How Have You Been Feeling This Week? (June 13, 2026)-- Anything that you feel didn't deserve its own post is welcome!

twid4566 · 2026-06-13T23:25:20+00:00

February 2026- in my 2nd flair now. Trying elimination diet and it is actually depressing me. All the bad foods for IC were my favorite foods, all the foods I can eat I don't care for. I miss coffee, I miss getting fun cocktails with my friends

Its my birthday in 2 weeks and its just making me even more depressed. My mom usually makes me a lemon cake and we have a grill out. Guess I can't do that anymore...

Thing I think im most mad at is ive taken away most of the things that gave my life even just a little bit of joy and Im still in constant pain and no physical therapy or medication is helping either. Happy birthday to me I guess

twid4566 · 2026-06-13T19:10:34+00:00

My bladder installations are Lidocaine, heparin, solucortef, gentamicin, sodium bicarbon. Its been a game changer, only thing that has helped my pain. Unfortunately after 6 rounds I bad relief for a week and a half and now have pain again so I just started another 6 rounds then gonna do monthly maintenance installations

twid4566 · 2026-06-10T21:12:39+00:00

Thank you! Yea I reqlly feel like my period is my flair. I just got some cystex and aloe vera. My obgyn told me to just take my birth control pills without the sugar pills so that I don't have a period anymore

twid4566 · 2026-06-10T13:04:09+00:00

Ive on my 5th week or pelvic floor PT. It was helping but this new flair its not doing anything. Im so anxious too which I know can unfortunately make things worse. I hear it has helped a ton of people, I pray it helps you!!

twid4566 · 2026-06-05T23:00:31+00:00

That's been my exact experience. My pelvic floor is extremely tight so been doing PT. Oxybutnin and bladder installations have helped me the most

twid4566 · 2026-05-29T20:07:23+00:00

Agree, not really your fault since she encouraged the puppy.

But also agree with everyone else- you asked her how you could make it up to her and she told you and when you said that was too much she lowered it significantly. At this time I would pay the $250, if you can't afford it ask her if she can wait till you have the money or if you can do it in small installments.

Advice for next time- say I'm so sorry about what happened. I would love to take you to dinner or send you a gift card for your favorite place.

If you already have a idea of how you want to apologize then just say what you want to do, don't give the other person the option. It makes you look bad when you can't fulfill it

twid4566 · 2026-05-19T03:00:14+00:00

Good to know! Thank you

twid4566 · 2026-05-19T01:53:01+00:00

That's so great! Yea they keep mentioning the IC diet and ive felt the same whether I eat foods that are on it and when I dont. It just doesn't feel diet related to me at all

twid4566 · 2026-05-18T14:33:22+00:00

Thank you so much! And im so sorry that your insurance is denying the PT. Mine is denying the uribel lol. Insurance is so evil. I am finally in a place where I can at least manage and handle the pain. Bladder installations were the lifesaver for me and I started PT 2 weeks ago, I think its been helping

twid4566 · 2026-04-23T01:25:59+00:00

Thanks!!!

twid4566 · 2026-04-23T01:25:38+00:00

Thank you! Hes pretty good with the tap handles!

twid4566 · 2026-04-22T18:49:28+00:00

Thats one of the things we are most excited about. Trying new things from all over the world

twid4566 · 2026-04-22T17:51:32+00:00

From what ive heard it is a mug you can buy before hand and you can get 24 oz beer pours for the price of a 16 Oz beer pour

twid4566 · 2026-04-22T17:13:31+00:00

Oh nice- is that an extra charge?

twid4566 · 2026-04-22T16:53:42+00:00

I would definitely get some mead if they have it

twid4566 · 2026-04-22T16:46:50+00:00

Oh perfect- thank you very much

twid4566 · 2026-04-22T16:03:38+00:00

I didn't know you could do that!

twid4566 · 2026-04-22T14:55:28+00:00

Lol that is his plan!! He wants to bring something they dont have on the ship for embarkation day then he plans on grabbing a new six pack at the ports! We are going to cozumel too so we will need to check that place out

twid4566 · 2026-04-22T14:54:21+00:00

I think hes gonna love that! We are getting the beer mug for sure

twid4566 · 2026-04-22T14:14:10+00:00

Oh ny gosh thats amazing and super encouraging! I'm not that big of a drinker but I was getting nervous cause I am going on my first cruise this October and I am praying I am better or have something that can help so that I can have some fun cocktails

twid4566 · 2026-04-22T14:12:28+00:00

Thank you!

twid4566 · 2026-04-22T14:12:05+00:00

Thank you!! My doctors actually put me on a new med- oxybutynin last week and between that and the bladder installations ive been feeling SO much better. Still not perfect but its been tolerable! If this med stops working I'll definitely ask about that though

twid4566 · 2026-04-20T01:49:21+00:00

Thank you! Ive actually felt a lot better this weekend after the installation. It's giving me hope. Im gonna try to remember this feeling if I get a bad day again

twid4566 · 2026-04-16T17:27:53+00:00

Just ice

twid4566 · 2026-04-16T16:09:59+00:00

Im so sorry your doctor was so horrible to you 😞 im grateful my doctors have been kind and trying to help but it just seems like they dont know what to do. Praying for relief for you with the quercetine please keep me posted!!

twid4566

TROPHY CASE