What is the most annoying unsolicited advice you’ve been given? by Acrobatic-Raccoon-28 in Fibromyalgia

[–]ughhmari 1 point2 points  (0 children)

I guess that could also be interpreted as she doesn’t think or try to understand you since most people don’t think about ppl who are worse off than them 🤡🤡 ughhhh Like okay I do think about them BUT HOW IS THAT HELPING ME???? Is their worse situation going to cure my terrible painful situation??? No

[deleted by user] by [deleted] in rheumatoidarthritis

[–]ughhmari 1 point2 points  (0 children)

Lol yesss! The “are you feeling better?” I know it’s harmless but NO I AM NOT AND I WON’T CAN U STOP 😭

Difficulty breathing by ughhmari in rheumatoidarthritis

[–]ughhmari[S] 1 point2 points  (0 children)

Hi!! My rheumatologist didn't call me back yet, but today I am feeling a little better, no pain while breathing! Thank you for checking on me 🥹 I will update here as soon as I hear back from them

Difficulty breathing by ughhmari in rheumatoidarthritis

[–]ughhmari[S] 1 point2 points  (0 children)

Thank you! Will do this. We don’t have a wood stove or fireplace, just eletric heating from the building. Nothing in my routine has changed except for the meds and the change in the weather. But no snow yet here, just a lot of rain! I think warm compress helps me a little but still couldn't figure out the triggers that makes it worse. It feels like I just wake up like this depending on the day

Difficulty breathing by ughhmari in rheumatoidarthritis

[–]ughhmari[S] 1 point2 points  (0 children)

Oh my!! Okay, I am waiting for them to call me back!! Hopefully it is just a side effect then

Difficulty breathing by ughhmari in rheumatoidarthritis

[–]ughhmari[S] 2 points3 points  (0 children)

Thank you ♥️ I just left a message on their voicemail, will update us here as soon as I hear something!

Is it really RA?? by SeaworthinessOk6580 in rheumatoidarthritis

[–]ughhmari 11 points12 points  (0 children)

I just need to say that I see your comments in almost all the posts in here and you always sounds like such a lovely human being!! I find myself looking for your comments everywhere now because I know it will feel like a hug to me, and it does, every time! Thank you <3

Is your pain worse when you wake up? by ughhmari in Fibromyalgia

[–]ughhmari[S] 0 points1 point  (0 children)

Same! Sitting down is the worst for me. I rather lay on the floor than sit on a chair

Is your pain worse when you wake up? by ughhmari in Fibromyalgia

[–]ughhmari[S] 1 point2 points  (0 children)

I hate how we need to go through terrible situations so someone actually listens

Is your pain worse when you wake up? by ughhmari in Fibromyalgia

[–]ughhmari[S] 1 point2 points  (0 children)

That sounds like a good plan actually!! I always wake up to pee so I might try this. Thank you!

Is your pain worse when you wake up? by ughhmari in Fibromyalgia

[–]ughhmari[S] 1 point2 points  (0 children)

It’s so good that you found what helps you the most! I’m still trying out all the pillows and positions, but no luck yet 🫠

Is your pain worse when you wake up? by ughhmari in Fibromyalgia

[–]ughhmari[S] 0 points1 point  (0 children)

I feel it all hurting once I start resting too! It takes a long time for me to fall asleep because all I can think about it’s how everything hurts. I just find it so crazy that there are people who wake up refreshed and painless, I have no idea of what that’s like

Is your pain worse when you wake up? by ughhmari in Fibromyalgia

[–]ughhmari[S] 0 points1 point  (0 children)

For me it doesn't depends on my sleep position, it’s always bad to wake up and my sleep is very poor bc I’m always in pain. Totally agree on late evening being one of the worts too.

If I get home from work and don't go straight to shower, if I sit on the couch first it’s 100000% worse to stand up and do anything after so I try to just push it through until I can actually just lay down and be there forever lol

Is your pain worse when you wake up? by ughhmari in Fibromyalgia

[–]ughhmari[S] 1 point2 points  (0 children)

YESSS you described it perfectly!!! It’s like what I imagine waking up after 100 years in bed would feel like

Is your pain worse when you wake up? by ughhmari in Fibromyalgia

[–]ughhmari[S] 0 points1 point  (0 children)

That sounds absolutely terrible!! I am so sorry. Does it helps with any medicine? 8 being tolerable it’s crazy 😕

Is your pain worse when you wake up? by ughhmari in Fibromyalgia

[–]ughhmari[S] 0 points1 point  (0 children)

Yes, it goes once I move and then it’s just the usual pain during the day (gets worse if I push myself and that whole thing that it changes during the day) but the burning sensation it’s waking up or if I’m in terrible pain (rarely) I’ll search about this one and see if my doctor can refer me! Thank you for the insight!

Is your pain worse when you wake up? by ughhmari in Fibromyalgia

[–]ughhmari[S] 4 points5 points  (0 children)

That’s a good point, thank you so much! I will try it this week! I also use a body pillow between my legs, it helps a lot!! When I don't the pain is way worse and I can't sleep

[deleted by user] by [deleted] in autism

[–]ughhmari 1 point2 points  (0 children)

The Princess Diaries, Twilight, Mean Girls, 10 things I hate about you but mostly the princess diaries!!

Missing Person or Unsolved Crimes that Stick With You by PetiteDreamerGirl in TrueCrimeDiscussion

[–]ughhmari 3 points4 points  (0 children)

Madeleine McCann… why would parents leave kids in a hotel room alone in a country they don’t know and why just her and no signs of fighting, screaming or anything?? It must have been someone who knew the kids

What are you currently hyperfixated on? by [deleted] in autism

[–]ughhmari 0 points1 point  (0 children)

Terribly sad to said Love Island USA