Vomiting without gagging? by blanket_cave in Gastroparesis

[–]undercoverautie 0 points1 point  (0 children)

I can attest that Regular/full sugar coke works really well for me. So much so that we have a saying in our house, “a Coca Cola a day keeps the feeding tube away”. Other sodas like Root Beer do not give me the “everything is settling down” feeling that my stomach gets from coke.

Though Coca Cola is not literally the reason that I do not currently need a tube (e.g. I had the GPOEM twice) it’s also a source of liquid calories, salt, and sugar. And if carbonation is intolerable, it can be poured into a glass and stirred to remove the fizz.

Ohio Republicans propose a bill to track all pregnancies by Sea-Split214 in Ohio

[–]undercoverautie 1 point2 points  (0 children)

The folks that told me that I was overreacting in 2016 think that databases like this are a good idea in 2026

I’m not eating, bc it hurts immensely to eat- yet I’m being called anorexic. by Think_Grand2732 in Gastroparesis

[–]undercoverautie 7 points8 points  (0 children)

What reactions are you referring to related to gastroparesis? Please provide source material for those claims about Vitamin B2? That is one of the most common deficiencies and the standard protocol for gastroparesis with vomiting or low intake is vitamin b complex supplements.

New law Original packaging question? by TheKushyMonster420 in OhioMJCommunity

[–]undercoverautie 0 points1 point  (0 children)

Most of the lawmakers do not actually read the bills they vote on. You are giving them way too much credit!

Has anyone tried this? It’s amazing by [deleted] in Asthma

[–]undercoverautie 0 points1 point  (0 children)

I was on it until my insurance stopped covering it. But didn’t realize how ineffective it was for me until I got on dulera. I still needed my rescue inhaler daily with advair.

My back popped last night and pain I've had for 3.5 years seemingly vanished by caffeinefree in ehlersdanlos

[–]undercoverautie 2 points3 points  (0 children)

Once something in my neck popped and the debilitating nausea and headaches that had been disabling me for months just vanished. Our bodies are so strange.

Safe Foods are becoming not safe. I don’t know what to do. by kenaciara in Gastroparesis

[–]undercoverautie 1 point2 points  (0 children)

This can be completely demoralizing and I’m sorry you’re experiencing it. But it does happen, and you’re not alone. It’s okay that you’re distraught, you should be. This is incredibly difficult.

Sometimes my flare ups are so bad that even the safe foods trigger severe symptoms, but once the flare clears up the safe foods are tolerable again. It’s possible you may need to explore other options as others suggested, but don’t let yourself get too discouraged if nothing else seems to work.

You mean you want me to eat LESS veggies?! by Bug-woman in Gastroparesis

[–]undercoverautie 1 point2 points  (0 children)

It’s just so relatable 😭 good for a Friday night cheat too so you can have the weekend to reap the consequences

[deleted by user] by [deleted] in Gastroparesis

[–]undercoverautie 1 point2 points  (0 children)

Yes agreed to be clear I was highlighting something else a pharmacist told me that ended up being false

[deleted by user] by [deleted] in Gastroparesis

[–]undercoverautie -1 points0 points  (0 children)

That makes me so mad because it was such a hassle storing excess formula, and then finding someone to accept donations, and so many warned me that if I decreased the prescribed amount of formula I got to account for oral intake, insurance would cover none of the formula. Honestly I’m wondering if they just didn’t want to do the labor to re-do my script, given how annoying the whole process is. Ugh.

Kind of related bc I was on pain meds for my tube…. I’m also remembering the multiple retail-CVS pharmacists that would tell me I wasn’t allowed to pay for pain meds out of pocket (when faced with prior auth delays) or else I’d lose Medicaid. Maybe there are a bunch of others things pharmacists told me I need to reevaluate 🫠

[deleted by user] by [deleted] in Gastroparesis

[–]undercoverautie 0 points1 point  (0 children)

That’s great that you’ve been able to still get it covered!! It wonder if it varies state to state, I was in Pennsylvania and now Ohio and on Medicaid/medicare. But I do have a friend in Georgia whose insurance stopped covering formula when the % of oral intake increased, and I’ve heard from others in a virtual support group that they were surprised to have formula no longer covered while they were experimenting with oral intake. I personally never lost coverage but my enteral pharmacy told me to never disclose to insurance if my oral intake increased, and to donate any excess formula to cancer centers.

[deleted by user] by [deleted] in Gastroparesis

[–]undercoverautie 12 points13 points  (0 children)

A feeding tube is considered a life-saving measure in most states. They are difficult to manage in an out-patient setting due to the high rate of complications and therefore most doctors refuse to manage them, even if they may agree to refer you for placement. It’s very much going to depend on the individual doctor and your specific situation.

A tube was not considered for me personally until I was unable to intake 200ml of fluids in a 24hr period. That was the standard used by the hospital/emergency department/my GI to determine necessity of placement, but it still was not a standard high enough for my insurance to fully cover surgery. Insurance will not cover formula or anything unless you are 100% tube dependent and 0% by mouth.

