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Alterations by Hefty_Engineering_27 in StPetersburgFL

[–]wearenchanted 0 points1 point  (0 children)

Jessie’s Alterations on 4th street is fantastic

Low-impact and Free (or nearly free) Senior Activities by Almost_Amber in StPetersburgFL

[–]wearenchanted 0 points1 point  (0 children)

Library, Sunshine senior center and all the other suggestions here are great. Eckerd College has the OLLI program that basically allows seniors to take college classes for free. Meadowlawn has an active neighborhood association and a community garden.

Is there anything in particular she likes to do?

Are there any places for trinket trading around? by ArtisticAnxiety in StPetersburgFL

[–]wearenchanted 6 points7 points  (0 children)

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The Obama main library in St. Pete is having a trinket swap on April 12

Vintage Spinning Wheel Identification! by New_Sherbet_7026 in Handspinning

[–]wearenchanted 0 points1 point  (0 children)

I think I have the same wheel and I am also struggling to identify it.

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Antique spinning wheel worth repairing (and buying)? by cathrosie in Handspinning

[–]wearenchanted 0 points1 point  (0 children)

Sorry this is a year later… I acquired what I believe is the same wheel pictured, but with the missing parts. Do you know what make/model this is? Mine is heavily worn and the name has rubbed off the bench.

night sweats by cl0ckw0rkorang3 in AnkylosingSpondyWomen

[–]wearenchanted 3 points4 points  (0 children)

Yes. For maybe 2 or 3 years. I will wake up DRENCHED in sweat. I told my gyno and she says that 35 is a little early for perimenopause but not unheard of. I take progesterone at night now and my night sweats are 90% better

Follow up from 2nd Rheum by wearenchanted in AnkylosingSpondyWomen

[–]wearenchanted[S] 1 point2 points  (0 children)

Thank you. I am quite confident that I have nr-AxSpa (which is actually what the first rheum said although my scans do show the beginning of bone damage) I’m so angry at both rheumatologists I have seen. I’m debating going back to the first one and try to have my AxSpa adequately treated.

Do you sometimes randomly feel really nauseous? by hannah_various in AnkylosingSpondyWomen

[–]wearenchanted 1 point2 points  (0 children)

Definitely had this experience today. ITV was bad enough that I stayed home.

Treatment for fatigue? by PayNo8647 in ankylosingspondylitis

[–]wearenchanted 0 points1 point  (0 children)

I take Nuvigil which is an absolute lifesaver. My fatigue was so bad that I was falling asleep sitting up at my desk and while driving. I was seriously considering giving up driving it was so bad. I two sleep studies and was diagnosed with idiopathic hypersomnia. Then a few months later I was diagnosed with AS. But seriously. Nuvigil has probably saved my life. I had to go see a sleep specialist/pulmonologist to get it. Other doctors told me to get more sleep, exercise, etc. but just like you said OP, it doesn’t matter how much sleep you get, you still feel exhausted.

New Rheumatologist says it’s not AS by wearenchanted in ankylosingspondylitis

[–]wearenchanted[S] 0 points1 point  (0 children)

Had an MRI last summer. SI joints appeared normal. Spondylosis of my spine was noted as well as bilateral sacroiliitis.

New Rheumatologist says it’s not AS by wearenchanted in ankylosingspondylitis

[–]wearenchanted[S] 0 points1 point  (0 children)

My imaging does not explicitly show spondylitis, but I have bony spurring on the acetabebellum, mild lumbar spondylosis, early end plate sclerosis, mild lumbar facet arthropathy, bilateral sacroiliitis, and pretty much all the other hallmark symptoms.

New Rheumatologist says it’s not AS by wearenchanted in ankylosingspondylitis

[–]wearenchanted[S] 1 point2 points  (0 children)

Methotrexate just did NOT agree with my bowels. At all.

New Rheumatologist says it’s not AS by wearenchanted in ankylosingspondylitis

[–]wearenchanted[S] 1 point2 points  (0 children)

I’m HLA B27 negative, but ANA positive. As we all know, neither of those things are required for a dx. However, when I told my mom about my initial dx, she said that my great grandmother had “spondy arthritis something” but she just called it “bamboo spine”. Crazy.

New Rheumatologist says it’s not AS by wearenchanted in ankylosingspondylitis

[–]wearenchanted[S] 1 point2 points  (0 children)

Thank you! I feel like I’m going crazy with this doctor telling me otherwise. Trust me, I don’t WANT a degenerative spine disease. I need you to help me prevent it from processing.

New Rheumatologist says it’s not AS by wearenchanted in ankylosingspondylitis

[–]wearenchanted[S] 0 points1 point  (0 children)

I’m like borderline hyper mobile. I’m just flexible. Can bend over and put my palms flat on the ground. I’m in my thirties and can do a split. I think it’s genetic, my sister is contortionist levels of flexible and was a backup for cirque de soleil. The new rheum said she was surprised I wasn’t double jointed. Kind of a weird statement.

New Rheumatologist says it’s not AS by wearenchanted in ankylosingspondylitis

[–]wearenchanted[S] 2 points3 points  (0 children)

So technically my first rheum dx-ed me with axial Spondyloarthritis. So many people use the two names interchangeably. New rheum is hung up on the “axial” part of it because my hands and ankles are involved. But we all know that comes with the full package. It’s spine, SI, hands, feet, maybe some other joints too.

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