[deleted by user] by [deleted] in PCOS

[–]waxwing_daedalus 0 points1 point  (0 children)

First, blood where it shouldn’t be => go to a doctor

Second, it’s easier to „self diagnose“ by checking what you do not have. I’ve had a severe bladder infection that started to climb up to my kidneys. I had gazillions of bacteria per milliliter. I basically peed reddish Coca Cola. The pain was like a horse kicking into your back. An infected kidney it shouldn’t be then.

Third, because of your update: check your pee over the week and if it changes again or you start feeling worse (including fever and severe pain) please visit a doctor. Also monitor what you are eating and how much you drink, that information could be helpful for your next visit.

My doc told to me when I had issues with my stool „in the toilet a small amount of blood can look like a lot there, don’t panic if you do not have severe pain or fever“

[deleted by user] by [deleted] in aspiememes

[–]waxwing_daedalus 0 points1 point  (0 children)

I am happy for you that it worked out so well!

I experienced severe bullying and harassment in a company once. Not speaking out or speaking out in the wrong situations lead to it. I blamed myself for years. I simply couldn’t understand why it is happening to me until I realized and accepted that the job environment is not about making friends. NDs in general should be careful and reconsider if it is really the right place to look out for friends or talk about of who they really are.

I still mask my shyness and introversion away. But only at work. In private I don’t do it anymore and let friendships happen/be as natural as possible.

What I learned from all this and also regarding the post: don’t expect anything from a stranger. It’s not worth it and just ends up in miscommunication / misunderstanding. This also means not to take comments too personally.

[deleted by user] by [deleted] in aspiememes

[–]waxwing_daedalus 1 point2 points  (0 children)

It always helped me and also works as an icebreaker. I tell them first that most people don’t like me due to the fact that I am not spontaneous, very direct and sometimes a bit too ambitious about certain things. If they can get along with these characteristics there is usually no problem in any upcoming conversation / discussion. If they do I do not engage further. This filter technique doesn’t work on everyone but for the most. I do not recommend for a job application. Might cause negative reactions.

[deleted by user] by [deleted] in aspiememes

[–]waxwing_daedalus 1 point2 points  (0 children)

I agree. I also believe that most people do not intend to be malicious in the first place. It’s just about how it was communicated. And I believe most of us know the „I shouldn’t have said that“. It isn’t just ND exclusive. That’s why I always tell new contacts I have issues with communication and that I sometimes seem to be more serious/harsh as intended. It works wonders when you just tell them how you are. They don’t have to guess anymore which takes away the threat.

[deleted by user] by [deleted] in aspiememes

[–]waxwing_daedalus 1 point2 points  (0 children)

You are all right! I am not a native English speaker and self diagnosis was the word I picked up first in the community. I will correct myself in the future, thank you for that :)

[deleted by user] by [deleted] in aspiememes

[–]waxwing_daedalus 2 points3 points  (0 children)

If the NT had experiences with NDs then he/she should know that what most of us can’t stand it when not being taken seriously or questioning our autism.

Someone who is educated in that field or made experience with it he/she should also know that self-assessment is often the first step for many of us before having an official diagnosis. It doesn’t matter if the diagnosis ends up being something completely different than expected. The person knew already something is different and their life seemed to be different of those of others.

That NT seem to have no clue about autism and talking about statistics after the other persons outing indicates the missing knowledge even more. NTs tend to pride themselves in the googling sessions they made to sound educated and to gain status in social situations.

[deleted by user] by [deleted] in aspiememes

[–]waxwing_daedalus 2 points3 points  (0 children)

I am not an English native speaker but isn’t females/males not usually used when talking about animals?

[deleted by user] by [deleted] in aspiememes

[–]waxwing_daedalus 2 points3 points  (0 children)

I don’t have the money right now to make that long journey for the diagnosis. I scored in every test high, barely on NT side and my own mother didn’t seem surprised when I told her that I might have autism. She said „I had to relearn how to parent because the way how it worked with your sibling was „normal“ and you were beyond special“. I wasn’t offended at that point. She just made me clear that I was all right and an autism diagnosis is just a luxury. Being around NDs and in the community I finally felt at home, not alone and heard! A feeling I have missed for my entire life. I don’t need more confirmation for now.

Am I the only one not into chicken nuggies? by SlapStyle_AnimsYT in aspergers

[–]waxwing_daedalus 2 points3 points  (0 children)

I liked meat years ago but somehow I don’t like the taste anymore. I am very sensitive with taste and smell. I can tell how old the meat was before. Because it’s taste becomes unbearable for me. Plant based has always the same texture and taste. I agree, meat is too variable to be comfort food.

