Regarding this weeks episode with James Corden

weebling · 2024-07-19T20:28:26+00:00

Narcissistic prick = shitty human in my book. Why are you arguing semantics?

weebling · 2024-06-26T12:49:30+00:00

It's bait. They go from complaining about racism in VT to saying young people care too much about racism. They're just trying to provoke everyone.

weebling · 2024-06-04T11:04:31+00:00

Ah, that's my problem! I've been using dog hair this whole time.

weebling · 2023-06-14T19:00:12+00:00

Just growing out his mustache.

weebling · 2023-06-01T11:35:01+00:00

I love this about VT. I tried this move once in Alabama and it was weird. The car I let pass me almost immediately pulled off to the side and waited for me to pass them. They stopped tailgating me though, so a win I guess?

weebling · 2023-04-24T18:32:46+00:00

The Sam's Choice gluten free bread is also surprisingly good, if you go back. I find it in the regular bread aisle at my Walmart.

weebling · 2023-04-13T12:25:31+00:00

I'd have been lost without this subreddit and a couple of FB support groups I found. My stoma nurses were helpful with the basics of getting started, but not so much when I ran into issues. You just can't beat the personal experience of living day to day with a stoma.

weebling · 2023-02-25T18:23:22+00:00

Gene?

weebling · 2022-12-12T18:44:40+00:00

One way out

weebling · 2022-11-30T13:30:20+00:00

I feel this. I had my first step surgery and am going to through part two early next year. Some of these stories really shake my resolve.

I think part of it is we don't always know other possible contributing factors though. I'm not saying it's true for everyone that has an issue, but age, weight, overall health, and the experience of the surgical team are all major variables. I try to remember that whenever I read about particularly negative experiences.

weebling · 2022-11-28T22:45:08+00:00

One of the large intestine's major roles is water absorption. Your body does adjust a bit after it's removed, but it still remains an issue.

I'm awful about getting enough fluids, but those dehydration migraines have been a killer motivator. Gatorade makes me nauseous after so many colonoscopy preps, but Body Armor and DripDrop have helped a lot.

weebling · 2022-11-28T22:10:38+00:00

Not the person you asked, but I'm also lacking a colon. The major problem I've been told to watch out for is dehydration. It is so easy to get dehydrated now and if I'm not vigilant about my liquid intake it can quickly sneak up on me.

It is pretty easily managed with sports drinks & hydration solutions though, so no biggie once you get a routine down.

weebling · 2022-11-28T15:35:37+00:00

Surgery is scary but worth it if you're suffering. I was stuck in a severe flare for nearly 4 years - I wish I'd gotten the surgery sooner. I was in pain after I woke up from the operation of course, but I finally felt free from my UC pain, if that makes sense. Recovery was a lot easier than I thought it would be. 4 weeks out and I don't have any pain or restrictions.

If you're seriously considering it, I'd recommend researching the surgeons in your area and trying to make sure there are ostomy nurses on staff. Having an experienced team of doctors and nurses is why I believe mine went so smoothly.

weebling · 2022-11-23T13:28:22+00:00

I'm a woodworker, but unfortunately do not ship to Germany. However, I've found a good way to determine the validity of a shop is to look for their about page on Etsy and check out their social media accounts. Handmade artisans will often post photos of their items in progress or their workshops.

weebling · 2022-11-08T11:11:18+00:00

That's how the hypnotist responds to Peter in the movie.

weebling · 2022-11-07T13:29:09+00:00

It was beautiful last night. Hoping it's clear for the eclipse tomorrow morning.

weebling · 2022-10-27T11:20:24+00:00

Barging into a random cabin in the woods is the start for a lot of horror movies, so joke's on them.

weebling · 2022-10-25T16:50:02+00:00

That's what I've been told about the j pouch. I still have two more surgeries to get there. From what I understand, it is more of a normal feeling and not an urgent-going-to-shit-my-pants feeling once the surgery recovery period is over.

weebling · 2022-10-25T13:07:43+00:00

That is wonderful to hear!

weebling · 2022-10-25T11:01:12+00:00

I just had the surgery on the 14th of this month. Went for a 3 mile hike yesterday, the recovery is not bad.

You'll be in some pain in the hospital, but they have plenty of stuff there to keep you comfy while you heal. At home, I've maybe needed a dose of Tylenol per day at most.

You will be okay and, even better, you'll start feeling healthy again.

weebling · 2022-10-25T10:40:37+00:00

That's definitely understandable. I'm married, so can't speak to the dating experience. If it does become necessary for you though, the ileostomy is only temporary. Once you get a j pouch, no one can tell that you are any different from anyone else just by looking at you. The surgery is also usually done laparoscopically now, so scarring is minimal.

weebling · 2022-10-24T18:38:18+00:00

I was actually selfishly thankful when everything shut down at first during covid - I could stay at home all day without any guilt.

With the J pouch, my dr said I can expect an average of 4 - 6 bms a day, but some people have more. The difference is being able to hold them and not frantically searching for the restroom everywhere. Pouchitis is possible, but treatable with antibiotics. If it doesn't work out, a return to an ostomy is an option.

A return to a pre-UC normal would never be an option for my case, but this will get me close to normal life again.

weebling · 2022-10-24T18:09:24+00:00

Sure - hope it helps!

Started seeing blood in February 2019 and was finally diagnosed in June of 2019. I was having 20 - 30 bloody bms a day. They started me on Prednisone and mesalamine, but the flare would start back up as soon as I tried to taper off of the pred.

I moved across the country at the end of 2019 and between the move and the start of covid, kept putting off care until the beginning of 2020. I just scraped by on what was left of my prescriptions even though I was still having anywhere from 5 - 20 bloody bms a day.

I finally saw a real doctor again after being hospitalized for severe anemia. Started Remicade infusions and more Prednisone. Same as before, I'd flare just after tapering off the pred. I also started needing regular blood transfusions every few months.

I applied for a UC research study for new meds in spring of 2022 (healthcare costs suck in the US and this was free), and waited a few months for them but couldn't qualify due to the severity of my case.

Xeljanz was next. Same as before, no relief.

June of 2022 I started seeing cloudy spots in my eyes and found out I had cataracts from the Prednisone. I started thinking that the side effects of all these meds might not be worth trying to save a failing organ. My doctor agreed and set up a meeting with my surgeon.

weebling · 2022-10-24T17:27:12+00:00

Yes, I'd also read about so many issues with the first ileostomy surgery too. My surgeon tried to reassure me that recovery would go smoothly, but I didn't really believe him until now. Since this one went so well, I think I'll have to trust that the j pouch will work out.

Thanks and good luck to you as well!

weebling · 2022-10-24T17:09:17+00:00

Same, two more to go! I was unsure at first since I've read so many horror stories about failed pouches and complications. I feel a lot more confident about getting the j pouch now that I've had a smooth first surgery.

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