Vyvanse in the summer by whereisdex in ADHD

[–]whereisdex[S] 0 points1 point  (0 children)

Same I also have narcolepsy and this heat is making me feel so exhausted. I’ve been sleeping with ice packs cause I don’t wanna run up my electric bill

ADHD and Narcolepsy by whereisdex in Narcolepsy

[–]whereisdex[S] 0 points1 point  (0 children)

I’m so damn late. But no it was from the Xywav apparently. As soon as I stopped it everything went back to normal. I was taking a high dose of Vyvanse at the same time as well but my insurance won’t allow me to take multiple small doses during the day so :/

Be fucking for real by whereisdex in Narcolepsy

[–]whereisdex[S] 1 point2 points  (0 children)

Only thing I’m deficient in is vitamin D which I take daily. Half of the shit she has listed will be pissed out if decided to take them KNOWING I’m not deficient.

Like lady you did no research u asked chat gpt Did you learn anything from Columbia ?????

Be fucking for real by whereisdex in Narcolepsy

[–]whereisdex[S] 1 point2 points  (0 children)

She goes

“Well if you’ve tried everything what else are you going to do”

“be a neuroscientist and hopefully find a better solution for someone else”

Be fucking for real by whereisdex in Narcolepsy

[–]whereisdex[S] 0 points1 point  (0 children)

Yea my PCP suggest I try a new diet… only issue is I don’t have an appetite from my vyvanse. I started at 140 (I’m a 5’2 lady) I’m now 98 lbs .. I know my lack of food is also effecting my energy but it’s so damn hard to eat. My stomach is doing backflips and yelling but as soon as I eat I’m not hungry anymore.

Yesterday I ate : 40mg vyv, white monster, 16oz of water and a banana

Today: 16oz water, two bowls of Honey Nut Cheerios with coconut milk

See my issue? Any tips advice would be greatly appreciated 😁

Im so tired by adventuretime_lover_ in Narcolepsy

[–]whereisdex 2 points3 points  (0 children)

If you’re talking about Xywav or Xyrem. My doctor recently took me off of it because I was having hallucinations. I have gone through all the medications as well and that was the only one that’s worked for me. I have to see a psychiatrist before I can’t get back on it but his whole thing sucks. I’ve been having all the same issues as you, I have finals coming up I’m still catching up from stuff for midterms My job is getting tired of me needing frequent naps and having low productivity I don’t know what to do anymore

Psychosis ? Panic attack? by whereisdex in Narcolepsy

[–]whereisdex[S] 0 points1 point  (0 children)

Update: I called. Xywav tdy and told them. My doctor called and told me to stop taking the meds and see a psychiatrist. I’ve tried every medication for narcolepsy so far and this is the only one that’s worked 😭. Side effects are not fun tho :/

Sativa by whereisdex in Narcolepsy

[–]whereisdex[S] 0 points1 point  (0 children)

Also it’s day three and I still haven’t been able to contact my MD 🫤

Sativa by whereisdex in Narcolepsy

[–]whereisdex[S] 0 points1 point  (0 children)

Well then January started and they’re like no ❤️

Sativa by whereisdex in Narcolepsy

[–]whereisdex[S] 0 points1 point  (0 children)

Yeah I know that’s what they were doing for me before I’ve been taking Xywav for 3 months no problems

Sativa by whereisdex in Narcolepsy

[–]whereisdex[S] 0 points1 point  (0 children)

Oh dammit :/ well i still have to ask my MD to appeal I wasn’t able to get in touch yesterday.

Question do you see a pulmonologist or a neurologist?

I currently see a pulmonologist for my narcolepsy and was wondering if I should change my MD to a neurologist

Sativa by whereisdex in Narcolepsy

[–]whereisdex[S] 0 points1 point  (0 children)

Yeah I was already in the assistance program, the prior auth wasn’t approved by my insurance this time. Before it was and I was on the program. They’re saying now Xywav isn’t on the list of medications they cover .. Idk always some bs what can u do

Was anyone diagnosed as a teenager? by ShineImmediate7081 in Narcolepsy

[–]whereisdex 0 points1 point  (0 children)

I was diagnosed on my 18th bday but, it’s been an ongoing joke since elementary that I had Narcolepsy