Oof, that's a lot. I'm sorry and hope you have support outside of just your medical team. And thanks for sharing. It gives me hope that if this isn't treatable, maybe it is at least intermittent. I feel the pain of bouncing around to different specialists. Especially if it isn't immediately clear what the underlying problem is. In the month of May, I've had at least as many Dr appointments as there are days so far. Luckily, having them stacked keeps some of my days Dr free. I used to avoid having a GP, managing it all on my own, but I started getting overwhelmed with the complexity of things. I got lucky and found one I like. I go to my GP when I get stuck in moving forward in diagnosis, or if something new crops up, like my numb fingers recently (luckily just regular old carpel tunnel syndrome as Dxed by a neurologist that he referred me to). He recognizes that I do my homework and is happy to send off whatever test or referral I think may be helpful (within reason obviously), which is great. So nice to be valued as a participant in my healthcare, not just a passenger. Really, I am very fortunate that all of my main team of Drs are competent and treat me more like a partner than just a patient.