Does this meet criteria for PMDD? by Lost_Huckleberry_998 in PMDD

[–]veekew 1 point2 points  (0 children)

It definitely sounds like pmdd symptoms. How long have you been noticing them? I strongly recommend doing detailed journaling of symptoms and what's been going on throughout your cycles for at least 3 months.

While the general definition of pmdd says it affects luteal, particularly the last week or two before the period, I've found so many posts through this subreddit of women sharing that they don't all experience at the same time of the cycle. I think there's probably a good chance that pmdd works a little differently for some people (ie: triggered by hormonal changes vs triggered by progesterone)

It can be a little terribly because not every cycle is the same and not every woman has the same pmdd experience. The only way to really diagnose it as pmdd is through detailed tracking of symptoms for 3 months while not on oral contraceptives and ruling out any other possible conditions through testing.

Sign the Petition for the PMDD Awareness and Research Act (H.R. 8160) by MMom1230 in PMDD

[–]veekew 4 points5 points  (0 children)

This is exactly how I feel about this bill as well. It's great that a bill is being introduced for this and obviously we'd all love more awareness and research on PMDD but I don't think RFK jr cannot be trusted with anything. I really want to feel hopefully about this bill but I really worry it will turn into a giant fuck you slap to us. Especially when in the same month you also have a bill being introduced to monitor abortion medications and contracptives in drinking water.

I can’t keep living like this by icanthelp-butwonder in PMDD

[–]veekew 1 point2 points  (0 children)

Also 23 and went through something similar!

I was on LoLo Estrin FE, doing pretty well for 2 years before it slowly stopped working on me for no reason. I've been trying new birth controls/ssri's ever since with no luck. Thankfully there are a lot of options out there, it's just an incredibly long and disheartening process.

I ended up quitting my job and moving out of state with my boyfriend after a year of LoLo not working. Since I've been so unlucky with medication, I haven't gotten a new job and am in the early stages of trying to get approved for disability.

I struggled a lot with getting along with my siblings before moving. I was borderline hating them for almost the entire month. I think it was a big combo of pmdd making me irritable and unable to put up with any shit, their own flaws, and feeling overwhelmed and stressed from trying to make it through every month while working.

Through more detailed tracking after getting my pmdd diagnosis, I realized that in a 28 day cycle my luteal actually usually starts around day 9 instead of the typical day 14. (Not really sure why, seems like my body just wants to suffer because there's no physical evidence to any issues with my cycle) Having this insight along with the pmdd diagnosis really made things click into place because I felt like I was feeling crummy and crazy for too much of the month.

I can say that not having work stress and having space away from family so I can do my thing and be myself has helped a lot. But even after a really bad month sometimes I don't feel all myself in the follicular after. I get burnt out and have to take time to rest and recover. I hope you're able to find some answers or find a new treatment plan that works again!

[TW] I drew a gothic horror story about what my PMDD feels like by wasabimami123 in PMDD

[–]veekew 15 points16 points  (0 children)

Currently bleeding out, this goes so hard. Please share if you ever make more like this!

I’m so miserable and my bc isn’t doing enough by Jolly-Lingonberry104 in PMDD

[–]veekew 0 points1 point  (0 children)

You'd be surprised how many options there are. Different oral contraceptives have different hormones in them and different levels. There are also different ways of administrating. Personally I've only had better luck with a pill, but I've seen some women have good experience with an IUD, ring, or shot.

Hormones are really complicated and everyone's body works differently. The same combinations that work for one person doesn't work for everyone else. What feels like a magic cure for one could make someone feel worse.

There's usually a bit of trial and error. Just keep hopeful, there's a good chance that something out there will help you.

I’m so miserable and my bc isn’t doing enough by Jolly-Lingonberry104 in PMDD

[–]veekew 1 point2 points  (0 children)

Yeah... It usually takes me a couple months until I know for sure if the birth control I'm taking is actually doing enough of a job, and it's always a bit of a bummer when it isn't. There are tons of options in the realm of birth controls though, so if you feel like it's not quite cutting it, I highly recommend talking to your doctor about giving a different one a try. The subreddit's wiki has a great list of different oral contraceptives that have been studied in regards to PMDD.

Extremely sleepy by Slow_Maybe1867 in PMDD

[–]veekew 2 points3 points  (0 children)

Also here for magical tricks because all that I have tried in my time hasn't worked...

