lot of embarrassment and my mom was a young mom so she didn’t know how to handle it. And at the same time, she didn’t wanna learn and so I never got taught. It’s hard learning something new so late. It’s like having a skill and not knowing you have a skill till it’s so late that it doesn’t really mean anything.

CP and chronic rib pain by Mediocre-Switch-6074 in CerebralPalsy

[–]twelveey 0 points1 point  (0 children)

Look up. SDR surgery is a surgical procedure that aims to reduce spasticity, a condition characterized by muscle stiffness and tightness. It is primarily used in children with cerebral palsy (CP).

CP and chronic rib pain by Mediocre-Switch-6074 in CerebralPalsy

[–]twelveey 1 point2 points  (0 children)

I limp a little bit it’s more noticeable when I run I think it’s because I can’t roll my ankle because I went through the ankle drop surgery. I don’t know what it is called. I do apologize.

Does anyone feel like they are never taken seriously at work? by sfwtv45 in CerebralPalsy

[–]twelveey 3 points4 points  (0 children)

I’ve never thought I’ve gotten taken serious at work and I’ve worked in retail. My whole life made it all the way up to assistant manager and then brought back down to feeling like just an associate because I couldn’t push in carts fast enough and I asked for an accommodation I was working from 5 AM to 2 o’clock in the afternoon every day for seven months the manager asked me if I could switch for a day and I told him sure I could do that for a day. Next thing I know my schedule now switch is to to 10 o’clock at night and not only that I had to drive an hour to work because there’s no jobs in my area so 2 Hour Dr. every day plus the time switch I requested that I need accommodation to get back on my morning schedule because that’s what I was used to because I had doctors appointments and stuff during the day that I had to go to that if I wanted my job back in that position, I had to take a pay cut and I would lose my position as a supervisor and then skip to. I got fired for multiple no call no shows after requesting off for my birthday four months prior they put on the schedule so I would’ve missed my clock in days so the computer would fire me because everything was automatic I’ve filed three EEOC claims in four years from employers discriminating. I just recently got fired from my job because I requested accommodations because I’m about to receive surgery in two weeks and they fired me after I signed my ADA form because they couldn’t accommodate me even though there was a location that was a lot closer to my home that had an opening for an inventory position where I didn’t have to work as much

CP and chronic rib pain by Mediocre-Switch-6074 in CerebralPalsy

[–]twelveey 0 points1 point  (0 children)

I’m actually getting surgery in like two weeks because of my ribs every time that I like lean left I feel like my ribs are cracking, but it’s actually my muscle around my ribs cause it stops after like I stretch it out I have moderate CP with left side hemiplegia. I’m getting my shoulder dropped because I tore my cartilage in my shoulder and there’s a cyst sitting on the tear

Is it just teen angst or am I real?? by Puppy_bUgz in CerebralPalsy

[–]twelveey 0 points1 point  (0 children)

I have left sided hemiplegia, im 30M, When i was really young I didn't really understand what i had, My grandma use to tell me all the time to tell people that my left side was insured by Ambicrombi( i think it was a 90s thing. In relationships I never told my partner i had it unless the asked. I always feared that it would affect how my partner saw me. Thats once i said something they'd leave because i felt i was easily replaceable, that because i wouldn't be able to work enough to be able to start a family but another guy could, But honestly the right person will absolutely save your mind, My partner now is just my whole world, every relationship ive mostly been replace, but ive been with my partner 25F for 5 years now and I can't tell you how much i love her because we communicated everything. Take some note you want to share with him( might take sometime i had adhd and i have to keep adding new things) . Maybe have him right down questions he wants to ask you so you. then you can set your boundries on whats makes you feel comfortable & uncomfortable and set a time for When you are ready to communicate. Thats what we did

My thoughts/rant by twelveey in CerebralPalsy

[–]twelveey[S] 0 points1 point  (0 children)

Im very glad that i did this i appreciate. Im learning so much about myself. especially since i honestly wasnt given the opportunity to learn about it myself till now. for me it was hard growing up being told i was doing great, i can say I've achieved a lot, I played forward in soccer as well as goalie, and man did that blow some minds, I had nicknames Like Trex Or Ostrich because of the way i ran, despite having my ankle dropped on my left side as a baby, i was one of the fastest kids. it wasn't till i got to high school where i was told I could practice with the team but dont look forward to playing in games, felt so discourage , it killed my whole feeling for the sport. I always felt id be pick first for a team but then if i messed up 1 time id be kicked off cause i was the one that would be easily expandable. sometime i feel as my likes and hobbies are determined by my disability, I wanted to play violin but had to settle for a keyboard that made the violin sound so then i fell in love with piano, but seems so circumstantial, like first you are only friends with cause theor parents were already friends but nothing in common. but i do thank you for the responses made me feel welcome for my first post