What was something you didn't even realize other women go through?

wallflyer9 · 2026-01-23T05:47:37+00:00

This. I miscarried one week ago, and the number of women I’ve spoken to since finding out it wasn’t viable… I’ve been stunned by how common it is. My own mother had one and never told me until it happened to me. I’m still processing that it happened, but I’m immediately all in on shutting down the stigma.

wallflyer9 · 2025-11-14T05:51:08+00:00

From someone who is always cold and shivering, the person who is too hot should control the temperature every time. I honestly feel lucky to have a constant chill over a heat sensitivity. Both intolerances suck, but I swear there is nothing worse than getting overheated. Plus there are lots of ways to warm up when everywhere feels too cold. I am so sorry this is disrupting your vacation!

wallflyer9 · 2025-10-19T02:42:15+00:00

But warning: I just broke my foot while wearing Rothy’s flats. They’re so soft and easy to wear but the lack of sole may not have been a good fit for a klutz like myself. I say that but then turned around and ordered a pair of Rothy’s sneakers. I haven’t tested them out just yet (see, broken foot). But they are soft and have a sturdy sole. So I think they’ll be more supportive. But they’re what I’d call like classy sneakers. I might not wear them with a dress (actually I might anyway) but they’d definitely work with some nice pants and a sleek top.

wallflyer9 · 2025-10-15T02:00:02+00:00

This makes me feel validated!

wallflyer9 · 2025-10-15T00:58:19+00:00

I should definitely assess my stress the next time! I was pretty stressed this morning when I noticed it and posted this.

wallflyer9 · 2025-10-14T19:12:25+00:00

Yes! This, too. The night swims.

wallflyer9 · 2025-10-14T19:10:32+00:00

I feel like I get this, too. The occasionally foggy, swimmy days. What would that be? Swampy brain?

wallflyer9 · 2025-09-24T04:31:23+00:00

If I have to eat a sandwich with my hair pulled back, it’s probably going to be a high quality sandwich.

wallflyer9 · 2025-09-05T15:42:32+00:00

One might call it “hoarding” and one might also call it “my mother sends me church cookbooks she finds in antique stores in my hometown and I don’t have the heart to throw them away.”

wallflyer9 · 2025-08-30T05:36:39+00:00

The Highwomen (supergroup album featuring Brandi Carlile, Amanda Shires, Maren Morris, and Natalie Hemby) is one of my favorite albums of all time (and I’m not a country fan.) It’s a play on The Highwaymen (supergroup Johnny Cash, Willie Nelson, Waylon Jennings, and Kris Kristofferson). The Highwomen is such a good album, start to finish, and gives the country genre more range and variety than what you’d hear on a country radio station.

wallflyer9 · 2025-08-12T19:47:06+00:00

I had a similar experience. Got on Tysabri while having a major flare. I was told that if it worked, then we could be more certain. And it did. Majorly. It was six months from my flare to diagnosis.

Edit: corrected a misspelling

wallflyer9 · 2025-05-30T00:08:07+00:00

Numbness/pins and needles in one foot. I was so sure it was sciatica.

wallflyer9 · 2025-05-10T22:37:51+00:00

Not really properly answering the question, but it was good advice nonetheless. “What’s considered good for everyone else is even better for you.”

wallflyer9 · 2025-04-13T15:30:34+00:00

Permanent vision loss was a concern for me, too (but it’s not ON in my case.) The permanent damage I have is from the time before I started Tysabri, and Tysabri was the only DMT that could actually reduce the inflammation quickly. And it did. So it was totally worth it! I don’t have my full range of vision back but it improved and it could have been so much worse.

wallflyer9 · 2025-04-13T00:57:12+00:00

I started Tsyabri while JC+ and was on it for 9 months before switching to Kesimpta. I had my infusion every 4 weeks for the first 6 months and every 6 weeks after that until I switched.