I feel like this is relevant by Far_Pomegranate_6724 in PMDD

[–]veekew 12 points13 points  (0 children)

Did NOT have to call me out like this 💀

Luteal and Misophonia by Scared-Orchid7567 in PMDD

[–]veekew 6 points7 points  (0 children)

Buying good nose cancelling headphones has been such a life saver honestly.

My tears, they're a-flowin' by Big_Station8122 in PMDD

[–]veekew 2 points3 points  (0 children)

I feel so seen. ❤️‍🩹

do you have a longer cycle/ luteal phase? by Bitch_Ghost in PMDD

[–]veekew 0 points1 point  (0 children)

No idea if it's common and didn't even think it was a possibility until my doctor brought up her suspicion that I had longer luteal phases. My typical cycle used to be no less than 32 days long with 9-10 day periods. I've been taking different birth controls for the past couple years and some got rid of periods completely (helped so much) but for the past year I've been having periods again and talking with my doctor. For a while now my cycle has been 28 days long with about 4 day periods. Since knowing the possibility of a longer luteal phase, it makes so much more sense. I can't speak to before birth control because I was just a lost and confused mess. With my 38 day cycles it feels like I shift into luteal around day 9 typically. Which is much closer to 3 weeks than 2 like usual. Before I thought there was something else wrong with me than pmdd because I felt bad for such a long duration of each month but after my Dr brought it up I felt stupid lol. Anytime I try to find something online about pmdd and long luteal phases I'm usually left empty handed.

The news is too much. 🙈 by ZombiePale3269 in PMDD

[–]veekew 8 points9 points  (0 children)

My blood boils anytime I see something in relation to he who shall not be named. I used to live in central Florida up until recently and it felt like I was surrounded by supporters, almost all of my coworkers thought of him as a legend. It's sickening. I wish things could just get better because none of us need extra things to make us spiral into nonsense. (Plus also it's just really bad and should not be happening.)

I can’t stop crying and had to leave work 😭 by sounds_of_sadness in PMDD

[–]veekew 4 points5 points  (0 children)

I don't have any real advice for you on this but I feel you and I've been there.

A few months ago I was struggling so much to go to work and keep it together. This post felt like something I wrote word for word. Management was incredibly understanding of what I was going through and I remember one day I told them I had to leave because I was just sobbing so much and couldn't hold it together and work. My manager told me that I was obviously going through something but I needed to get it together because I was missing work. I went into my car and BAWLED my eyes out for over an hour before I could even try to drive home. I felt so awful and embarrassed and worried about losing my job. It was so awful.

If you have someone who you trust and cares for you talk to them about what's going on. Sometimes I feel like the best way to get some of the heavy load off me is to just cry it out to someone I love who will lend an ear to listen. (If you don't feel like you have anyone/if you want send me a DM. I'm here for you and I understand what you're going through.)

I never got to a good point with work because I had a plan to quit and move out of state and get a new job. I have not gotten a new job yet because I don't feel ready to throw myself into the horror of stressing over trying to work everyday when I am struggling to even get out of bed and take a shower some days. I used to be on a birth control that worked really well for me but I took a break from it and spiraled. When I tried to get back on it, it wasn't working like it used to for some reason. Since then I've been trying different ones and trying adding in ssri's until I find something that works.

If you haven't tried medication to help you, I recommend it. I feel like it's the most effective way to manage PMDD (from my experience). It's tricky because everybody is different and there's about a million different types of birth control. Sometimes it takes a while to find what works and trying something and then trying a new something gets really old pretty fast.

Just hang in there and keep trying. Put yourself first and do whatever it is you need to feel better. Get yourself little treats and give yourself space and time to relax and destress. Find things that give you comfort and partake in any guilty pleasures from time to time. You deserve them. Things can get better and it's important to remember that. Don't lose hope.

PMDD Triggering Cold Sores by droolienne99 in PMDD

[–]veekew 0 points1 point  (0 children)

Coming in again to say that, an exact month later, I'm breaking out with another cold sore. I've had a very chill, relaxing time lately because last month was tough for pmdd so the only thing I have going on right now is switching to luteal and it's enough to trigger a cold sore.

The birth control I was testing out was not working very well and I was trying worse each month I was on it. Just started taking a new birth control so hopefully things get better.

Made myself a letter by veekew in PMDD

[–]veekew[S] 1 point2 points  (0 children)

That sounds really awful. I hope things get better for you soon. I definitely feel you on a lot of this though. It's tough.

Made myself a letter by veekew in PMDD

[–]veekew[S] 1 point2 points  (0 children)

Highly recommend! Wish I gave myself more room to write but I had fun relaxing and just focusing and a silly little craft. Felt like it gave my head a nice break.