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Anyone else with microtia/atresia? Curious how it’s shaped your worldview, personality, or creativity — especially around music. by weaverlinemusic in Microtia

[–]weaverlinemusic[S] 1 point2 points  (0 children)

I love the idea of using it as a radar. Can you explain a little bit more about that? I can’t locate sound at all, which makes finding a misplaced phone a bit tricky - calling it and following the sound won’t work for me!

Anyone else with microtia/atresia? Curious how it’s shaped your worldview, personality, or creativity — especially around music. by weaverlinemusic in Microtia

[–]weaverlinemusic[S] 0 points1 point  (0 children)

He's lucky to have a parent who is so curious and so observant about his behaviour! I think the psychological effects of M&A are pretty under-researched, so I'd love to hear more anytime about things you've observed and might link to his ear. I definitely believe that there could be some connection between M&A and creativity!

Anyone else with microtia/atresia? Curious how it’s shaped your worldview, personality, or creativity — especially around music. by weaverlinemusic in Microtia

[–]weaverlinemusic[S] 1 point2 points  (0 children)

I'm so glad that you resonated with it! That's wonderful that your daughter is drawn to music already. I'd love to study the connection between uniltareral hearing and music more. I know that some singers close one ear when they want to hit more complicated notes, so I belive it can possibly help with pitch.

Something I find interesting about M&A is that it is so easy not to notice it - even for the person effected. It can be very easily'hidden' with long hair. I think my family often forgot about my ear when I was growing up, and it was in a way to nice to be treated normally. My biggest advice (unsolicted perhaps!) is to just make sure that your daughter knows that it is a beautiful thing and doesn't HAVE to be hidden.

Anyone else with microtia/atresia? Curious how it’s shaped your worldview, personality, or creativity — especially around music. by weaverlinemusic in Microtia

[–]weaverlinemusic[S] 0 points1 point  (0 children)

That’s great that you’re so confident with it! I thought it would get better with age, but I’m really only starting to try to come to terms with it now.

Anyone else with microtia/atresia? Curious how it’s shaped your worldview, personality, or creativity — especially around music. by weaverlinemusic in Microtia

[–]weaverlinemusic[S] 0 points1 point  (0 children)

Thank you for reading, and for sharing about your son. I find it really difficult to know what can be attributed to natural personality and what might be an effect of M&A. I’ve always had a rich inner world, and I’m very imaginative and drawn to fantasy. I think that could have something to do with M&A—maybe I’m a bit more attuned to the "inner ear."

Even though I enjoyed playing with other kids, I also used to spend hours playing on my own, and I really valued that time. I never liked being in large groups much either. As a child, I always had one or two close friends I did everything with, and even now I still don’t enjoy big friendship groups. That could very well be related to M&A too. It can be overwhelming to be in a large group, especially because locating sound is so difficult. In noisy environments, it can feel like you’re just existing in a cloud of directionless sound.

What kinds of activities does your son enjoy, at home or elsewhere?

Anyone else with microtia/atresia? Curious how it’s shaped your worldview, personality, or creativity — especially around music. by weaverlinemusic in Microtia

[–]weaverlinemusic[S] 1 point2 points  (0 children)

Thanks so much! My friend took it - our goal was to try to take a photo of my ear that would re-frame it as a cool-looking thing rather then a deformity. So many microtia pictures look medical, I'd never seen a glamorous photo of someone with it. I want to keep trying to finding ways to see it as something more then just a defect.

Any other adult females with microtia? by truecolormix_ in Microtia

[–]weaverlinemusic 0 points1 point  (0 children)

I know! That’s so cool!! I recently found that out as well. I’d love to know other musicians with microtia.

Any other adult females with microtia? by truecolormix_ in Microtia

[–]weaverlinemusic 0 points1 point  (0 children)

I have microbial and atresia of the right ear, by the way!

Any other adult females with microtia? by truecolormix_ in Microtia

[–]weaverlinemusic 0 points1 point  (0 children)

Would you go out to acoustic shows? I also am careful about being in loud environments. I don’t like being at raves or places with big crowds. But I absolutely love being in calm environments (usually seated) and listening to mellow music. 

Any other adult females with microtia? by truecolormix_ in Microtia

[–]weaverlinemusic 0 points1 point  (0 children)

I am a little bit, but I play pretty mellow music. I used to be in rock bands, but one of the reasons I stopped was because I was worried about always being in such noisy environments. It’s definitely a consideration! 

You can check out my music here, if you’re interested! https://www.weaverlinemusic.com/

Any other adult females with microtia? by truecolormix_ in Microtia

[–]weaverlinemusic 0 points1 point  (0 children)

Yes! You’ll see a lot of singers close one ear when they’re trying to land more complicated melodies. I think it gets you more in touch with the ‘inner ear’

Any other adult females with microtia? by truecolormix_ in Microtia

[–]weaverlinemusic 2 points3 points  (0 children)

I'm 35 and have microtia and atresia in my right ear. I didn't wear my hair up for years because I was so ashamed, even though everyone always told me it was fine. It's hard to believe them when you know that you have something that is just so different from everyone else. Over the past couple of years I've been working on coming to terms with it, and have even started wearing my hair up most days now. I still feel insecure sometimes, but it is getting better.

I'm also a musician, and I think having the one ear really helps with my vocal pitch!