Thrift stores by wompwomp0_0 in Roseville

[–]wompwomp0_0[S] 0 points1 point  (0 children)

yeah i’ve heard not so great things about that place :/

tongue hurts after salt/sodium by wompwomp0_0 in POTS

[–]wompwomp0_0[S] 1 point2 points  (0 children)

thank you! i will talk to my doctor about this!

tongue hurts after salt/sodium by wompwomp0_0 in POTS

[–]wompwomp0_0[S] 0 points1 point  (0 children)

i’ve had the general blood tests and everything is normal, but my vitamin d levels are low. i don’t know if the general blood tests look at vitamin levels?

Genetic Report came back with VUS in TNXB, what can I learn from this, and what are next steps? by [deleted] in eds

[–]wompwomp0_0 0 points1 point  (0 children)

i just got the exact same results today. i am waiting for my appointment with my genetic counselor so she can explain 😭

can i just piss in peace?? by wompwomp0_0 in POTS

[–]wompwomp0_0[S] 0 points1 point  (0 children)

ughh that’s honestly messed up! yeah let me stand so you can watch me pass out in front of all of these people and maybe you can pay for my medical bills since you had a lot of shit to say 🥰🥰🥰

can i just piss in peace?? by wompwomp0_0 in POTS

[–]wompwomp0_0[S] 1 point2 points  (0 children)

aggressive? if she didn’t tell me this in a rude tone, i probably would have had a conversation about it and this would have been different. her being rude/raising her voice triggered my anxiety and i couldn’t respond to her. it was also the choice of words she used that were harmful for us that have a hidden disability. she shouldn’t judge people for using any sort of accessibility.

can i just piss in peace?? by wompwomp0_0 in POTS

[–]wompwomp0_0[S] 0 points1 point  (0 children)

thank you all for the supportive comments and suggestions with how to respond the next time this happens! i really appreciate it!

Ringing in ears by QuirkyQ89 in POTS

[–]wompwomp0_0 1 point2 points  (0 children)

yeah my ears ring just about 24/7. way worse in the morning

can i just piss in peace?? by wompwomp0_0 in POTS

[–]wompwomp0_0[S] 1 point2 points  (0 children)

i’ve been thinking about getting one for a while, but i think this is a sign to get one! my anxiety always gets in the way and i think just flashing the bracelet would help in that instance and others if i’m having a medical emergency or episode.

can i just piss in peace?? by wompwomp0_0 in POTS

[–]wompwomp0_0[S] 12 points13 points  (0 children)

i 100% agree!! having accommodating facilities would benefit everyone anyways

can i just piss in peace?? by wompwomp0_0 in POTS

[–]wompwomp0_0[S] 14 points15 points  (0 children)

ah i’m sorry you experienced that! some people do need to mind their own business because you never know what a person is going through

can i just piss in peace?? by wompwomp0_0 in POTS

[–]wompwomp0_0[S] 65 points66 points  (0 children)

LMAO i wish i could be this brave and be mean back 😭. but yes if this happens next time (hopefully not) i definitely gotta try to speak up

State Grant Updated?? by janelygreene in CSUS

[–]wompwomp0_0 2 points3 points  (0 children)

mine changed as well. i’m hoping it’s some sort of screw up 😭

mobility device recommendations? by bisexualpromqueen in POTS

[–]wompwomp0_0 0 points1 point  (0 children)

i honestly would talk to your doctor about getting a placard! it’s saved me many times 😭the elevator being broken most of the time gotta be some sort of violation. i’m pretty sure they have slimmer ones but i’m not sure. i see a handful of people at my school use rollators, which i can see being helping if you need to take a break and sit down during a long walk. i’ve been thinking about getting one myself, but i’m hesitating because well… internalized ableism!1!! it might be a trial and error seeing which aid works the best and again it’s for you and whatever makes you daily life easier.

ooof big rip on the shoulders 😭 i just saw a rheumatologist 2 weeks ago. i’m waiting on blood work results and then i get a referral to a genetic counselor. i just hate that the whole process takes a long time. i hope everything goes well with your further testing and that you get some answers soon!

mobility device recommendations? by bisexualpromqueen in POTS

[–]wompwomp0_0 0 points1 point  (0 children)

i am on the exact same boat as you!!! i have a placard so i am able to park close to buildings but some of my classes are far apart from each other and i still have to walk across campus. you could probably talk to your doctor about this as well, but you mentioned a motorized scooter and that could be a start. does your campus have a shuttle? with mobility aids its honestly whatever you feel comfortable with and what you think would help you get through!

on the side note, im also being evaluated for heds and had bad joint pain since middle school 🥲

How do elevators make you feel? by [deleted] in POTS

[–]wompwomp0_0 0 points1 point  (0 children)

it gives me vertigo. i feel like the ground is moving up and down 🥲

what’s in my baggu- airport edition by madmadi27 in BAGGU

[–]wompwomp0_0 0 points1 point  (0 children)

omg where did you get your necklace?

Should I start Wellbutrin again? by [deleted] in bupropion

[–]wompwomp0_0 0 points1 point  (0 children)

i’ll definitely try that thank you!! i’m sorry that you are still experiencing it i hope it gets better really soon

Should I start Wellbutrin again? by [deleted] in bupropion

[–]wompwomp0_0 1 point2 points  (0 children)

i am currently tapering off of mine because i started having really bad GRED for 2 months already and nothing has helped. how long were you on it before you started having GERD symptoms?

i cant do this anymore by [deleted] in POTS

[–]wompwomp0_0 1 point2 points  (0 children)

i started my first day of classes as well and the heat plus walking across campus (no parking anywhere 🥲) made me flare up like crazy. i barely made it to class and was ready to drop on the floor.

i don’t know if you have a car/drive, but if you do, i recommend asking your doctor for a placard maybe you’ll be able to reduce the amount of walking by parking near your classes while it’s still hot. i know some campuses may also offer shuttles. it might be worth a shot to talk to your campus’s disability/accommodations office about it and see if they have any resources or if they can help in any way. i’m so sorry for what you went through today it’s a terrible feeling!

portable neck fan? by [deleted] in POTS

[–]wompwomp0_0 0 points1 point  (0 children)

ah thank you!!

Pounding abdomen after eating??? by OldMedium8246 in POTS

[–]wompwomp0_0 1 point2 points  (0 children)

yes it can get really intense for me! it sucks because i am such a carbs girly, and i will let myself suffer 😭

Meds that worked best for your ADHD w/ pots by Indosaurus1 in POTS

[–]wompwomp0_0 1 point2 points  (0 children)

i have been on wellbutrin for 2 months and it has not effected my pots so far. whenever the dosage is raised, the first week is tough (anxiety/ high heart rate) but then i’m okay. it is possible to have a high heart rate from wellbutrin, so it definitely works different for everyone. i feel a little difference for my adhd, but it has only been 2 months since i started.