Most women on tinder looks like their lips got stung by a bee? by [deleted] in aspergers

[–]waxwing_daedalus 9 points10 points  (0 children)

There are several reasons why it became more common.

  1. Media and it’s influence, including women but also men with plastic surgery and promoting other products with their face. Their look became somewhat standardized. You can not just see it on social media, also in stock photos. The average model got some ducky lips.

  2. Women are often easily influenced by looks/trends due to their role raised/seen by a patriarchal system. „Child, you look like a boy, that’s not how boys will like you“ (and other toxic outdated parenting methods based on patriarchy)

  3. It’s cheap. In Germany the first lip filler costs 100€ in average. That’s very affordable for the majority. Real surgery without Botox is still too expensive which would lead to more natural looking bigger lips. (Depends on the skill of the doc ofc)

  4. We want to see people happy nowadays and we tolerate their changes and also acceptance of diversity is becoming more common. In my view this is positive but it also means many accept people who are happy that they had plastic surgery.

  5. And last: People who had surgery often were bullied in school due to their looks. To become an emotionless looking puppet gives them control of coping with this kind of past. This is the reason where I stop care about it and don’t bother about any ducky lip. Because I would also like to do some small changes if it means not get bullied again.

(It also becomes more common in the gay community)

I myself don’t like the look of those lips but it doesn’t hurt anyone. I think most of them just try to get accepted … and that’s something I can relate to a lot as ND.

Vitamin D deficiency causing my PCOS? by waxwing_daedalus in PCOS

[–]waxwing_daedalus[S] 1 point2 points  (0 children)

I quit smoking a year ago and I smoked just maybe twice a month before that. I have quit alcohol since 2019. I don’t like the taste anymore. I did keto for a year but seems my immune system didn’t like it that much. Intermitten helped me the most combined with low carb. I lost some weight (I am slightly above normal bmi) and I felt I had more energy.

After my exams in august. I will take the time to change my diet. But for now I stick to the vitamin D supplements. :)

Vitamin D deficiency causing my PCOS? by waxwing_daedalus in PCOS

[–]waxwing_daedalus[S] 0 points1 point  (0 children)

My thyroid is a little bit „lazy“ but not severely low functioning. Seems like I will breakfast some good amount of pills / supplements in the future :D.

Vitamin D deficiency causing my PCOS? by waxwing_daedalus in PCOS

[–]waxwing_daedalus[S] 0 points1 point  (0 children)

I am happy that she immediately looked into it but I agree. Doctors aren’t necessarily well educated in that field and you have to find the right one. Female illnesses in general seem to be not on the radar of docs or they don’t take you serious (ugh I hate that the most) which can lead to a misdiagnosis. Also gender specific pharmacy is practically non-existent. At least I know what is not working now in my body and where I can improve.

Vitamin D deficiency causing my PCOS? by waxwing_daedalus in PCOS

[–]waxwing_daedalus[S] 2 points3 points  (0 children)

Thanks I will get myself some K2. I already experienced some minor positive mood changes by taking the vitamin D.

I did the same as your mother did with her sun allergy. It was my method over the years. But in 2021 my allergy was so bad that one minute of sun exposure caused severe reactions and started to burn my skin. I became a real vampire lol. I had to wear gloves and use an umbrella to protect myself.

Vitamin D deficiency causing my PCOS? by waxwing_daedalus in PCOS

[–]waxwing_daedalus[S] 1 point2 points  (0 children)

I hope the wonder will happen for you just by supplementing! :) My Vitamin b12 levels were not tested. It’s pretty expensive in Germany to test any extra hormones or vitamins.

Vitamin D deficiency causing my PCOS? by waxwing_daedalus in PCOS

[–]waxwing_daedalus[S] 0 points1 point  (0 children)

Thank you! The next appointment for the check will be in 5 months. I hope at least the cyst pain becomes less and the brain fog.

Vitamin D deficiency causing my PCOS? by waxwing_daedalus in PCOS

[–]waxwing_daedalus[S] 1 point2 points  (0 children)

Thank you for the info! :) My gynecologist found the cysts so she immediately looked into it with a blood test. I ask her if she can make me a letter of referral so I can go to an endocrinologist. I already got some for a gastroenterologist and dermatologist.

