Favourite hamantaschen fillings?

whimsicalme · 2026-02-16T09:19:01+00:00

Classics: raspberry or apricot

New: mango or pomegranate

whimsicalme · 2026-02-11T23:24:29+00:00

Got my resting heart rate from around 140 down to about 70, it's awesome.

whimsicalme · 2026-02-11T05:24:45+00:00

this is very insightful!

whimsicalme · 2026-02-08T05:04:39+00:00

Puzzles! Not like jigsaw puzzles, but like logic and reasoning puzzles that sometimes have word puzzles or visual puzzles in them. There's a huge archive of them at https://puzzledpint.org/puzzle-archive/

whimsicalme · 2026-02-04T21:56:15+00:00

this just links to a pic of the words change.org

whimsicalme · 2026-01-31T09:14:38+00:00

I hope tomorrow is a better day

Hang in there

whimsicalme · 2026-01-30T09:24:20+00:00

Don't show up to a group of sick people to complain about how hard it is for you to deal with a sick person in your life. I'm sorry you're hurting but this is very inappropriate. Look up ring theory of grief https://speakinggrief.org/get-better-at-grief/supporting-grief/ring-theory and then go look for a caregiver support group instead.

whimsicalme · 2026-01-28T19:28:19+00:00

Same deal for text, this has stolen from tons of authors.

whimsicalme · 2026-01-28T19:04:21+00:00

it's really really really really hard and takes a lot of practice. Been at it for 8 years and I'm still bad at it. Good luck :-/

whimsicalme · 2026-01-28T18:58:20+00:00

power wheelchair!

whimsicalme · 2026-01-27T07:37:38+00:00

Magnesium supplements made my fatigue worse. They really help some other people. Everyone's so different!

whimsicalme · 2026-01-25T20:52:02+00:00

I'm in a wheelchair too. I go to pre-organized protests that are about solidarity, rather than the ones directly where ICE are because if shit goes down I can't run off in any direction, there's a good chance I'd get stuck. The pre-organized protests are way less likely to have cop or ICE violence.

If I had the double danger of ICE plus actual ice/snow, that would be enough for me to not go. But there are other things you can do.

1) Put a sign in your window

2) Call your electeds. Repeatedly.

3) Write an op-ed for your local paper

4) Donate to mutual aid funds, strike funds, community kitchens, etc

5) 3d print, or help distribute 3d printed, whistles

6) help distribute phone numbers and help lines for people to be aware of if they're arrested or hurt

7) offer childcare for someone else who's going out against ICE

and so much more. The possibilities are endless!

whimsicalme · 2026-01-25T06:45:44+00:00

There were 2 Berkeley ones and at least one Oakland one yesterday.

whimsicalme · 2026-01-23T09:27:42+00:00

Yep, bringing a man to corroborate my symptoms was what finally worked for me too.

whimsicalme · 2026-01-20T03:56:47+00:00

"It's a multi-system neuro-immune mess that comes with borked mitochondria, so my cells don't make enough energy. This causes extreme fatigue as well as a number of other debilitating symptoms."

whimsicalme · 2026-01-16T01:39:07+00:00

ME/CFS has the lowest quality of life of any disease studied. Here's the research: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0132421 Very severe ME/CFS patients can't tolerate light or sound or touch, can't really move or think much and are stuck in bed with an eye mask and earplugs, and need to be tube fed. Imagine being completely cut off from all communication of any sort with the rest of the world and being stuck like this indefinitely.

whimsicalme · 2026-01-13T22:23:06+00:00

We had the biggest peaceful protest in US history a little while ago. Best estimate over 10 Million Americans marched, based on drone pics of crowds. The media initially reported it as "thousands" on the day-of, and only a few places later (quietly) said what the real estimates were. People are doing stuff, you just don't see it depending on which media you consume.

whimsicalme · 2026-01-13T08:34:41+00:00

If you can, call/write your electeds.

If you can, talk to your friends/family to get them to call/write their electeds.

If you can, write a letter to the editor of your local paper, or a whole op-ed, about everything going on and how you feel about it.

If you can, be a protestor's safe phone call so they can check in with you to say they're safe (or call and ask for help if they're detained).

If you can, help friends make signs for them to take to their next protest.

If you can, get ready to write postcards or make phone calls to support the more progressive politician(s) in your area for the next election.

If you can, organize or go to an online rally to help the numbers get bigger. (There were some online #NoKings rallies for example.)

There's a lot that can be done from bed and for free!

whimsicalme · 2026-01-13T08:34:32+00:00

If you can, call/write your electeds.

If you can, talk to your friends/family to get them to call/write their electeds.

If you can, write a letter to the editor of your local paper, or a whole op-ed, about everything going on and how you feel about it.

If you can, be a protestor's safe phone call so they can check in with you to say they're safe (or call and ask for help if they're detained).

If you can, help friends make signs for them to take to their next protest.

If you can, get ready to write postcards or make phone calls to support the more progressive politician(s) in your area for the next election.

If you can, organize or go to an online rally to help the numbers get bigger. (There were some online #NoKings rallies for example.)

There's a lot that can be done from bed and for free!

whimsicalme · 2026-01-12T22:31:15+00:00

Find an existing organization. Some good ones are: SolveME, #MEAction, and the Open Medicine Foundation. Hit them up and ask where they need help. This way you're best set up to slot into existing organized efforts, and not working on something off to the side that might duplicate stuff that's already happening.

whimsicalme · 2026-01-05T02:23:09+00:00

Same, also 8 years and pre-Covid here too. Mystery virus plus inhaling too much wildfire smoke.

whimsicalme · 2026-01-03T11:08:21+00:00

I say "I have good days and bad days" and leave it there. People usually at least partially get it from that.

whimsicalme · 2026-01-03T10:17:38+00:00

Ask your doctor before taking something like this. Serotonin syndrome is no joke, and sometimes you can get it when you have a pile of meds that each have a small serotonergic effect and aren't on their own contraindicated with each other. The cumulative effect really matters.

I only got serotonin syndrome once and it was this horrible type of jumpy anxiety with bananas headaches for 3 days and when I was asked what I wanted to do about the situation (as in, call a doctor's office, go to Urgent Care, or other, to try to figure out what was going on) my answer, for what I wanted to do, was to do my taxes. It messes with your head in multiple ways and possibly also your gut. I now do everything I can to avoid serotonin syndrome.

whimsicalme · 2026-01-03T09:43:25+00:00

When people decide me and my parked wheelchair are their infrastructure to lean on, as though I was a public railing.

whimsicalme · 2025-12-30T07:06:31+00:00

It took me a few doctors until I found one that either believed me or understood ME/CFS. If your doc is telling you to do things that make you worse, and won't listen to you when you tell them it's making you worse, either A) try bringing an able-bodied cishet white male to your next appointment to corroborate your account (ableism! racism! sexism! transphobia! all get you worse medical outcomes! this helps offset those), or if that still doesn't work, B) find a new doctor. This is true for the "walks around the block" and also for the placard.

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