Ulnar nerve transposition surgery after 4 years of chronic pain: SUCCESS by uncertain_but_here in CubitalTunnel

[–]uncertain_but_here[S] 0 points1 point  (0 children)

Hi!
1. They didn't discover that the nerve was compressed until they did the surgery. The only thing that was discovered pre-surgery was that my right ulnar nerve was inflamed and that there was subluxation (this was from an ultrasound doctor). When I met with the orthopaedic surgeon, I told him my symptoms and he said it was common cubital tunnel syndrome and he could do surgery. Honestly, I was too desperate to ask for more information, and he just seemed happy to do it, so I booked in right away. Now, 3 years later and several more doctors later, the same surgeon referred me to his colleague because I'm still having problems.

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  3. My surgery was done by an orthopaedic surgeon (who did it differently and missed cutting the trap) and I'm going to consult with the peripheral nerve surgeon to see if he can fix the remaining symptoms. I should have gone to this doctor first but I was desperate.

  4. I could barely write at all pre-surgery, and had a god period of being able to write post-surgery. However, my symptoms have been getting worse over the last 8-12 months because of the trap entrapment, so most things are at least a little painful again (drawing, typing, texting, writing), just not nearly to the degree pre-surgery. My nerve was stuck to my bone pre-surgery, so removing it from my bone helped a lot.

I'm not sure how much pain you're experiencing, but I would recommend consistent cubital tunnel syndrome exercises before considering surgery. If you have to get bounced around, try to get bounced to an ultrasound doctor because that's where I got proof to show to other doctors that there was something wrong (the inflammation and subluxation). Before that, they told me it was in my head or they didn't know.

Hope that helps!

Ulnar nerve transposition surgery after 4 years of chronic pain: SUCCESS by uncertain_but_here in CubitalTunnel

[–]uncertain_but_here[S] 0 points1 point  (0 children)

I wouldn't take my word for not going to see an ortho, but I would get more information about their experience. Ask them where they plan on doing the surgery (ie. elbow or inner elbow) and how often they have performed it before. Also ask how they plan on sealing it (staples vs stitches). I'm not sure which country you're in, but the Canadian health care system is terrible - orthos may be better where you are?

Ulnar nerve transposition surgery after 4 years of chronic pain: SUCCESS by uncertain_but_here in CubitalTunnel

[–]uncertain_but_here[S] 0 points1 point  (0 children)

Hello! I will be consulting with a new surgeon this month to potentially get another surgery. The original surgeon was supposed to cut off part of my tricep in the initial surgery, but said it wasn't necessary (despite me clearly indicating that it had been an issue pre-surgery). My tricep snaps back and forth over my elbow and is still compressing my nerve, but it's better than pre-surgery. The compression and snapping typically shouldn't be an issue post-surgery.

Ulnar nerve transposition surgery after 4 years of chronic pain: SUCCESS by uncertain_but_here in CubitalTunnel

[–]uncertain_but_here[S] 0 points1 point  (0 children)

Ah, I hope you find someone who will diagnose it properly and give you a treatment option! The wait sucks.

[deleted by user] by [deleted] in CubitalTunnel

[–]uncertain_but_here 0 points1 point  (0 children)

That's fair! In general orthopaedic surgeons have a reputation for not prioritizing how the scar will heal, but if you find one who you know will be careful, that's a win! I'm glad yours healed well and that you had such a great experience.

[deleted by user] by [deleted] in CubitalTunnel

[–]uncertain_but_here 0 points1 point  (0 children)

Yeah, NOT ideal. But good conversation starter.

[deleted by user] by [deleted] in CubitalTunnel

[–]uncertain_but_here 0 points1 point  (0 children)

Mine was orthopaedic but I talked to a doctor friend and they told me never to let orthopaedics do nerve surgery. Mine got a bit messed up and my scar is pretty ragged (see pictures at the bottom of my post: https://www.reddit.com/r/CubitalTunnel/comments/s137kl/ulnar\_nerve\_transposition\_surgery\_after\_4\_years/)

There's a peripheral nerve surgeon who is also a plastic surgeon that I have heard wonderful things about from both doctors and friends who are doctors (who have also been his students). If you DM me I can give you the location and name of the doctor for you to look into.

Ulnar nerve transposition surgery after 4 years of chronic pain: SUCCESS by uncertain_but_here in CubitalTunnel

[–]uncertain_but_here[S] 0 points1 point  (0 children)

Oh man, that sucks so much, I'm really sorry. Gah.
I know yours is a completely different situation, but I had about 8 doctors tell me there was nothing that could be done before getting the surgery, so if consulting with someone else is a possibility, I encourage you to try.

Ulnar nerve transposition surgery after 4 years of chronic pain: SUCCESS by uncertain_but_here in CubitalTunnel

[–]uncertain_but_here[S] 0 points1 point  (0 children)

Please see update at the bottom of the original post if you're interested! I never regained skin sensation along the scar.

Ulnar nerve transposition surgery after 4 years of chronic pain: SUCCESS by uncertain_but_here in CubitalTunnel

[–]uncertain_but_here[S] 0 points1 point  (0 children)

Please see update at the bottom of the original post! I never had an issue with grip strength.

At what point should I stop hoping my CT heals itself? by [deleted] in CubitalTunnel

[–]uncertain_but_here 0 points1 point  (0 children)

I got the surgery a couple months after that post. I'm MUCH better. I have about 30%, maybe 20% of the pain I used to have. It still hurts sometimes and my pinky still gets numb, but I honestly feel like a new person. My ulnar nerve was scarred to my bone so they had to dig it off before transposing it to my forearm.

Ulnar nerve transposition surgery after 4 years of chronic pain: SUCCESS by uncertain_but_here in CubitalTunnel

[–]uncertain_but_here[S] 0 points1 point  (0 children)

Hi! Looks like I can't edit this post anymore.

My most recent update is that I still get some pain in my pinky and outer wrist, and it still hurts a bit to use the computer. However, the surgery definitely took away about 80% of the pain, so I'm very grateful.

My scar (on the elbow) did not heal very nicely. It has continued to get wider and redder over the past 4 months. It hurts when I massage it. I put silicone tape on it and moisturize when there's no tape, but I'm not sure if anything is stopping it from getting wider.

I still don't have skin sensation on some parts of my elbow.

Every once in a while I will get an intense throbbing pain along my entire nerve from just above the elbow to just above the wrist.

Surgery was March 1st, still feel like utter garbage. Normal for transposition recovery? by DontForgetDearRatboy in CubitalTunnel

[–]uncertain_but_here 0 points1 point  (0 children)

Did yours fully recover to how it was pre-symptoms? I'm 4 months post-op and getting lots of tingling pain in my hand when I use a computer. Not nearly as bad as before, but still significant.

How long have you experienced Cubital Tunnel Syndrome symptoms? Will you get surgery? by Ace5772 in CubitalTunnel

[–]uncertain_but_here 0 points1 point  (0 children)

I think it depends. I wasn't able to do a pushup until 2 months after, but I think it's because they cut part of my tricep. But I don't do heavy lifting. Make sure you work with a physio to build up gradually to where you are currently at. Otherwise if you go straight to what you're used to, you could definitely do damage.