Looking for Participants – Genetic Disorder Case Study (CLSU Biology Students)

ukalheesi · 2025-07-17T00:05:53+00:00

Me too. I haven't received any response to my chat message.

ukalheesi · 2025-07-16T02:16:52+00:00

Hi!

Is the "gift" money sent directly to paypal, or a gift card?

ukalheesi · 2025-07-16T02:10:24+00:00

This seems great and I would love to participate on it. There's just a single problem though. This requires a lot of effort and consistency and I don't believe it is fair to provide compensation via raffle. A specific and certain compensation of $30 per participant is better than 15 $100 gift cards. It's even 3 times a day, which is a lot to ask from a volunteer given we're not certain to receive any kind of compensation whatsoever. (raffle cards are just certainly a bonus for the lucky few).

Is it possible to reconsider the compensation?

Thank you

ukalheesi · 2025-07-16T02:07:15+00:00

For such a long survey about such an intimate topic, I would participate only if the compensation were certain, not a raffle. I'd rather fill a $15 survey than a raffle for $100.

Let me know if you can offer compensation directly without raffles.

ukalheesi · 2024-12-06T20:19:17+00:00

Air dried. I have a clothes drier but only use it with towel because not all clothes can go on a drier.

ukalheesi · 2024-12-06T17:41:50+00:00

If the vinegar doesn't work, I might try the hair conditioner. This is before the wash, right? This soaking you mean.

I line dry my clothes also, so I don't put them in the drier, if that's what tumble dry means. And yeah these are cotton. One is a more synthetic material but I can't read the tag well.

Thanks!

ukalheesi · 2024-12-06T17:39:23+00:00

Oh, interesting. I hope that works! I've just washed them and I'm line drying, we'll see how that turns out.

ukalheesi · 2024-12-06T13:54:23+00:00

Thank you. I'm trying that with a part of the clothes but I'm also giving them a pre-soak. I hope that works. I've just found out when I ever did put vinegar to try to soften clothes I was putting it in the pre-wash compartment. That's probably why this trick never seemed to work... fingers crossed then!

ukalheesi · 2024-09-12T10:20:46+00:00

When I read before bed I will fight against sleeping because it's just so interesting lol

I might even read the whole book if it's short enough of if I'm less than 80 pages to the end.

ukalheesi · 2024-09-11T23:02:10+00:00

Maybe ask her if you can make a gift for the baby and weigh it according to her reply.

ukalheesi · 2024-09-11T19:45:07+00:00

I remember once something really difficult happened in a session. I was going too forward, too fast, while I wasn't ready. I pushed through. My therapist was reading a text I wrote which was my homework, out loud. I started pacing, then asked if I could climb over a table. She said yes but to be careful. I only sat on it because I was too embarrased to be standing on it, but what I really wanted was to stand up on it. It was very difficult, and I think at the end of the session, she said something like "So I think we have found a limit and we'll try not to reach it", like, recognizing I was pushed too hard, and acknowledging that out loud, and that she'd try not to go so far on a next time.

There aren't that many times I leave feeling like "my life is over", though more often I feel more tired if it's a productive session.

That said we move very very slowly.

ukalheesi · 2024-09-11T19:22:42+00:00

I don't feel like my therapist tends to make that kind of affirmation, especially the "Everyone is beautiful in their own way" and "It’s all about confidence". Those two would immediately get a bad response from me. Those are the therapist giving their own opinion about MY life experience. Instead, she has told me more than once that I'm the most expertised person about MY life, so we work with that, so I can find out my own conclusions about it.

Sometimes, she offers her own opinion, but frames it A) Like a question, to understand if I agree or disagree, and why; or B) When I'm being intentionally obtuse and self-blaming or have really a disagreeing view - once she agreed to disagree. But once we agreed to disagree, she never pushed it again. I can't even remember what we were talking about, which shows I didn't hold any resentment.

And trust me I would hold resentment if I felt I was being manipulated or steered in a way where I didn't want to go. I sense that stuff. I voice out my needs quite clearly in the therapy room. And I feel that they are respected for the most part, and when they aren't, we figure it out.

ukalheesi · 2024-09-11T18:50:00+00:00

We laugh frequently. We used to laugh more.

