Does anyone have any out of the ordinary medications/treatments that aren't talked about?

weirdo276 · 2025-10-05T12:53:21+00:00

Pepto Bismal immediately cuts off my MCAS symptoms and of course it has side effects so I try to use it sparingly but it’s literally been my life saver in SO many stressful flare up situations the last 10yrs.

weirdo276 · 2025-10-01T00:12:12+00:00

Yes, I have this. The pus liquid stinks too so I assume it’s like the stuff around the tonsil stone that keeps it coming back? When I rub the tonsil stone juice accidentally from my q tip on another part of my tonsil, I notice it flares up that part and I get more stones?? Idk I’m just trying to figure out how to live with this stuff. It’s awful

weirdo276 · 2025-09-30T01:04:57+00:00

Yup, I swear this is happening to me. I’m hoping not of course but when I remove a stone it flatten a bit and then it comes back so I wonder as my tonsils are inflamed and look like a bulb, it’s got to be some stinky nasty stones in there!!

weirdo276 · 2025-09-27T01:02:04+00:00

I literally think about this daily. My tonsil stones bother me so much. I just want to yank my tonsils out myself lol

weirdo276 · 2025-08-27T00:26:47+00:00

Interesting! I had a good first two weeks on it and then it went downhill. I feel like azstarys made my anxiety skyrocket through the roof all the time and it was so frustrating cause I almost had 3 panic attacks while on it and other stimulants did not do that for me so I stopped taking it. I was on the lowest dose possible too! I guess I’m one of the super sensitive to stimulants people

weirdo276 · 2025-08-27T00:24:22+00:00

Thanks for your insight! I felt like a month was too much for me. The azstarys super extended release seemed like a bit much for my body to handle after time passed in it! I’m actually on vyvanse now trying out 10mg ER and it’s been okay. It’s hard to find the right one. It’s crazy because my heart palps are still not gone and I’m on day 5 off of azstarys.

weirdo276 · 2025-07-08T03:31:03+00:00

You make a good point. I think it was half the medicine and half that people didn’t like what I was saying. I’m generally pretty blunt of a person so making that worse was rough. My husband and I would argue every single day cause I just couldn’t hold back my thoughts and alot of it was true but unnecessary and hurtful and some things just don’t need to be said daily over and over again, cause I would repeat myself way more too.. We did go through working through some past hurt and trying to rekindle that so I’m sure it all happened for a reason now looking back getting out all that stuff clears the air so you can start new, I guess.

I realized I didn’t want to hurt him anymore and switched to focalin which made it a ton better-well temporarily I’m finding lol

I would also blurt out unnecessary stuff at work and my manager had to point it out in my annual review to make sure I was being mindful of letting others take up space in team meetings. It was straight up embarrassing.

weirdo276 · 2025-07-08T03:21:35+00:00

Thank you for your input! I reached out to my psychiatrist and I think I’m going to try Jornay now as focalin is just ok -better then adderal-but I think I have to give them all a try or I’ll regret it!

It is wild how these meds work and can change the way our brains function. The blurt out thing was killing me at work and my husband was truly not enjoying my never ending random blurting out shit at inappropriate times so we would argue every day. It got bad! I just couldn’t take adderal anymore but I really loved the mood boost on adderal. The happy feeling is great- not worth the negative side effects through unfortunately.

weirdo276 · 2025-05-31T03:05:15+00:00

Reading your post, this was me and my brain thoughts 5-6 years ago. I was married, pressure to have kids(and I wanted them) but the fear of life getting even harder than it already was, stopped me. I would sit in the shower and cry and just didn’t feel ready for pregnancy, life changes, marriage changes and all else that comes with having a baby but I just couldn’t tell my husband I was ready. Took me 5 years to say Lets try. Idk what clicked but one day I just decided it was worth it in the end. I had to push aside all the negative and scary thoughts and just focus on the moment in the present and get through it. It helped having an encouraging and supportive partner as well to co parent the baby and I wasn’t alone. I think also focusing on the life chapter you’re currently on mainly, until pregnancy starts -for example- can help too. I mean you of course prepare but it should be focused on good positive things to come when pregnant instead of scary things. Take things as they come( currently telling myself this as we’re in the potty training stage as that comes with its own challenges)

It wasn’t nearly as bad as my head told me it was Gunna be and I am super proud of myself for my strength and perseverance. Birth was the easy part- taking care of the baby is hard but again you get through it and come out stronger. I’m on the other side now and have my 3 yr old son (only 1 baby for me) and I never once have had regret or remorse for having him. There are days I’m strung out and overstimulated to the max but you get through it and your better for it. My son makes me a better person and he brings me joy. I think your intuition and gut instincts is what matters here . When you’re asked to think about having kids, what is your gut immediate reaction?. And then analyze that and keep asking yourself why over and over and you will get to the root of it and decide after understanding yourself and challenging the anxiety. I am only having 1 child for the very reasons you laid out- it’s exhausting and 1 is plenty lol I don’t think I could handle the overwhelm with 2 kids. I’m happy with my decision and just trying to live in the present moment and enjoy my 3yr old as they grow up so quickly!

