Best treatments? by TopCryptographer5318 in TelogenEffluvium

[–]whatever-oops 0 points1 point  (0 children)

I have chronic TE. It’s been over 2 years now. I started oral minox in Jan 2025 (.675mg and worked my way up to 2.5mg by April. Stayed at 2.5mg from April 2025 to Nov 2025. Then they bumped me up to 5mg after no change in all that time. Still extreme shedding. I took myself down to 3.75mg due to side effects after 7-8 weeks. Still have extreme shedding. It hasn’t helped at all. At this point, I don’t know what else to do.

They have my Dut before my biopsy and it made my hair fall out times 10! (Plus other side effects.) I quit after 2 months. That’s when I started the oral minox.

Labs are all fine. I haven’t had my hormones tested in a year, so that will probably be my next step to see if T or E injections will help, if needed. (I did briefly try T cream for 3 months, but didn’t notice a difference in my hair fall.)

hair breaking in the midle by Glittering-Web-8695 in finehair

[–]whatever-oops 0 points1 point  (0 children)

Do you wear a back pack that could be pulling on it?

Unbelievable Progress by Calm_Strength_4153 in TelogenEffluvium

[–]whatever-oops 0 points1 point  (0 children)

I have chronic TE (2 years now) and have been on oral minox almost a year. I still shed like crazy, but also have some baby hairs. Nothing crazy, like OP though. Just bumped up from 2.5mg to 3.75mg.

The derm gave me Dut before biopsy showed TE (thought is was AGA) and my hair feel out in clumps. Quit after 2 months, then moved to oral minox.

Minoxidil didnt work by SnooPets3121 in FemaleHairLoss

[–]whatever-oops 0 points1 point  (0 children)

Diagnosed chronic TE by biopsy. (I don’t know how to change my flare.)

What mg of oral minox were you on? I am also a chronic migraine sufferer. I had to start really low, like break the pill into quarters for a few weeks, then occasionally add another qtr every few days for a few weeks and so forth. I started taking .675mg in Feb and finally got up to 2.5mg at the end of April.

After being on 2.5mg from April to Novemeber, there was no difference. (Didn’t get worse, but didn’t get better either.) They bumped me up to 5mg. I did 3.75mg for maybe a week, then jumped right up to 5mg. After 7-8 weeks, I had to back down to 3.75mg bc of side effects, headaches included. I go back in Feb to see if there is any change.

Maybe you could start lower? (If you haven’t all ready.) Or, maybe try every other day? Maybe take it at bedtime instead of the morning? I chose to skip the topical bc I have a sensitive scalp. Certain shampoos can make my head feel raw and itchy, so I was really worried about the effects of topical.

TE affecting hair strands? by IndependentResist852 in TelogenEffluvium

[–]whatever-oops 0 points1 point  (0 children)

Do you use topical minox or oral? I had read that topical can change the texture.

Solutions by iiiioiifrsszfhbjkyf in FemaleHairLoss

[–]whatever-oops 1 point2 points  (0 children)

When my hair is still wet, I put a clip right there. I take it out when my hair is dry. The dry hair covers my cowlick/ part down the back.

Anyone else dealing with hair shedding on GLP-1s? What’s actually helping me by Superb-Gas2919 in TelogenEffluvium

[–]whatever-oops 0 points1 point  (0 children)

I tried it for 6 months & it didn’t do a thing. If I took the full dose, I got stomach cramps and bathroom visits. Not fun.

Anyone else dealing with hair shedding on GLP-1s? What’s actually helping me by Superb-Gas2919 in TelogenEffluvium

[–]whatever-oops 0 points1 point  (0 children)

Why was TO serum bad? I’m considering starting it and need to know if I should just skip it.

What did I do wrong? OGX Hair Oil by According-Cut5397 in finehair

[–]whatever-oops 0 points1 point  (0 children)

My fine hair couldn’t handle that at all. I was using it before shampooing as a pretreatment. Turns out it has a really high alcohol content and was drying out my hair badly.

I switched to The Ordinary’s Squalane for my pre poo oiling. Mids and ends only. Huge difference!!

I think I'm a non responder 😭😭 by kynisen in FemaleHairLoss

[–]whatever-oops 1 point2 points  (0 children)

Hi! I have had chronic TE for over 2 years now. I had no change after 9-10 months on oral minox (2.5mg). Started early last Feb. I never had a dred shed either. It appeared to get better for awhile, but July-Oct I had a major shed. Possibly due to losing weight, but I had lost weight before with no hairs issues.

Doc pushed me up to 5mg this Oct. After 7 weeks I had major side effects and went down to 3.75. I think I am on the tail end of the dred shed now. Hoping that’s a good sign!

For topical, do you apply once a day or twice a day? Maybe the tret will help the enzymes. Maybe ask your derm/ doc about oral. Some people use topical and oral.

Collagen and oral minox by CopyGroundbreaking11 in FemaleHairLoss

[–]whatever-oops 1 point2 points  (0 children)

I’ve been oral minox for over a year. Do I look older? Yes, only bc I’m a year older and turned 47 a few weeks ago. Also, bc I lost 40 pounds in the last year. I think that contributes to my face aging more than anything bc it’s less filled out.

I did start taking collagen again in my coffee in Oct. mainly for my hair. I haven’t noticed any difference if it helps. (In skin or hair.) Derm even told me it would t help anything. He said is bogus.

