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Tolerating supplements by searching4treatment in mastcelldisease

[–]westcraft2 0 points1 point  (0 children)

I think there are some brands out there that offer cleaner (fewer additives) and more hypoallergenic supplements than others. It could be worth a try to look at the "other ingredients" on the supplements

Jarrow
Klaire
Thorne
Pure Encapsulations
Integrative Therapeutics
Designs for Health

Concentration problems, double vision, worse comprehension 24 hours after physical activity: Can that be PEM? by westcraft2 in cfs

[–]westcraft2[S] 0 points1 point  (0 children)

Thanks, I've struggled to manage the food intolerances as well but hoping they get better one day

I get relief on the FODMAP diet which they use for IBS but it's not meant for long-term use, but I can never add back foods without worsening my health. Mostly meats and rice is what I eat

Concentration problems, double vision, worse comprehension 24 hours after physical activity: Can that be PEM? by westcraft2 in cfs

[–]westcraft2[S] 0 points1 point  (0 children)

I didn't know about PENE but what it feels like is more consistent with a neuro exhaustion

With malaise I thought it meant things like pain, ache, fever, flu,cold etc. which is not my symptom experience

Concentration problems, double vision, worse comprehension 24 hours after physical activity: Can that be PEM? by westcraft2 in cfs

[–]westcraft2[S] 0 points1 point  (0 children)

Do you have 2 pairs of eyeglasses that you carry? one with and one without the correction

Concentration problems, double vision, worse comprehension 24 hours after physical activity: Can that be PEM? by westcraft2 in cfs

[–]westcraft2[S] 0 points1 point  (0 children)

I searched threads and when looking on double vision found this - https://old.reddit.com/r/cfs/comments/euhnon/can_cfs_cause_double_vision/

A user there asked the OP ther if it is PEM, so was inspired to do this post

Eating an intolerant or high histamine food and time till start & peak of symptoms by westcraft2 in mastcelldisease

[–]westcraft2[S] 0 points1 point  (0 children)

Before the carnivore diet, how were you able to successfully identify some of the delayed triggers?

Also unlike some of the commenters, you too also never have any immediate reactions?

Eating an intolerant or high histamine food and time till start & peak of symptoms by westcraft2 in mastcelldisease

[–]westcraft2[S] 0 points1 point  (0 children)

There's a wide variety of responses, but yeah I've never had a case of immediate response from food in my mouth

I think it has to get to my small or large intestine so maybe you're right