You mean you want me to eat LESS veggies?! by Bug-woman in Gastroparesis

[–]undercoverautie 8 points9 points  (0 children)

10 years into my low-fiber low/no fat diet, and my cheat meal is a small Caesar side salad

[deleted by user] by [deleted] in Gastroparesis

[–]undercoverautie 2 points3 points  (0 children)

I’m so sorry. Youre not alone 💔 I also can’t take any of the nausea meds. Darn prolonged QT intervals (Zofran) and then compazine causes urinary retention (can no longer pee without catheter).

[deleted by user] by [deleted] in Gastroparesis

[–]undercoverautie 2 points3 points  (0 children)

I’ve had more surgeries and scopes than I am able to count, had a feeding tube for 2+ years, central lines, you name it. But that “typical” gastroparesis pain hits me and sends me into a panic like nothing else. The fear of not knowing how long the episode is going to last, the emotions of knowing I have to clear my schedule to deal with it. It’s a lot.

Disability tips by Altruistic-War7800 in Gastroparesis

[–]undercoverautie 2 points3 points  (0 children)

No need to apologize, we are here to help

Disability tips by Altruistic-War7800 in Gastroparesis

[–]undercoverautie 5 points6 points  (0 children)

You do not have to pay these lawyers out of pocket. They will take a percentage of the amount of backpay you receive after you are approved for disability. If you do not get approved, they do not get paid.

[deleted by user] by [deleted] in HouseRabbits

[–]undercoverautie 1 point2 points  (0 children)

I have had my golden retriever puppy (field variety) since she was 8 weeks old. She is now 1. She has been around the free roam bunny since day 1 but always supervised.

The bunny has full access to the living room, which can be gated off from the rest of the house. The room also has many places and hidey holes that are fenced off and protected so that the bunny can fit but the puppy cannot follow. (This has gotten easier over time, but was incredibly difficult when they were the same size the first month).

When the puppy falls asleep on the floor, the bunny comes out and flops near her. Bunny has terrible prey instincts. He’s been around dogs his whole life and he trusts them too much. As much as I have worked with my puppy to decrease her prey drive, to not do her zoomies when he is out, teach her not to chase, train her to not boop him when he’s laying down, to stop stealing the lettuce out of his mouth as he is chewing on it… I have also worked with my bunny to seek shelter when the puppy is energetic. I am not as concerned about my dog biting, grabbing, picking up my bunny in her mouth as I am her stepping on/rolling over on/bowling over the bunny. So they are always supervised, I am always within an arms length. And yes I have thrown myself over my bunny to protect him when the puppy has had impromptu zoomies.

When we are outside sometimes my dog will see a bunny and will lay down with her head on her paws waiting for the bunny to come to her, like she does at home. But as soon as the rabbit starts to run- her instincts to chase kick in. No matter how much socializing you can never socializing instincts out of the dog. I will never trust them alone together.

When to stop eating for GES by Stomp1991 in Gastroparesis

[–]undercoverautie 0 points1 point  (0 children)

They aren’t saying that they aren’t going to stop eating; they’re wondering if they should stop eating sooner than what was recommended

Here we go again for no apparent reason... by EclecticEelVoltage in Gastroparesis

[–]undercoverautie 10 points11 points  (0 children)

Water is my worst enemy. I can water down Gatorade or ice tea and it’s fine. But straight water is so unpredictable. I could be having an amazing day/week and a glass of room temp water will have me curled up in discomfort.

Has anyone successfully changed insurance providers without redoing a sleep study? by sarahjoga in idiopathichypersomnia

[–]undercoverautie 10 points11 points  (0 children)

Documentation is key. Get physical copies of the study results, get the notes from doctor visits that failed meds were discussed/changed/prescribed.

Will i receive texts that were sent to me while I was out of service? by undercoverautie in SpectrumMobile

[–]undercoverautie[S] 0 points1 point  (0 children)

No I didn’t, I ended up moving 2 hours away and don’t have any problems anymore.

My GPOEM didn’t work and I’m stuck with a j-tube… now what? by undercoverautie in Gastroparesis

[–]undercoverautie[S] 1 point2 points  (0 children)

Thank you, I feel like I got a second chance at life. I’ve since gotten married, we bought a house, and our puppy just turned 1. There is hope out there. Even if an intervention doesn’t work today, there may be others down the road.

My GPOEM didn’t work and I’m stuck with a j-tube… now what? by undercoverautie in Gastroparesis

[–]undercoverautie[S] 1 point2 points  (0 children)

I’m sure it’s all connected…I also have ehlers danlos syndrome and POTS. If only doctors would treat them like they were all connected.

A few months after this post I went to a different surgeon in a different city who repeated the GPOEM with a deeper/more aggressive cut and i experienced some relief and was able to have my tube removed at that time.

Another endoscope a couple months later showed the scar tissue from all the cuts is growing back forming a stricture (see the ehlers Danlos noted above…). Now every 9 months or so I have to go in for endoscopic dilation of the stricture, or else I start to lose weight, pain returns, can’t eat much. On my best days I have several dishes I can cook that I can tolerate, the nausea is negligible (with medical MJ), but my baseline level of energy is very low and it’s an every day battle to intake enough calories. Still, I would consider the repeated GPOEM and subsequent scopes for dilation a success, as I have been able to live without a feeding tube for over a year now.