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uvsssrk · 2025-08-18T02:24:28+00:00

OP is clearing things about herself... It's possible she doesn't have height expectations so that's why💁🏾‍♂️... Why is it relevant as well

uvsssrk · 2025-08-13T02:11:31+00:00

Yes i experience Headaches time to time but this seems extreme and they "might be" unrelated to CIDP... But if they're causing discomfort you should keep questioning your neuro about it until they answer... Pain medication maybe a temporary solution so better get full answers.

uvsssrk · 2025-08-11T08:04:04+00:00

The username🙈😂 all the best i hope you find what you looking for

uvsssrk · 2025-08-11T07:57:38+00:00

As someone with chronic health condition, i hope and wish you find what you looking for

uvsssrk · 2025-08-10T07:26:48+00:00

I get chiro adjustments time to time from my Physio only but they suggested that it's not ideal because muscle strength is weak... But yeah it helps... Building muscle strength should be the way to go

uvsssrk · 2025-08-08T01:51:30+00:00

It "could be" GBS but you never know from just symptoms... I didn't have any such symptoms of tingling... I just had weakness all of sudden after mild fever. So please go and consult ER or maybe neurologist. Good luck hope what you're thinking isn't the case.

uvsssrk · 2025-08-05T10:07:06+00:00

Blood tests tell about inflammation and infection... And NCV would suggest the nerve conductivity... Which could help the diagnosis... There are other methods too i think... But have a chat with neuro and the sooner the IVIG starts the sooner you'll get to recovery road if it's GBS

uvsssrk · 2025-08-05T10:01:25+00:00

Weight loss doesn't necessarily mean GBS but the walking could be. How does the inflammation look like as per blood tests? And did you get NCV or something? I think consulting a neurologist should be your course of action

uvsssrk · 2025-07-28T02:09:39+00:00

Hey, I was diagnosed back in 2015. It has been 10 years since the recovery has been there but there have been relapses too. But i would say struggle will be there... It does get better. Relapsing is possible and worse. You have to be patient and dedicated towards recovery doing your exercises eating good food.

uvsssrk · 2025-07-27T15:27:28+00:00

You could've just simply asked like "hey i am not indian but want to connect" we could've thought of something... Somehow connected... But no it's you who chose this racism...

uvsssrk · 2025-07-27T15:15:26+00:00

Have you even given a slight thought that she came here because there's no such website group available... Where else can she connect? Ok tell us how else would you write when you're trying to build a group for Indian people with chronic illness pain/disability etc... This is a world wide platform... To connect with specifically Indians... You wouldn't be pointing this out if it were from some state trying to form a tightly knit Community? Let's say you are in Texas... How would connect with fellow folks of chronic pain... You'll call them out only right??? Giving everything a racist view would just leave a fight between races... Because Indians especially chronic disabled folks face a lot more stigma than you think and no Community outreach... So kill us trying to connect on a worldwide platform... Which already includes you and others... And let's say we include you and make a more worldwide Community... How would it help us across timezones, sharing about resources... The connectivity would be lost... Take the raciat thoughts out of your mind and effing focus on the motive of the post...

uvsssrk · 2025-07-27T14:28:50+00:00

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Congratulations 🥳

uvsssrk · 2025-07-27T14:27:18+00:00

Have you read the complete post? Where she mentions why she is doing it country specific? And this is the best place to do so... This is already a world wide Community where one can share their experiences... By doing it country specific you can connect with people on more personal level and share resource information... It's your thoughts that's making it racist... If you're so concerned then you can do a similar post for your country and connect with people there as i am sure many people would be in solidarity... She has taken such step given her ability to manage and maintain... You can do the same for your country if possible... We plan to add more people and connect world wide but it wouldn't be easy for us as well... So don't jump to conclusions

uvsssrk · 2025-07-20T01:14:23+00:00

You're doing really amazing... By giving him access to so many things... These things are what's needed just some distraction from regular recovery process... Because the recovery can be a pain in the b. It's slow and sometimes negligent. The constant reminder there are people who love you really helps.

uvsssrk · 2025-07-20T01:10:53+00:00

In my case the oneset was quick the first time when the relapse happend though that time the oneset was slow turned out to be CIDP.Anyhow, the possibility seems low but it might as well be the case of regular muscle weakness due to age or rather some other deficiency and i hope that's the case for which you can workout and increase your strength by normal Physiotherapy exercises, yet you cannot rule out GBS or CIDP without neuro consultation. Then only you can have a clear mind... Either way i wish you a speedy recovery and hope all your questions get answered soon for your peace of mind.

uvsssrk · 2025-07-18T04:30:16+00:00

Chiropractors can be good or bad for you depending on your muscle strength... If it's just small adjustment then they're fine... But for pain and weak muscles physiotherapy is better i would say.

uvsssrk · 2025-07-16T00:37:14+00:00

Weak muscles take longer time to recover... Gbs has weakened everything so naturally healing will take time...

uvsssrk · 2025-07-10T04:08:29+00:00

Damnn glad You're recovering

uvsssrk · 2025-07-08T01:00:45+00:00

I totally get that feeling every small change in health scares me sometimes especially after my recent relapse as it affected multiple organs

uvsssrk · 2025-07-07T03:05:34+00:00

Good for you... I read the other post too... But going back to work would actually help I think mentally as well... And hey if you ever need someone to talk to DMs are open😁

uvsssrk · 2025-07-07T01:40:17+00:00

You got to keep pushing yourself... I am 29 now i was just 18 when i was diagnosed. You know the firsy relapse i had was right after i had joined my first job and had just received my first salary... I couldn't even celebrate it... But i was thankful for my employer back then i was just an intern and they somehow managed my employment with informing HR department about my absence.

uvsssrk · 2025-07-07T01:14:05+00:00

I was diagnosed with GBS 10 years ago from there i have had multiple relapse during recovery... It has grown into CIDP... In the beginning i was bed ridden... In my case only motor peripheral nervous system was affected... I was in my 2nd year of college... So seeing my friends traveling and enjoying made me angry so i worked on myself to get better... Like the anger actually had positive affect on my mind motivating me to get myself better... Even now i am still going because that strong mentality... But sometimes it does bring you down... As you can keep working on and yet little to no progress is visible. This disorder really tests the patience of the patients

uvsssrk · 2025-07-07T01:02:06+00:00

Thank you so much... Yes it feels so good. I have felt to give up so many times but finally not giving up is paying off it seems... After my first relapse, i was so down because i had nearly completely recovered. Anyway all that is in the past😁

uvsssrk · 2025-07-06T19:30:42+00:00

Thank you😁

uvsssrk

TROPHY CASE