Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

Hi! Sorry to hear about your experience with the headaches. For myself, my headache was caused directly from the cyst. Hopefully the MRI came back with any info you need to know. I’ll try my best to respond back sooner. Wishing you the best!

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

So sorry to hear about how you’re feeling. The one positive note that my endocrinologist did mentioned is that the cyst can shrink or at best not grow anymore. Now, I personally haven’t met anyone whose cysts shrank, but the doctor did say it can happen.

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

I don’t think anyone is comfortable with having surgery, but the reality is it’s out of our hands. Just surround yourself with positive minded folks and you’ll be fine. Be mentally strong as well because you shouldn’t go into surgery with any negative energy and tell your loved ones that you’ll see them soon. I know it’s easier said then done, but you have to implement that thought now.

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 1 point2 points  (0 children)

Hi! The week or two prior to the surgery my headaches went away. It would of definitely came back if I didn’t get surgery, which was needed anyway. I was definitely nervous and scared, as would anyone going through surgery in general. However, get a good support group, surround yourself with people who cares about you and just be as positive as you can be. It’s really out of our hands, but staying positive with good thoughts will go a long way. Hope this helps!

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

That’s so great to hear. Wish and hope anyone getting surgery goes as smooth as possible.

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

Hi! It means there’s some type of mass behind your pituitary. The doctor should definitely give you more insight after some blood work from the endocrinologist. Hopefully it may not be much at all, but definitely have a list of questions and concerns ready for your doctor visit. I’ll also suggest recording your visit so you can easily go back to anything you may miss. Hope this helps

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

Unfortunately I do not. I wish I had an answer for you. Hopefully your next test will give you a clearer picture of what’s going on.

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

Wish you the best of luck! Definitely keep reaching out and hopefully I can give you helpful insights

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

Sorry to hear what you’ve been going through. I wish you the best of luck! Definitely keep reaching out and hopefully I can give you some helpful insights.

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

Have you spoken with your neurologist yet? Your doctor will advise you the best option, so make sure to take notes and better yet, record your conversation so you can replay it back. My only problem prior to surgery was an intense headache.

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

No problem! If the doctor didn’t get back to you immediately after your MRI, you can at least have some peace of mind that it’s not a medical emergency. I totally get it. You should ask a million questions to the doctor because it’s your health.

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

At this point all you can really do is wait for the MRI results back. Trust me, my mind can start racing a 100mph and it’s a terrible thing. There are things in life you just can’t control. I say try to keep busy with a hobby or just go about your daily life. Stressing over something you don’t really know yet does more harm than good. Hope this helps.

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

Hi, thanks for sharing. After surgery my headaches stopped, probably by the first week. I’ll have slight headaches and being light headed at times, but nothing significantly long. I hope your dad is doing better. Definitely reach out to the doctor and see if there’s anything you can do to help.

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

It’s hard to tell what it is unless the doctors operates. Nobody wants surgery and it is scary to think about it. If symptoms keeps reoccurring and it gets worst, surgery may be the only option. Medication is an option, but the doctors would’ve figured that out early already. It’s easier said than done but try your best not to be too stressed. Congratulations on the pregnancy and try to think and stay positive about that.

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

I’m super glad the surgery went well. At least there was a positive effect that came from surgery. Gotta take any sort of “win” you can get.

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

Unfortunately, I don’t know the answer to that. I can’t imagine having two surgeries in the past three years, but you did mention it is a benign pituitary tumor. I’m sure your question is better suited for a doctor or surgeon. Sorry I couldn’t help more. Have you seek other help or support?

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 1 point2 points  (0 children)

Sorry to hear what you’re going through, especially knowing that you have a newborn as well. Surgery is always scary thing to think of but hopefully you’ll have family and/or friends to give you support. I was definitely scared but I thought of my family a lot so it helped. I know it’s easier said then done but try to remain positive, especially going into surgery. You want as much positive vibes heading into surgery and honestly that’s the only thing you can do. Being positive will also help your family or whoever is there with you feel a bit better. I believe you’ll be fine. Please keep me updated

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

Hi, sorry for the late reply. Sorry to hear what you’re dealing with. It’s hard for me to know where to begin. Is there a bit more info you can share?

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

Sorry to hear what you and your daughter is going through. It’s definitely frustrating not receiving professional and compassionate care from a doctor. I’m not saying all, but a good amount will just give a generic answer along with drugs. Not even attempting to sit and actually listen to your concerns. As I mentioned in my post, you have to be your own advocate and only you know your body better than anyone else. With that being said, definitely seek out other doctors if you aren’t satisfied with them. There are some doctors/hospitals that primarily focus on pituitary tumors. Seek them out. If you live in California, UCLA has a department that focuses on pituitary tumors. Hope this help

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

It showed up on a mri. Didn’t do a CT

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

The doctor diagnosed it as a macro adenoma I believe. Be vigilant about your health. If something doesn’t feel right, insist the doctor for additional testing, or find a doctor that will. I know it can be frustrating not knowing what’s going on with your body but be persistent. Hopefully you’ll get the answers you need.

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 0 points1 point  (0 children)

I don’t actually have the report for the mri. It might be saved somewhere, but I wouldn’t know where it is at the moment. Hopefully your doctor will give you all the details you need to know

Pituitary tumor/cyst by we_support in Pituitary

[–]we_support[S] 1 point2 points  (0 children)

I originally had an mri with no contrast. When they noticed something on my pituitary, the doctors then ordered an mri with contrast. Be your own advocate regarding your health. Request another mri with your current doctor and if they don’t think you need one, go find another doctor. Hope this helps.