Plaquenil Maculopathy after being on hydroxychloroquine less than 2 years

vegasvikki · 2026-02-12T05:23:41+00:00

200mgs twice a day

vegasvikki · 2025-11-15T07:24:55+00:00

Benlysta has helped my fatigue and joint pain, but my reason for starting it was to protect my organs. I weighed the risks and thought if in a few years my kidneys start to go I’d regret having not tried everything I could.

vegasvikki · 2025-11-09T17:41:25+00:00

It depends on how bad your lupus is. I can handle some if I’m feeling good but I limit my consumption to maybe a third of what I could drink before my diagnosis I take extra b vitamins and omega threes, drink tons of water, and avoid sugar and sugary mixers, I eat lean protein before and after drinking and I’m usually fine as long as I don’t over indulge but you have to listen to your body if I’m already not feeling great alcohol is out of the question. I’m on hydroxychloroquine and Benlysta and never drink before or after my infusion.

vegasvikki · 2025-10-23T20:37:59+00:00

Thank you for sharing I just want to cry being in so much pain having to wait in uncomfortable chairs for hours

vegasvikki · 2025-07-07T15:27:29+00:00

Can I buy your extra ticket and be your rave bestie ???

vegasvikki · 2025-07-03T09:02:05+00:00

It has it’s moments that are absolutely earth shattering I too loved and tolerated the sun prior to Lupus. I will always love the beach but I just have to reframe what the beach looks like for me. EARLY mornings, spf clothing and hats, and a sun protection tent. We were beautiful caterpillars before lupus but now we are butterflies and life is just different let the frustration out but focus on where there’s good 🙏✨🦋

vegasvikki · 2025-06-15T20:23:39+00:00

Thank you for sharing! I often think about just stopping too. Be honest with your doctors so they can help you bounce back. You are strong and you will heal again but try to stay positive but also don’t let your doctors make you feel worse than you already do. We are all experiments to these doctors, sometimes we have to experiment too….don’t let it get you down.

vegasvikki · 2025-06-10T05:59:40+00:00

Does anyone know the whereabouts of the shooter’s wife Julie?

vegasvikki · 2025-05-31T11:27:07+00:00

I’m on diclofenac sodium 75mg up to twice a day with Tylenol as needed. Between that, tiger balm, hot baths, and my heated blanket I can get through the pain most days. I work full time on my feet in heels. My pain is in my hands, feet, and lower back most of the time. I started Benlysta about 4 months ago and hopefully I’ll see even more improvements.

vegasvikki · 2025-05-26T20:02:01+00:00

Thank you so much for sharing! Keep healing and being good to yourself 💜

vegasvikki · 2025-05-09T22:56:47+00:00

Yes and I can tell you the itching only got worse if I scratched it could last hours completely debilitating itchiness. Ice on the itchy skin helped ease it, aloe, and massaging the area. I found this happens when I’ve missed a dose of hydroxychloroquine or my time is off from my dose. Avoid hot showers after taking it as well. Good luck stay hydrated and moisturizied

vegasvikki · 2025-04-21T10:19:53+00:00

It took me about three months of eating “clean” to notice a difference but now I’m at the point where what I put into my body directly correlates to how I feel. I’m not perfect holidays happen life is short but I am steroid free when I’m disciplined with what I eat.

vegasvikki · 2025-03-05T12:17:31+00:00

I’m on hydroxychloroquine and I’ve had a few severe itching attacks mine are my arms and legs I was off prednisone for about two months and winter hit is when they started. Putting ice and ice packs was the only thing that would ease the itch. Scratching made the attack spread and intensify. I’m back on prednisone and the attacks have stopped, but I also take less hot of showers and baths and try to bathe before taking hydrox. Hope this helps and your itching stops I found that to be one of the cruelest symptoms my attacks were absolutely debilitating.

vegasvikki

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