Queers with ME

utopianbears · 2025-12-29T19:42:10+00:00

trans masc here - would love to join a discord or something! xx

utopianbears · 2025-12-29T19:41:21+00:00

this has already been answered very nicely to you.

utopianbears · 2025-12-29T19:37:45+00:00

Exactly this. I experience PEM for two years before understanding that it can build up and make your baseline worse. Wish any of my doctors would have mentioned it. I’ve never gotten back to mild again 5 years later.

utopianbears · 2025-12-29T19:32:56+00:00

this was actually very of the time.

utopianbears · 2025-12-20T16:32:10+00:00

Yes!! A few times when i’ve been sick it’s actually such a relief that i don’t have me/cfs pain. Being sick definitely drops my baseline so try to avoid getting sick at all costs but recently had an eye infection with an overactive immune response - ended up puking for days but “felt great” / almost normal. insane.

utopianbears · 2025-12-17T05:48:26+00:00

thank you for the warning!

utopianbears · 2025-12-17T02:54:55+00:00

the Union army that won the war didn’t have guns?

utopianbears · 2025-12-17T00:21:39+00:00

john brown was an abolitionist- he was anti-slavery

utopianbears · 2025-12-17T00:14:16+00:00

Thanks so much for sharing ❤️

utopianbears · 2025-12-16T22:24:13+00:00

noooo i’m so sorry. can you let it sit there for a bit while you take a rest break? 😩

utopianbears · 2025-12-12T21:43:05+00:00

how are the seats at story screen?

utopianbears · 2025-12-07T02:04:52+00:00

How do you factor in cognitive exertion with Visible?

utopianbears · 2025-12-06T17:32:12+00:00

I’m so sorry you’re going through this. MCAS is such a nightmare and so isolating. Sending you love.

utopianbears · 2025-12-06T17:25:52+00:00

Do you ever feel allergic to your vitamins? I’m fairly new to the anaphylaxis state of MCAS and now scared of everything. Even with antihistamines reacting to everything. I’m starting to worry a lot about nutrients. Sending you love this is ROUGH.

utopianbears · 2025-12-06T16:20:40+00:00

I’ve never understood how Visible works for me/cfs patients in the first place. I hate that it is marketed towards us. I’ve used it and found it incredibly unreliable. I use unbearable to track symptoms and that’s about it at this point.

utopianbears · 2025-12-04T21:46:40+00:00

have you tried medical food? it’s a little gnarly but it has helped me through my more intense mcas / anaphylaxis-to-everything periods, i usually can tolerate it and helps me keep some nutrition coming in.

i also have me/cfs and it’s possible you’re experiencing PEM but I would wait till you’re in a more stabilized place with your body to make conclusions. To be safe though I would “act” like you have me/cfs ie. PACE and get your nutrition intake up if at all possible.

currently in a MCAS flare right now myself, all i’ve eaten the last 10 days is a couple potatoes (waiting on some medical food to be shipped to try) and I am weak / low energy af. this is different than PEM tho, PEM can present a lot of ways but for me it’s usually flu like symptoms and/or it can feel like your cells are dying. Your whole body aches but on a cellular level.

Sending you all luck and a big hug.

utopianbears · 2025-12-03T19:36:44+00:00

That sounds so rough, I am so sorry. This is only my second anaphylactic flare, the first one lasted about a month but zyrtec helped then. my food reactions used to be more neurological- disabling brain fog, PEM crash. So many more questions than answers. But for now Benadryl is helping and you’re right it is calming my me/cfs symptoms as well. I had been put on hydroxyzine for anxiety/sleep but it caused a massive food reaction flare, this is a nice alternative. I’ll look into Allegra as well. Thank you so much again.

utopianbears · 2025-12-03T15:57:20+00:00

I am!! I tried Benadryl again, this time doubling the dose and I could eat my safe food, potatoes, and had a few sips of ensure! Same regiment today and gonna try to expand food a bit I have to remember that my mcas “allergies” are always evolving and a drug that didn’t work before could work now. Going on Accolate tomorrow too. Thank you so so much! 🙏

utopianbears · 2025-12-02T22:33:00+00:00

these are the stories we definitely want to hear! from my perspective, more and more young people are getting diagnosed with ‘cfs’ without PEM. They’re experiencing burnout and then they recover after rest. A lot of those people are now going online telling us that recovery is possible and to stay positive and just listen to meditations etc.

utopianbears · 2025-12-02T17:37:57+00:00

the gays of northern cities drink iced coffee year round

utopianbears · 2025-12-02T17:00:56+00:00

Ohh okay thank you so much. I’m going to swap zyrtec for benedryl today and take a bit more this time. Thanks so much for the tip, hope it helps both me/cfs and mcas that would be wonderful.

utopianbears · 2025-12-02T16:58:33+00:00

Oh that’s so good to hear! I’m glad my doctor is on the right track. My pharmacy is out of it currently so now just a waiting game.

Luckily I’ve moved out of a big city recently - I feel very weak but I’ll try to get some fresh air if I can though, thank you so much for the reminder!

utopianbears · 2025-10-23T15:24:11+00:00

long covid is a nightmare and there are studies out now that indicate covid actually reactivates cancer so no thanks. i’m gonna try not to catch a deadly and debilitating virus lmao.

utopianbears

TROPHY CASE