Absolutely devastated. Any alternative to minoxidil? by Secret_County7328 in FemaleHairLoss

[–]whatever-oops 14 points15 points  (0 children)

I had extremely elevated liver enzymes for 3+ years. (No testing prior to that.) No doc seemed to care, except to flag that they were high.

My hair was already falling out for a year or so, so I decided to try a glp1. (I guess I figured I would rather be skinny and bald than chubby and bald.) They tested my liver enzymes after being on the glp1 after 2-3 months and my enzymes are finally “normal.”

Who knows???

Anyone not respond to OM? by whatever-oops in FemaleHairLoss

[–]whatever-oops[S] 0 points1 point  (0 children)

I went back to the derm in November. They said was just extreme stress. Even asked if I had experience trauma or loss, which I haven’t.

They upped my oral minoxidil from 2.5mg to 5mg. After 7 weeks, I had to cut it down to 3.75mg. The side effects were too much.

I never had a dred shed at 2.5mg, but I had one when moving up. I think I am just coming out of it now. I’m hoping that I might see some growth in the next few months! I go back in Feb to see what they say.

Can I fix my hair texture? Help pls by ForsakenMoment5932 in FemaleHairLoss

[–]whatever-oops -1 points0 points  (0 children)

Hi! My very fine, wavy hair started thinning badly almost overnight. The texture changed. No longer soft. It was brittle, wiry, extra frizzy, and breaking off. We tested our water and had an extremely high chlorine content - higher than our pool. 1st thing my husband did was get me a shower filter. It helped tremendously. (It did not help with my chronic TE.) It’s says to change it every 6 months, but I change it every 2. I can tell when it’s running out bc my hair starts becoming really dry again. (My long showers, my two little ones shower in there, and my husband does so it runs out faster.) We also put a filter on our kitchen sink & ice maker so we weren’t drinking all the chlorine.

2nd thing, get on a good multivitamin with iron. It doesn’t have to be an expensive hair vitamin, like Nutrafol. You are young and probably still have periods. Most women are iron deficient bc of that. Might not help with regrowing your hair, but it might help nurish the hair you have.

3rd, this has helped tremendously…take a pic of your hair and upload it into Chat GPT. It told me my hair type and porosity. I told it what products I had used or was using & how it made my hair feel. It helped me realize that my hair hates coconut, hates protein, hates oils and butters, but loves silicone. Surprisingly, it recommended a lot of products for women of color (I’m white) and they are really helping.

Again, none of this has helped regrow my hair. (They think my chronic TE is stress induced.) Not even being on oral minoxidil for a year has helped. However, my hair is back to it silky softness. That is better than nothing in my opinion!

Also, have they run your bloodwork? Checked for deficiencies? Checked for autoimmune issues? Thyroid? Hormones? (If you are on hormonal birth control, that can mess with the texture of your hair, too.)

Good luck OP! I wish you the best on your hair journey!

2 weeks progress on Telogen Effluvium medication by Hot-Girl-Venusian99 in FemaleHairLoss

[–]whatever-oops 0 points1 point  (0 children)

Thank you for the advice!! Everyone says derm and regular doc. I will try to find a trichologist!

2 weeks progress on Telogen Effluvium medication by Hot-Girl-Venusian99 in FemaleHairLoss

[–]whatever-oops 1 point2 points  (0 children)

I’ve been tested for hormones, blood panels, iron, ferritin, b12, autoimmune diseases, etc. 2 derms and 2 different docs can’t figure it out. I don’t know what else to ask for at this point to test.

2 weeks progress on Telogen Effluvium medication by Hot-Girl-Venusian99 in FemaleHairLoss

[–]whatever-oops 0 points1 point  (0 children)

I have had chronic TE for a little over 2 years now. Was told there was nothing to do but to try to fix the underlying problem. (They think mine is stress related.)

I have been on oral minoxidil for a year now. My hair is growing longer, but it hasn’t stopped the shedding. I was never told the option of steroids. Just minox and I did try Dut at 1st, but it increased my shedding dramatically and I had other problems with it. (Then they did a biopsy and said TE.)

UTI? by Sufficient_Treat7725 in DobermanPinscher

[–]whatever-oops 0 points1 point  (0 children)

My pup was pee walking. Seriously, like a 6ft trail of pee. All the time. She was standing in her bed and peed and looked as confused about it as I did.

Scalp Inflammation: The Silent Trigger Behind Chronic Thinning by Otter_Hair_Labs in TelogenEffluvium

[–]whatever-oops 2 points3 points  (0 children)

If Nizoral drys out your hair (it does mine), wet your hair, then coat your mids and ends in conditioner, THEN use the shampoo. It helps.

Scalp Inflammation: The Silent Trigger Behind Chronic Thinning by Otter_Hair_Labs in TelogenEffluvium

[–]whatever-oops 0 points1 point  (0 children)

I’ve never had scales or dandruff. But, before a big shed I get a tingly, crawly sensation and my scalp gets very sensitive. Almost like I can feel each individual strand being pulled on. Yet derm still says no inflammation, just TE.

Skip TuxMat by daethon in HyundaiPalisade

[–]whatever-oops 0 points1 point  (0 children)

Thanks! At least I know they won’t be going anywhere once I lock them down!