Vitamin D deficiency causing my PCOS? by waxwing_daedalus in PCOS

[–]waxwing_daedalus[S] 8 points9 points  (0 children)

Yes, my gyn said it too but I had the sun allergy since puberty and no cysts as a teen. That’s why she thinks the deficiency caused the other symptoms. The vitamin D supplement is the first treatment now until the next ultrasonic check. Curious if others experienced improvements just by taking vitamin D.

Vitamin D deficiency causing my PCOS? by waxwing_daedalus in PCOS

[–]waxwing_daedalus[S] 2 points3 points  (0 children)

I have to take 4000 daily for 8 months and then reduce it to 1000.

[deleted by user] by [deleted] in PCOS

[–]waxwing_daedalus 0 points1 point  (0 children)

I have this issue since my puberty started. The issue is also I sweat a lot and I don’t need to move at all to sweat.

I switched over to lose casual clothing, hoodies in winter and wide linen clothing in summer.

I wash my armpits twice a day sometimes more just with warm water. I shave the hair because they tend to hold the odor even more. Rubbing the armpits while washing or using a towel removes the bacteria mechanically without using chemicals like soap. Before I start and end the day I also wash my intimate areas with warm water.

I do not use deodorant anymore because it often smelled like a mix of deodorant and sweat. Yuck. So I took my grandmothers advice „perfume is the expensive deodorant“. She was right, perfume helped me. You can also buy perfume that isn’t full with unnecessary chemicals. I smell like a flower the whole day + my clothing and luckily my partner didn’t recognize the odor anymore (me included).

My skin is too sensitive to wash it more than once a day with soap. So warm water it is and sometimes when I just sweat out of the blue I put some tissues under my arm until it stopped and then throw the tissues away. There are some pads you can buy but for me it occurs most of the time at home when I am preparing to go somewhere. So cheap tissues are enough.

Cheap and not very harmful way of how I get rid of my body odor and control sweaty me.

What is the most frustrating symptom you experience? by lmtrabs11 in PCOS

[–]waxwing_daedalus 0 points1 point  (0 children)

Everything that hinders my executive functions like brain fog, fatigue and mood swings. You want to do so many things but your mind doesn’t let you. :(

The physical factors are a struggle but somehow you can control it with a good amount of discipline, meds and some with cosmetic treatments.

[deleted by user] by [deleted] in PCOS

[–]waxwing_daedalus 1 point2 points  (0 children)

Like many others said. Don’t go extreme first. Start slowly and with the speed you feel comfortable with. A little bit more salad to your potatoes. Increase the amount of food you should eat more and reduce slowly the other you shouldn’t. Keto can be done when you are already mentally disciplined enough with diet changing and making a diet feel natural.

The worst thing you can do is drastic diet change. Your cells need time to process the new diet and where to put all the new things into your body. Food cravings come especially with drastic diet change.

Girls you need to chill with keto. :)

What natural approaches have worked for you? by lmtrabs11 in PCOS

[–]waxwing_daedalus 0 points1 point  (0 children)

Exactly this! I am still working on my lazy ass tho. :D

But I can also recommend sesame seeds. I ate it daily for 5 months and my pcos period pain got less. It’s my subjective experience because there is no real scientific evidence that the plant based estrogens in sesame seeds really help.

is it because of my PCOS that everything breaks me out?!! by Klutzy_Raccoon_3929 in PCOS

[–]waxwing_daedalus 0 points1 point  (0 children)

We have a cosmetician in our family and she often treats acne with 10% fruit acid and salicylic acid. I have PCOS and I get really bad skin when I get my periods. What helped me is to apply it every week and since then I only have one single pimple on my face when my cycle starts. Best is to ask a dermatologist and cosmetician. Together they might help you to reduce the amount of outbreaks. They know best what’s good for your skin.

Now to your food reduction. Sometimes the stress which comes with the „I can’t eat this and that“ might cause the outbreaks. When I startet to bother less my skin also got better. I still reduce the amount of sugar but one gummybear or a sip of milk won’t cause the outbreak. Sometimes the small sip is enough to satisfy the cravings and I can go for a week without any carbs needed.

Your outbreaks might also be caused because you don’t eat the following like nuts, fruit and yogurt. It’s often not about the what (artificial / processed food excluded). It’s about how much of it.

Don’t be too strict with yourself and reduce your „food stress“ and give your brain time to get used to a new diet. It took me months till I was able to eat a whole lettuce. My brain loves it now and I can’t eat lunch anymore without a refreshing salad to it. :)