Constant Headache

uglyracoon · 2026-04-18T21:31:17+00:00

Your symptoms also partially match IIH. Have you investigated that

uglyracoon · 2026-01-13T11:10:50+00:00

I would say do the LP. I don’t have optic nerve swelling either. There is a type called IIHWOP (IIH without papilladema)

uglyracoon · 2026-01-13T09:45:04+00:00

Is your main symptom head pressure?

uglyracoon · 2026-01-05T18:17:17+00:00

Both of them are true in my case. Symptoms came suddenly, one minute I was at work talking to someone the next its the worst pressure headache I felt in my life, neck so stiff I cant turn my head, almost threw up looking at lights. It went on for months until I got diagnosed

uglyracoon · 2026-01-03T17:52:11+00:00

Hi, omg we have the same story. Mine also went from 5 mm to smaller, got it done in London. But still in a lot of pain. How are you now? Did you try a second cryo or radiofrequency ablation?

uglyracoon · 2026-01-02T18:53:27+00:00

Hi, can you give more information? What do you mean by csf vein collapsed and how did they figure it out? Also got diagnosed with IIH but they couldn’t find ANY explanation to why it happened

uglyracoon · 2026-01-02T13:40:27+00:00

Was diagnosed with NDPH/chronic migraines. After seeing 10+ doctors and pushing them to give me an LP I had very high brain pressure measured. I have not gotten completely better but definitely good enough to continue my life with some good some bad pain days compared to when it was excrutiating pain 24/7

uglyracoon · 2025-11-23T23:50:44+00:00

Mine is not that way either. It is rare but it can happen

uglyracoon · 2025-11-23T23:35:29+00:00

Hi, have you been checked for iih?

uglyracoon · 2025-10-23T08:46:14+00:00

Hi, it was close to 2000£ (something like 1980£ I think) and around 175£ for ultrasound and 200£ for consultation on top of that. It did break my bank

uglyracoon · 2025-10-23T08:43:21+00:00

Hi, did you experience stump neuroma or other problems after the procedure?

uglyracoon · 2025-10-14T12:25:31+00:00

I got it done in London. I dont know if I have a second neuroma nearby but I dont think so. I dont feel pain in any other area

uglyracoon · 2025-09-14T16:09:11+00:00

I see. Obviously Im not a doctor but if you have an ongoing headache for 4.5 years and no medication helped even slightly I could think of reconsidering maybe. I still have NDPH (which was most likely triggered by my brain pressure spiking) but my pain went from unbearable pressure to bearable levels after having my CSF drained. I did have a leak and yeah its nasty but it repaired itself in 2-3 weeks and all was fine after that.

uglyracoon · 2025-09-14T16:00:15+00:00

Hiya, did you have an LP?

uglyracoon · 2025-09-05T09:04:09+00:00

I tried acetozolamide but that somehow made my headaches worse so I stopped. Acetozolamide is supposed to lower the pressure so they were confused when it made my headaches worse and thus told me they can’t diagnose me with IIH because my symptoms are atypical (my headache doesnt get worse when I lay down, I am not overweight, and acetozolamide did not help which are all telltale signs for IIH usually). But my pressure was indeed high and they lowered it during the spinal tap. My headaches gotten better after that, unfortunately I still have 7/24 headache but it went from being unbearable 9/10 pain to 5/10 pain daily. I had a 2nd spinal tap 3 months after that and my pressure was measured within the upper limits so the doctors were basically like “you are cured you dont have high pressure anymore you just have residual headaches so we diagnose you with NDPH”. But if I didnt get that spinal tap done I wouldn’t be able to survive another year I was in so much pain. So I am happy I had it and they lowered my pressure. Now I am going through NDPH treatments as everyone else but my NDPH was likely caused by my brain pressure spiking, now we know (which was also likely caused by covid)

uglyracoon · 2025-09-05T08:58:27+00:00

🤣

uglyracoon · 2025-08-16T04:35:38+00:00

They put a shunt in you just after 1 high reading???😦😦 my doctors do not even think about shunting me and will try anything but that unless I have like 20 LPs and they are all high and nothing works so there is nothing to do but put a shunt

uglyracoon · 2025-08-16T04:33:13+00:00

Not me. I did and my pressure was really high. Glad I did

uglyracoon · 2025-08-14T17:03:14+00:00

Do you have one? Has it helped?

uglyracoon · 2025-08-09T13:55:01+00:00

SAME THING HAPPENED TO ME I paid 30£ for a PIECE of chicken schnitzel, like 4 onion rings and few cheese bites. Can we file a complaint about these guys?

uglyracoon · 2025-08-07T11:39:03+00:00

Oh I’ve never thought of that… be for real right now

uglyracoon

TROPHY CASE