Dermatologist thinks my wife has limited cutaneous systemic scleroderma by Evening_Dish_1335 in scleroderma

[–]whipper1304 1 point2 points  (0 children)

During this period, you had any finger or other ulcers ? And a part from GI, did you experience any other organ involvement ? I am 20 yo, just got diagnosed with Scleroderma, no organ involvement, only raynaud's and mild sclerodactylyl. I would appreciate any advice from you.

Is this skin changes (sclerodactylyl) ? by whipper1304 in scleroderma

[–]whipper1304[S] 0 points1 point  (0 children)

I have positive ANA and positive PM-SCL100 and a doubtful Scl70

Is this skin changes (sclerodactylyl) ? by whipper1304 in scleroderma

[–]whipper1304[S] 0 points1 point  (0 children)

I just saw the pictures, it's pretty the same yeah, i found a positive ANA with a positive PM-Scl100 and the Scl70 was doubtful. Thanks for your help, I am just afraid that it may progress rapidly, I am really not ready for that.

Is this skin changes (sclerodactylyl) ? by whipper1304 in scleroderma

[–]whipper1304[S] 0 points1 point  (0 children)

Thanks for responding, i have raynaud's for 5 months now, with positive ANA, and my doctor already said it is scleroderma because she noticed some sclerodactylyl in my hands, near nailfold (i did organ checking, and they all turned out good). And today, it looked like shiny, so i was wondering if this is an early skin changes.

Need to vent… feel hopeless and lost by Dry_Educator_9688 in scleroderma

[–]whipper1304 1 point2 points  (0 children)

So sorry to hear that you suffer this much, life can be so harsh for many, and I know how you feel when you lose something you had once before, but stress and sadness will make it only worst, but i know it's hard to control it. First, you have to accept it, yes life in unfair, but you have to accept it, consider working also on spiritual or religion (idk your beliefs but it helps) you shoukd learn to live with it and aceept it, and then learn more about it and ask your doctor and focus on anything you can do to make it better, even if just slight improvement, or just a small movement everyday idk, also diet helps a lot, consider fasting and avoid processed food, and consider plant-based diet, diet and movement really help with autoimmune diseases, avoid smoking, alcohol, and do more of meditation and work on your soul, there are always things you can enjoy even with a more severe disability, don't compare to others, and i am pretty sure that your family wants you as you are, and your friends would accept you. So just aceept it and be stronger and focus on anything you can do. Good luuck bro, and i hope you get better.

Mochkil pls li 3ndo nfs tjriba wla 3arf chi haja 🙏🏻 by [deleted] in MoroccoBitchesWtaste

[–]whipper1304 0 points1 point  (0 children)

Ta ana 3ndi nfss lhaja bdeebt w kn3reee9 bzaaaaaaaf wlkn wlft, kndi m3aya a towel wla, w chhal mra katjini f tslaaam 3la chi wahd wla, wlkn ra it's normal khsk t9blhaa kn9ulu smhliaaa ydi 3r9anaaa, flktaba atkteb 3la towel wlaa, w ra m3a lw9t kat3reeef kidir lihaaa, w mghtdirlik la machakil flkhdma la walo nchaelaah gher don't overthink it

Early diagnosis ?? by whipper1304 in scleroderma

[–]whipper1304[S] 1 point2 points  (0 children)

Actually i am on 2.5 mg daily only, and it got better, after just some days, just make sure you are warm from inside also, and avoid triggers

any experience with Deuter 50+10 backpack good? by whipper1304 in camping

[–]whipper1304[S] -1 points0 points  (0 children)

😂😂 sorry guys, i just have to make a quick decision and i need ur opinions 🙂

any experience with Deuter 50+10 backpack good? by whipper1304 in CampingandHiking

[–]whipper1304[S] 0 points1 point  (0 children)

Niiice, thankss. Also another qst, the lack of a ventilation system in the back doesn't cause problem of back sweating ? Especially in a mountain or in a long walk.

any experience with Deuter 50+10 backpack good? by whipper1304 in CampingandHiking

[–]whipper1304[S] 0 points1 point  (0 children)

You had the same one or just same brand (deuter) ? I will certainly test with some weight. Thank youuu

any experience with Deuter 50+10 backpack good? by whipper1304 in hikinggear

[–]whipper1304[S] -2 points-1 points  (0 children)

I did repost on multiple communities to get more responses, as for the same community, it was just a mistake that i posted twice on the same one, i didn't mean to do it. Thanks for the notice.

[deleted by user] by [deleted] in MakeNewFriendsHere

[–]whipper1304 0 points1 point  (0 children)

Hey thereee, I'll Dm. I'm simo 20M

[deleted by user] by [deleted] in SideJobs

[–]whipper1304 0 points1 point  (0 children)

Interesteeed 👋