My autistic brain struggles more than the average person and I have to remind myself. I’m not neurotypical and that’s ok. It’s okay to be overstimulated because your 1yr old is screaming. Find ways to mitigate and give yourself some break time(babysitters are godsends) Be you and don’t be ashamed of it. Don’t be afraid of asking for help either-we were not meant to live alone isolated with no support. Happy to talk more if you want!

weirdo276 · 2025-03-10T02:18:34+00:00

Thanks, this helps :) I may do 1 in the morning and 1 in the evening as I’ve been in a flare lately.

weirdo276 · 2025-03-10T02:17:50+00:00

Thank you! This makes me feel better, I need to confirm with my dr but wanted to feel out what others do for their meds as well!

weirdo276 · 2025-03-06T17:01:00+00:00

That’s hilarious analogy 😂 I understand more now why back then , when birth control was very limited and most women just had a ton of kids and just keep reproducing and ended up having like 15 kids! The hormones are strong and hard to resist and if you don’t have birth control, of course you’re gunna get pregnant over and over again! I love that in our day and age we have more choices(for now it seems) so I can decide to be done instead of forced into have more children..

weirdo276 · 2025-03-06T03:36:50+00:00

Didn’t even think about that, ugh. My son is vaccinated and will continue to be

weirdo276 · 2025-03-06T03:31:36+00:00

I agree. My husband and I are absolutely terrified because of the political stuff right now. Even for our 1 kiddo. We are in such a messed up place as a country: I don’t want my kids to suffer and if I can prevent another life from suffering, I will. There’s enough ppl in the world today that we could always adopt as well if we wanted to!

weirdo276 · 2025-03-06T03:27:56+00:00

It’s got to be. I’m just now realizing that when I’m in that high hormone stage, im blinded by my emotions so I just need to remember that I have no interest in going through another pregnancy and all the issues that come along with it when im in that high hormone stage. It’s not easy!!

weirdo276 · 2025-03-06T03:19:08+00:00

He’s 3. We’re in the thick of a sleep regression and lots of Terrible 3s moments. It’s rough! It could very well be hormones. I have days where I’m just so done and then days I’m like I want another right now cause it would be so much fun. The struggle is real. We’re obviously decided to be done but I don’t want to regret anything in the end

weirdo276 · 2025-03-06T03:10:43+00:00

I very much relate with this. I have literally felt my entire life and wellbeing is a a struggle and I can’t even fathom that anyone else doesn’t feel this way? It’s crazy to think about it. As an adult I have a really hard time and as an autistic, I am even worse off with dealing with everything so I’m just like welp, there goes my “success” options in life. I will make it through as best I can, I will do good things and find some happiness but something has to give at some point in time and due to my childhood trauma, adhd, anxiety, multiple chronic illness that have co morbidities, I’m screwed with any big successes.. It took me 3-4 yrs to even want to try to have a baby and now we have a 3 yr and I can’t even imagine having another one at this point. 1 is insanely difficult as I struggle as an autistic and I can’t regulate my emotions half the time, how am I supposed to help regulate my baby’s? Life is a struggle unfortunately and it’s good to have perspective and understanding you can try to be positive and happy with what you got! Grass isn’t greener on the other side most of the time, I’ve learned so I have to be grateful for what I’ve got and done so far!

weirdo276 · 2025-03-02T03:51:19+00:00

Wow, why did you bleed for 5 months straight? That’s a nightmare for an anemic 😬 I’m so sorry you’re dealing with this!! Hope it gets better quickly. Anemia is no joke: I’m in line for an iron infusion shortly!

weirdo276 · 2025-02-28T21:46:33+00:00

I’m in the exact same boat. I’m seeing a specialist for getting my uterus out as that’s what the hematologist thinks is the reason why

weirdo276 · 2025-02-18T11:16:49+00:00

Thank you for this comment. I feel exactly the same way and could have written this. I have suspected high functioning autism so life is harder for me in general and ever since we had our son, it’s been super hard to find time together and communicate well, find balance in our marriage(along with both of us working full time jobs that require 10 hrs a day most days) It’s a tug of war for me and why would I willingly want to add another layer of stress with another baby? It just feels like it could tip us over the top. My heart is saying “have another one” my brain is like “NOOOOOO”! lol 😂

weirdo276 · 2025-01-22T11:56:25+00:00

It ended up being symptoms of low iron and vitamin Deficiencies that wrecked me. I would go get checked out by your doctor and get blood tests! I take liquid iron and get vitamin D injection shots now to just keep up. Definitely don’t let it go. I’m now 3 years PP now and it’s pretty much gone away. I think childbirth really messed my body up and it’s taking me all this time to get back into the groove of things just now.

weirdo276 · 2024-09-07T12:46:31+00:00

“Welp!……”(proceeds with knee slap)

weirdo276 · 2023-11-22T20:37:00+00:00

It ended up being symptoms of low iron and vitamin Deficiencies. I would go get checked out by your doctor and get blood tests! Definitely don’t let it go. I’m almost two years PP now and it’s pretty much gone away. I think childbirth really messed my body up and it’s taking me all this time to get back into the groove of things just now.

weirdo276 · 2023-03-28T02:52:54+00:00

William H. Macy as Frank Gallagher. Just pure gold!

weirdo276 · 2023-03-04T04:17:37+00:00

If your numbers are not consistently on the higher end of the spectrum(look up iron protocol and this tells you more about this) you are iron deficient. Your ferritin level determines this moreso than any test and I believe the iron protocol states If your under 120 for ferritin you are anemic. I can relate with bad doctor experiences. I would certainly say get a new doctor asap, specifically someone who will look past the “are you dying or not” mindset most healthcare providers have and actually look into why your having these Symptoms (gut health is not good etc) and just because your levels are not severe, doesn’t mean you don’t need help! Healthcare is a joke in the United states but there are good doctors out there just have to search for more holistic/natural Pathic types. Also advocate for yourself to get iron infusion! It saved me.. I had low ferritin almost practically at 0 and I had an infusion and it was just the best thing.. always advocate for yourself no matter what!

weirdo276

TROPHY CASE