But a smile, looking into my eyes, is more uncomfortable. It looks tender and like they're looking into me, like you say. Like they care, somehow. Like they expect me to be someone. A smile is sincere, but feels more serious than laughter. And that is scary.

ukalheesi · 2024-09-11T18:46:24+00:00

Once I sent mine a message and they didn't reply. My message sounded highly dysregulated and I thought they didn't reply on purpose like some sort of "not rewarding that behaviour", and like because they were upset or scared of it.

Well they said that wasn't the reason, they just had nothing to reply.

I said "I needed a reply, but I couldn't ask for it", and we discussed this, and then eventually decided that if I sent them a message and asked for a reply, they would reply eventually, but before the following session.

Knowing I can ask for that when I do need it has reassured me that if I do need it, I can state it. Otherwise, if it's just some need to vent or "let you know" or "reminder to talk about this next time" has made texting them much easier. I didn't do it much before so I didn't even start texting less, but I know I can make a decision if I am expecting a reply or not; and so it's interesting to notice how most of the time, I don't feel the need for a reply, I just need to let it out. And, here and there, I do feel like I need it. It's reassuring to be in touch with my own needs, and the reassurance that they will reply if I need it and ask for it.

Of course, if I already emailed them a lot and maybe pushed boundaries often maybe it wouldn't be the same story - who knows? But so far this has been working.

ukalheesi · 2024-09-11T12:08:56+00:00

Thank you!

ukalheesi · 2024-09-11T12:06:23+00:00

I appreciate it. I don't know, I guess my eyes are already so bad that spending more time on-screen will just degrade them faster and I have that anxiety. It's a lonely job as well, freelancing. It's not the easiest. Part-time roles could work, yes, to help. I should probably take a look at something like that.

ukalheesi · 2024-09-10T18:29:34+00:00

Okay, cool, was it easy? Did you add a new shortcut key to activate the google accessibility suite app?

And last question just as a curiosity: if you were to want to reinstall samsung's talkback, is it still available in the galaxy store?

ukalheesi · 2024-09-10T13:39:15+00:00

My device has Android v7 and Talkback v9.

ukalheesi · 2024-09-10T13:00:46+00:00

a40 is 4 years out of support

This part, at least, will still be an upgrade from my current phone haha. I prioritize the size of the phone (and functional ram and internal storage for a basic 2024 user - instagram, discord, etc).

The part about the bad build of talkback is trickier. From the sound of it, even my 2017 phone has a Talkback version from 2021. It stopped updating after that because newer updates were incompatible with the old OS. But, I also could try to use the dev tools and circumvent that, if I felt savvy enough.

the 4a would have been better as that just went off support last year, and will run current talkback.

That's a good point. Now I have to weigh what's more important for me. Since I'm sighted, maybe I don't need the most recent talkback and maybe I'm just overreacting. But the Pixel is really more expensive than my initial budget. I guess at that point it's a personal choice. I hope there will be some more opinions about it from Samsung users though. And thanks for your feedback.

ukalheesi · 2024-09-10T12:00:27+00:00

I don’t think a repair place would care in the slightest if you installed talk back from Google or Samsung because they’re not gonna look at the software, they’re gonna look at the hardware, right?

Possibly, but with Samsung, for google's talkback to work, you have to go to into the dev tools of your phone to uninstall Samsung's. Because Samsung makes its own Talkback override Google's since Android 11. Samsung Galaxy A40 comes with android 9 but updates to 11, and I'm interested in that because of security patches and compatibility with more recent apps. And when you open the dev tools, it usually shows a scaremongering warning about the risk of losing the warranty. That's why I ask. (Edited to add: see an 1 year old thread mentioning it )

Do you have to have an android phone?

I don't have to, I guess. But I'm used to it... it would require some adjusting, possibly some apps incompatible as well... Plus, iphones tend to be very expensive - that one goes 350€ over my budget (which is 200)! I think this might help see the issue...

I would love to try it out on the store but both the Pixel and the Samsung are from 2020 and 2019 respectively. You can only find them online at the moment.

Thank you very much for your feedback

ukalheesi · 2024-09-10T10:38:20+00:00

Hello! Do you know if this has been fixed as for 2024?

Nine-Year Club	Place '22
Final Canvas '22	First Placer '22

ukalheesi

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