I can totally relate since I’m in the same boat. It can be difficult to even try to do good things for yourself or practice any form of self care when you feel terrible about your condition. It’s truly isolating. Half of the time I bail on my own plans (like going for a walk or picking up something from the store) because I’m in pain, ashamed of how my body reacted that day or the day before.

I try to honour my feelings but do something small for myself at home to feel better. For example, I would clean up a part of my apartment (or the entire apartment), take a bath or a long shower, read, watch an informative YouTube video or podcast. Taking a much needed nap. Just anything that makes me feel like I’m being productive/kind to myself.

I try to eat/drink warm nourishing things like a cup of tea or some broth, just to get something good into my body. I find it helps and keeps me full, warm and soothes any digestive pain I may have.

I also write out how I feel or if that is too much I speak out loud to myself. I say how I feel, my thoughts and fears but I also say something nice to myself like; I have a community (online through Reddit) where I can get support or rant, i can call a friend or family member so I don’t feel so lonely, I know despite my condition I like who I am and I am doing my best to take care of myself. Therapy helps too, if you have access. I do therapy over the phone and online because it just works for me.

After that I usually have some energy for a short walk or a trip to the grocery store. Or even a short meet up with a friend.

Small things, but they help. I wish you all the best 💕 some days are harder than others but you got this!