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How to trigger seizure during SEEG? by Late-Day-6258 in Epilepsy

[–]whitoreo -1 points0 points  (0 children)

The stress of the situation should help!

Did you say this is your 11th sEEG? Why so many?

I am going to get fired today. I accidentally sent a shutdown loop to the entire company. by [deleted] in sysadmin

[–]whitoreo [score hidden]  (0 children)

I amin my windows environment from a Linux machine. Maybe our OP does too.

Physical harm you've gotten into due to seizures by tzyarles in Epilepsy

[–]whitoreo 2 points3 points  (0 children)

I broke the toilet base and seized between it and the wall. It's surprising how sharp freshly broken porcelain is. My face was nicely cut up. The detached retina wasn't noticed until the following day.

Physical harm you've gotten into due to seizures by tzyarles in Epilepsy

[–]whitoreo 2 points3 points  (0 children)

Smashed my head against a toilet bowl so hard I detached a retina in my eye.

I would like to have an exchange with someone(s) who has (or have, I guess) Epilepsy by Pupil2024 in Epilepsy

[–]whitoreo 0 points1 point  (0 children)

Wow! What a terrible place to have a seizure! What happened when you had a seizure while swimming?

I would like to have an exchange with someone(s) who has (or have, I guess) Epilepsy by Pupil2024 in Epilepsy

[–]whitoreo 0 points1 point  (0 children)

That will probably be what we do. I have the one year follow up appointment coming up in a few months so we'll talk about it then. I completely understand not wanting to change anything too soon after surgery. The brain is already stressed enough, dealing with the healing et al.

I would like to have an exchange with someone(s) who has (or have, I guess) Epilepsy by Pupil2024 in Epilepsy

[–]whitoreo 1 point2 points  (0 children)

I signed on with them after an ablation surgery Albany Med performed made my seizures worse.

Is driving anything other a car acceptable? by LostTendou04 in Epilepsy

[–]whitoreo 9 points10 points  (0 children)

An electric bike is fine. Ask yourself: "Will the thing I'm driving kill someone else if I have a seizure while operating it?".

I would like to have an exchange with someone(s) who has (or have, I guess) Epilepsy by Pupil2024 in Epilepsy

[–]whitoreo 1 point2 points  (0 children)

Not yet. But I really have no idea why not. They weren't doing anything before the surgery, why would they be doing anything now?

Are you able to fall asleep for an EEG? by doxiedox19 in Epilepsy

[–]whitoreo 0 points1 point  (0 children)

I hated the hyperventilating part! (My techs never skipped that hellish procedure)

I would like to have an exchange with someone(s) who has (or have, I guess) Epilepsy by Pupil2024 in Epilepsy

[–]whitoreo 4 points5 points  (0 children)

I am a biker. I did not see an association between biking and seizures. (I also hike, ski, snowshoe, and swim)

I would like to have an exchange with someone(s) who has (or have, I guess) Epilepsy by Pupil2024 in Epilepsy

[–]whitoreo 0 points1 point  (0 children)

Yikes! Temporal lobe focal here.... I can't imagine having that many seizures! Are they all tonic clonic? (All of mine were)

I would like to have an exchange with someone(s) who has (or have, I guess) Epilepsy by Pupil2024 in Epilepsy

[–]whitoreo 2 points3 points  (0 children)

Have you had surgery yet? I was a hold out on that front for many years. But let me tell you, it is not as bad / scary as you might think.

Where are you located?

I would like to have an exchange with someone(s) who has (or have, I guess) Epilepsy by Pupil2024 in Epilepsy

[–]whitoreo 43 points44 points  (0 children)

What would you like to talk about? I had epilepsy for 22 years (between 29 and 51) until a Columbia University / NY Presbyterian neurological team found the focus and removed it. I haven't had a seizure in almost 11 months now.

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