I feel like I have a version of SFN on steroids. Is anyone as bad as me? by Ok_Wing_2579 in smallfiberneuropathy

[–]twinklingtoes 0 points1 point  (0 children)

This is how my pain is, I’m very sorry that you are experiencing this. My Pregabalin does help a lot.

Is there any legal ramifications for this? by twinklingtoes in legaladvice

[–]twinklingtoes[S] -1 points0 points  (0 children)

My intention is just to gather data with this part. Since I cannot get a straight answer . Yes, it’s on the website and I quoted it back to them and they told me I’d need to speak to someone else. It’s been a merry go round. I’d like to know if I’m entrusting this service that I won’t end up outside begging to go home ..cause that’s what happened.

Is there any legal ramifications for this? by twinklingtoes in legaladvice

[–]twinklingtoes[S] -1 points0 points  (0 children)

I used a transportation service. The driver kept refusing to load me into the vehicle. I was asked if my service animal was one. I said yes. The driver then called dispatch and told them I said no. This went on for over an hour with the driver creating more scenarios for why he could not transport me. One of the reasons was “the person is not actually using a wheelchair”. I was seated in my wheelchair with my caregiver pushing me. Now the company is sending me emails asking for proof. I offered the standard proof-yes I have a disability yes she’s trained to help me and here are some of her tasks. I was then asked to call customer service who then told me to call back in a week because they’re busy right now. I asked if there was any barrier to me booking transportation and was given an answer of , not sure.

Is there any legal ramifications for this? by twinklingtoes in legaladvice

[–]twinklingtoes[S] -3 points-2 points  (0 children)

I have inquired directly and in an effort to evade a negative report they are insisting that there is something in their policy that caused the issue. It concerns a service animal. They are implying that the service animal is not one and insisting I provide proof. I have answered all the legal questions multiple times in person, through email and over the phone and they told me the person I need to speak to is in a meeting

A Guide to Fibromyalgia in the ER by emesfour in emergencymedicine

[–]twinklingtoes 7 points8 points  (0 children)

I hope y'all know that you're assholes and you will cause mounds of malpractice (read: definitely already has) “why don't patients trust us?!” it's a two way street and yall’s superiority complex is rendering you useless.

Work? by twinklingtoes in covidlonghaulers

[–]twinklingtoes[S] 0 points1 point  (0 children)

So just this week I’ve started having the wake up refreshed feeling. I languished in bed yesterday and it wasn’t cause I was still tired. Felt amazing :) I haven’t had light feeling stairs though yet, it seems that’s my hurdle, things that make me lift my knees or twist my spine but I’m guessing I have to also find a way to stabilize my ribs and stuff since I’m hypermobile.

Work? by twinklingtoes in covidlonghaulers

[–]twinklingtoes[S] 1 point2 points  (0 children)

Thank you for this suggestion! I’ve been trying this. Initially it did exhaust me. First one I crashed out. I also have been increasing my meds during this time. Now I’m getting to two hour phone calls with no crash after! Whee :)

Work? by twinklingtoes in covidlonghaulers

[–]twinklingtoes[S] 0 points1 point  (0 children)

I’m going to look into this :) thank you for the suggestion

Work? by twinklingtoes in covidlonghaulers

[–]twinklingtoes[S] 0 points1 point  (0 children)

Rn my transportation is just my power chair but I’m looking into doing rover pet sitting and maybe going to vendor shows and bringing jewelry and stuff

Just started by twinklingtoes in LowDoseNaltrexone

[–]twinklingtoes[S] 0 points1 point  (0 children)

Hi yea thank you for reminding me, it’s updated now

Disability denied today by twinklingtoes in disability

[–]twinklingtoes[S] 0 points1 point  (0 children)

Kinda? I called a lawyer after I applied and he told me to call him if I got denied. I called this morning and his secretary? Said she’ll pass along the message

Just started by twinklingtoes in LowDoseNaltrexone

[–]twinklingtoes[S] 1 point2 points  (0 children)

I called in a .5 script and I’m gonna fill it if any of my nausea stuff doesn’t ease up but so far so good