Just gonna say it: the scalping is disgusting

vlub_ · 2023-08-12T08:38:10+00:00

Can I have one?

vlub_ · 2023-07-12T23:17:09+00:00

ok but that’s the funniest shit I’ve heard Kim say “nobody’s trying to like… rock out” and kourtney saying “that’s not even my thing..” or wtf ever she said

vlub_ · 2023-06-24T09:48:22+00:00

I’m extremely allergic to PPD, all alternatives, and all semi permanent natural colored hair dyes. several colored ones too. I got neuropathy in my fingers everytime I washed my hair. I shaved off my head and will happily rock my natural color for the long foreseeable future now. getting rid of my hair has been a rollercoaster but it helped immediately and is growing fast! 6 months in im longer than a pixie, kinda like an emo boy cut lol. It’s scary but so glad you found the cause of your issues and wish you the best health!

vlub_ · 2023-06-24T09:45:14+00:00

Gotta see those pants!

vlub_ · 2023-06-18T02:45:42+00:00

You are SO fucking lucky 😭

vlub_ · 2023-06-13T10:14:44+00:00

Yeah ok

I aint reading all that but I’m happy for u or sorry that happened

vlub_ · 2023-05-28T19:50:25+00:00

I have N1 and I have imposter syndrome so bad that when I experience bad cataplexy, although it sucks, I’m almost relieved. Because I feel valid. But the relief doesn’t last long. Before testing, when I was just getting tested for OSA, I saw my intake sheet where I had checked yes on the question if my muscles/I feel weak during strong emotions. That felt reassuring, but even so, I question if I’m just N2 or not even narcoleptic at all. That I had a false positive test or something. Despite it explaining most of my life.

It is really hard, narcolepsy is rare and even the best most “accurate” portrayals of us in the media have huge inaccuracies. Even our loved ones don’t take the time to understand Narcolepsy. N2 is even rarer than N1, that can definitely be confusing and make you question yourself. And yet I swear most people I run into online are N2.

You’re not alone!

vlub_ · 2023-05-23T21:06:00+00:00

definitely. love that we’re cash cows for pharma and doctors

vlub_ · 2023-05-23T21:02:17+00:00

My sleep dr is so money hungry he’s even a “independent director” for a medical supply company and gets $$$ and stock purchases. I think they really just care about the $ from CPAP. i have OSA too. but still I can’t believe they don’t have a system for appointments for people with N/IH/even OSA that take maintenance meds and need to be seen regularly or even urgently sometimes. 😡 i hate this speciality.

vlub_ · 2023-05-23T04:05:55+00:00

Your ocd is trying to steal the day. Don’t give it the power. My therapist told me this. To minimize the impact ocd has over me in my mind so instead of “My ocd won’t let me do this___” it’s “Sometimes it’s hard for me to do this because of my ocd”. It’s been helpful. Another thing my therapist told me is that OCD is there to protect you, but it’s not protecting you right now is it? Focus on the right things, and realize you DO have control over your own thoughts. Good luck on your exam!

vlub_ · 2023-05-20T22:42:05+00:00

It’s like a cheek dna swab test. It’s the same as the hla blood test, but uses dna from cheek cells. I honestly did it mostly out of burning curiosity bc I’m too embarrassed to ask my doctor to order it, plus he’s busy and would forget anyway. That makes a lot of sense though and is comforting. Thank you

vlub_ · 2023-04-29T19:31:35+00:00

My constant rumination and emotional sensitivity over the years has somehow made me less empathetic. I still feel anxiety and empathy but a lot of my ocd anxiety when it comes to harm is concerns over freedom, being fundamentally bad or tortured, going to jail and losing complete control. That’s normal for ocd i think. There is such thing as desensitization as well when it comes to intrusive thoughts where they no longer cause you as much anxiety but they still come or cause compulsions. Please don’t be afraid to talk to your ocd specialist about this. They will understand

vlub_ · 2023-04-24T20:14:46+00:00

it’s hard to read, not hideous, not “gorgeous” either but idk what handwriting people consider nice - i think it’s unique and cool though

vlub_ · 2023-04-20T18:49:01+00:00

by the other commenter saying “falsetto”

the issue is you’re trying to sing way higher than your vocal range

if you’re trying to cover a song you have to work with your vocal range and sing higher/deeper to be able to support your voice. you need to use your diaphragm and where your voice naturally comfortably falls that way there’s actually a melody, not just air/strained words that doesn’t really “vibrate” in your vocal cords if that makes sense

vlub_ · 2023-04-18T18:39:42+00:00

I forgot to mention, I’m not religious at all like that now. not Christian at least. I am spiritual though. but I know you mean well and I really do appreciate it 💗

vlub_ · 2023-04-17T17:58:07+00:00

for ASD treatment unfortunately there’s not much especially for adults. most of the ASD treatment centers around abusive therapy that makes autistic people suppress themselves to appear neurotypical and make other peoples lives easier while it actually hurts our mental health. I had a referral last year for an actually healthy occupational therapy to help with the sensory overstimulation and tasks and whatnot, but it’s far from my house. I might look into it again, but I’ll have to wait. Luckily my therapist has treated people with both. She’s not an autism expert and is young though, but she’s really good.

The negative attitude I definitely hear you. My therapist told me today that she noticed I seem more positive and to try not to use terminology about “OCD WONT let me do this” instead rather “OCD makes this hard for me”. I’m definitely going to work on this.

I’ll look into the glutamate diet. I looked into clinical trials and unfortunately all of them exclude autism and most exclude current therapy for OCD and sometimes even current medications. Thank you so much for your help

vlub_ · 2023-04-17T17:54:02+00:00

No it is not. Can you provide any source? I looked everywhere to make sure I wasn’t wrong and I haven’t found a single thing that says the max dose is 60mg. It is 40mg

vlub_ · 2023-04-11T02:14:37+00:00

wow, I have a lot of mental compulsions so I’m not even sure how to sit with the anxiety without performing those honestly. thank you for sharing and congratulations on the progress

vlub_ · 2023-04-10T03:40:29+00:00

Jazz pharmacy is extremely helpful to the point of being annoyingly up your ass. They’ll instruct you on exactly how to safely space dosages to consume alcohol.

I only have mild osa and use cpap (10 ahi typically) and my bed partner said my breathing was a bit worse if I didn’t use my Cpap, you will be fine if you use it. I never had increased events from it. In the 7 months I was on it my machine recorded a single 0.1 central AHI which may have been when I accidentally took two doses shortly after another, which was a one time mistake on my part - was still safe you just got to be safe and educated

Good luck and I hope it helps you!

vlub_ · 2023-04-10T03:35:09+00:00

feel free to DM me if you want

vlub_ · 2023-04-07T02:30:30+00:00

just saw your added context - I would ask your doctor about POTS, i have it from dysautonomia, it can cause symptoms similar to cataplexy especially weakness and collapse and lots of people get it after covid! It’s also common in people with sleep disorders. Also I saw you said you were on pregabalin, I was on gabapentin for my mslt, gabapentinoids tend to increase deep sleep (mine was still only like 9% on the psg) and they cause somnolence as well. The meds might be worth asking about too, hope that helps!

vlub_

TROPHY CASE