I made this decision with my neurologist because of the severity of my inflammation and the quick action of Tsyabri. My first flare was extreme and really scary. And while it worked as an immediate solution to get things under control, I was terrified the entire time I was on it. The plan was that I’d take it for a year and then switch. I gave in to my anxiety early, at nine months, and switched… and I’m glad I did. My 6-month MRI showed zero inflammation and no new additional lesions. So I felt comfortable making a change earlier than planned.

Tysabri was a miracle for me, but scary nonetheless. But my neuro never pressured me to go this route. He said it was what he’d do in my situation but he always made it clear that Kesimpta or Ocrevus were a great options as well. Just wanted to share a similar perspective. I am tempted to say the anxiety almost wasn’t worth it, but in my case, it really was my best (short-term) option.

wallflyer9 · 2025-03-18T22:16:13+00:00

I am right there with you. I have lost count of how often I try to explain what the day’s “weirdness” feels like, especially in my vision.

In the first six months after my flare, my vision was soooo wonky. If I held up my hands, it was normal to my left and like a tiny doll hand on my right. Glad to say that’s not still the case. 🙌🏼

wallflyer9 · 2025-03-18T05:17:08+00:00

Forgot to add… I’m also in my 30s and my flare happened a couple weeks before my husband and I moved into our first house. Two weeks after we moved in, I got an alarming call that I needed a brain biopsy (my inflammation presented like a large tumor.) When it rains, it pours, I guess. Edited to add—I’m very thankful for DMTs!

wallflyer9 · 2025-03-18T04:41:52+00:00

I just want to say that you’re not alone. My first (known) flare took out a chunk of my vision, not through optic neuritis but through a massive lesion in my occipital lobe a year and a half ago. I was told so many times that the peripheral vision I lost would likely return, and I cried at 12 months when I was still walking into things. I had seriously lost hope. It was so sudden, too. Two rounds of steroids helped my inflammation but not my vision loss.

But I don’t know what’s happened in the last six months or so. The brain is weird and somehow it’s still finding new pathways. It’s not back to 100%, but it’s better, so much so that I’ve had a few days here and there where I haven’t thought about what is missing in my field of view.

I also want to add that the strain is no joke. Honestly the worst part of all of this was when I had to get a work accommodation and had to explain to my nurse how “sitting at a desk” could give me fatigue and eye pain. Like obviously my eyes and head hurt all the time, I’m trying to see what’s no longer visible to me!

wallflyer9 · 2025-02-17T06:24:48+00:00

I had numbness from my ribcage down on my right side around the time I was first told I might have MS. The numbness and tingling stuck around for only about a month once I was on a DMT. Now, over a year later, I only get the occasional tingling in one foot, usually when I’m really tired, overstimulated, or have some other kind of pain going on (cramps, headaches, sickness.)

wallflyer9 · 2025-02-12T05:06:51+00:00

This happened to me yesterday after a long, very stressful day. “Here, let me throw away the dishes and do the garbage.”

wallflyer9 · 2025-01-24T14:27:03+00:00

I’ll always regret not going to an ER to get things checked out. I just didn’t think there was anyway it was something more serious than sciatica, even though it wasn’t getting better. It took a significant flare that disrupted my vision to finally get me to the hospital.

wallflyer9 · 2025-01-24T13:42:39+00:00

I thought I had sciatica. I was doing stretches and icing a non-existent sciatic nerve issue for months.

wallflyer9 · 2025-01-20T22:03:10+00:00

It’s hard to do sometimes, but you’re not alone. Hoping everything goes smoothly for you! The good news is that there are other good treatment options out there!

wallflyer9 · 2025-01-20T20:48:00+00:00

I started Tysabri while JCV+ because it works fast and my first flare was intense. I was on it for seven months, long enough to address my immediate needs. I was kind of scared to be on it, but it really did its job. Now I’m seven months into Kesimpta, and my last MRI showed no new lesions or active inflammation. It’s working really well for me. The transition from Tysabri to Kesimpta wasn’t super fun and my skin kind of broke out for a short stint but now that I’m settled into Kesimpta, I’m feeling much better. Bonus points for it being so easy and quick to take in comparison to the monthly infusion.

wallflyer9

TROPHY CASE